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Marlene, I did curves also about the same time as you after RAI. I

couldn't push myself, go do it, take your time, your muscles will thank you.

But it will be a year or so before your body is stable from Grave's and RAI.

Don't wear your self out, it takes us longer to bounce back from things,

even from exercise, just take it slowly.

Jen M

exercise

> Hi,

> Last month when I had my blood work done for my 6-week after RAI

> treatment, and it had not changed much, my doctor told me not to

> exercise yet. This week, my tests showed ..in his words..the RAI was

> a success.. and now I was on the other side of it, that I could

> exercise. I go to Curves, which is resistence and arobic, (if you

> choose to). IS it safe for me now? I still have extremely high

> blood pressure , but my pulse rate is pretty good..70's to high 80's.

> I have gained 8 pounds in 2 months and fear I won't quit, so I would

> like to go work out on days I feel I can. He says o.k., but this is

> from a doctor that looked me in the eyes and said he has never seen

> weight gain from Thyroid problems. (Read between the lines tone of

> voice!.)

> Give me your thoughts and knowledge. And, as always Take Care and

> THANK YOU!

> Marlene

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement

of

> the listowner. I have no input as to what ads are attached to emails.

> --------------------------------------------------------------------------

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  • 4 months later...

Mandy, I think you explained it perfectly " Exercise helps me to unwind

from the inside out ... it balances me " . I just started exercising about 6

months ago as the weight clinic was pushing it. Because I was being pushed

so much, I did it. The day I told her the exercise felt great, she was

thrilled to pieces. She said that's what it takes to succeed. For someone

leading a pretty sedentary life, it surprises me that I really enjoy it. In

my head too, I know it's one very important piece of the puzzle to keep this

weight off.

Life is good....exercise is good.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/242/140

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Mandy, I think you explained it perfectly " Exercise helps me to unwind

from the inside out ... it balances me " . I just started exercising about 6

months ago as the weight clinic was pushing it. Because I was being pushed

so much, I did it. The day I told her the exercise felt great, she was

thrilled to pieces. She said that's what it takes to succeed. For someone

leading a pretty sedentary life, it surprises me that I really enjoy it. In

my head too, I know it's one very important piece of the puzzle to keep this

weight off.

Life is good....exercise is good.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/242/140

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In a message dated 12/27/2003 6:26:20 PM Pacific Standard Time,

jclinton@... writes:

> I know it's one very important piece of the puzzle to keep this

> weight off.

>

re-read this again this morning....needed some extra motivation to get

going... thanks, beautifully said Joan.

Skinny Wishes from Mandy in CA

275/148/126

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In a message dated 12/27/2003 6:26:20 PM Pacific Standard Time,

jclinton@... writes:

> I know it's one very important piece of the puzzle to keep this

> weight off.

>

re-read this again this morning....needed some extra motivation to get

going... thanks, beautifully said Joan.

Skinny Wishes from Mandy in CA

275/148/126

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Mandy, glad it helps. It helps me too so much to have these positive

feelings towards exercise, rather than hum-drum. I'm increasing the time on

the bike 1/2 minute a day, until I work up to 30. At first, I want to quit

because it feels taxing on my body, but after about 5 minutes, that feeling

goes away and it feels pretty darn good.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/242/140

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Mandy, glad it helps. It helps me too so much to have these positive

feelings towards exercise, rather than hum-drum. I'm increasing the time on

the bike 1/2 minute a day, until I work up to 30. At first, I want to quit

because it feels taxing on my body, but after about 5 minutes, that feeling

goes away and it feels pretty darn good.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/242/140

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In a message dated 12/28/2003 1:14:26 PM Pacific Standard Time,

jclinton@... writes:

> I'm increasing the time on

> the bike 1/2 minute a day,

when I first started to walk ... I was huffing and puffing after ten minutes

.... and too, the pain in my knees was so bad, I literally limped all the way.

My strategy was to add five minutes every week ... and today ... I " can "

walk three hours no prob but usually do only two... and this, without ANY PAIN

.... and zero limp.

I think it is absolutely wonderful Joan that your adding that half minute a

day... wish I would have done it that way with the walking too early on.

Great idea.

Skinny Wishes from Mandy in CA

275/148/126

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In a message dated 12/28/2003 1:14:26 PM Pacific Standard Time,

jclinton@... writes:

> I'm increasing the time on

> the bike 1/2 minute a day,

when I first started to walk ... I was huffing and puffing after ten minutes

.... and too, the pain in my knees was so bad, I literally limped all the way.

My strategy was to add five minutes every week ... and today ... I " can "

walk three hours no prob but usually do only two... and this, without ANY PAIN

.... and zero limp.

I think it is absolutely wonderful Joan that your adding that half minute a

day... wish I would have done it that way with the walking too early on.

Great idea.

Skinny Wishes from Mandy in CA

275/148/126

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It's amazingly easy to only add 30 seconds to your exercise, and that

increases at least 3 minutes a week. I usually miss one day running to town.

3 hours walking is incredible!!!!! Maybe someday after my ankle quits

protesting. It actually did well in the stores today, but I wore high top

boots to support it.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/242/140

Re: Exercise

In a message dated 12/28/2003 1:14:26 PM Pacific Standard Time,

jclinton@... writes:

> I'm increasing the time on

> the bike 1/2 minute a day,

when I first started to walk ... I was huffing and puffing after ten

minutes

... and too, the pain in my knees was so bad, I literally limped all the

way.

My strategy was to add five minutes every week ... and today ... I " can "

walk three hours no prob but usually do only two... and this, without ANY

PAIN

... and zero limp.

I think it is absolutely wonderful Joan that your adding that half minute

a

day... wish I would have done it that way with the walking too early on.

Great idea.

Skinny Wishes from Mandy in CA

275/148/126

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It's amazingly easy to only add 30 seconds to your exercise, and that

increases at least 3 minutes a week. I usually miss one day running to town.

3 hours walking is incredible!!!!! Maybe someday after my ankle quits

protesting. It actually did well in the stores today, but I wore high top

boots to support it.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/242/140

Re: Exercise

In a message dated 12/28/2003 1:14:26 PM Pacific Standard Time,

jclinton@... writes:

> I'm increasing the time on

> the bike 1/2 minute a day,

when I first started to walk ... I was huffing and puffing after ten

minutes

... and too, the pain in my knees was so bad, I literally limped all the

way.

My strategy was to add five minutes every week ... and today ... I " can "

walk three hours no prob but usually do only two... and this, without ANY

PAIN

... and zero limp.

I think it is absolutely wonderful Joan that your adding that half minute

a

day... wish I would have done it that way with the walking too early on.

Great idea.

Skinny Wishes from Mandy in CA

275/148/126

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In a message dated 12/29/2003 5:12:42 PM Pacific Standard Time,

jclinton@... writes:

> and that

> increases at least 3 minutes a week.

again .. I love love love this idea Joan ... will apply it to my " step class "

.... which is so hard for me right now, the pivitol movements alone are the

challenge.. My knees are still too weak... or is my body rusty?? I can walk

forward ... no prob....but all of this other nonsense ...step to the side,

step to the back, step forward ...turn... lol... it makes me dizzy. I need to

work up to it I guess. Am moving as if I am an X-coma patient... risen from a

brain-dead state. Embarrassing. This is going to take some time to get used

to.

As you and ( was it Ruth?? ) and your Dr say .... " moderation is key " We

all have to start from where we are .... NOW ... and work up to a new level.

1/2 minute daily increases ... love it.

Skinny Wishes from Mandy in CA

275/147/126

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In a message dated 12/29/2003 5:12:42 PM Pacific Standard Time,

jclinton@... writes:

> and that

> increases at least 3 minutes a week.

again .. I love love love this idea Joan ... will apply it to my " step class "

.... which is so hard for me right now, the pivitol movements alone are the

challenge.. My knees are still too weak... or is my body rusty?? I can walk

forward ... no prob....but all of this other nonsense ...step to the side,

step to the back, step forward ...turn... lol... it makes me dizzy. I need to

work up to it I guess. Am moving as if I am an X-coma patient... risen from a

brain-dead state. Embarrassing. This is going to take some time to get used

to.

As you and ( was it Ruth?? ) and your Dr say .... " moderation is key " We

all have to start from where we are .... NOW ... and work up to a new level.

1/2 minute daily increases ... love it.

Skinny Wishes from Mandy in CA

275/147/126

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The exercise idea of increasing 1/2 minute a day was from the weight clinic.

Never before had anyone said, just start with 5 minutes, then increase. The

docs said 30 minutes a day, that was it. 5 minutes seemed so obtainable it

was easy to start, and 30 seconds more doesn't seem a big deal, but it does

eventually get you to good, long exercise. I don't know I'd do any better

in a step class, but GOOD FOR YOU!!! I've heard it's tough.

It was Robin O. that has been so often said " moderation " is the key. I've

to keep these keys in my head, and make them part of me.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/241/140

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The exercise idea of increasing 1/2 minute a day was from the weight clinic.

Never before had anyone said, just start with 5 minutes, then increase. The

docs said 30 minutes a day, that was it. 5 minutes seemed so obtainable it

was easy to start, and 30 seconds more doesn't seem a big deal, but it does

eventually get you to good, long exercise. I don't know I'd do any better

in a step class, but GOOD FOR YOU!!! I've heard it's tough.

It was Robin O. that has been so often said " moderation " is the key. I've

to keep these keys in my head, and make them part of me.

Joan

LAP RNY 11/18/03

Dr. Higa, Fresno, CA

282pre-op/275surg/241/140

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  • 3 years later...
Guest guest

One of the biggest issues for us is how to exercise and get some strength back.

I recently did posts on Pulmonary Rehab-- a program that I've done a couple of times and highly recommend. I'll try to find it in the ARCHIVES.

When you end up bedridden, and unable to get around, muscle wasting can start in as little as 3 days. So for those of us that have spent years sitting around (I know, it's not by choice) we have lost not only muscle tone-- but it also has put us in high risk for the bone loss. It does take weight bearing exercise to keep your bones strong.

I'd recommend that you talk to you MD's and get into a physical therapy program, a pulmonary rehab program so that you can learn to start over and build up stamina.

Most of us try to go it alone-- and we overdo it-- and end up quitting our program before we get off the ground.

Starting with those hand weights or even a can of soup or spaghetti noodles or even a wet sponge-- is at least a start. Just a few lifts with each arm each day is better than the none you are doing now.

For sarcoidosis-- it's not about getting that heart rate up-- it's about starting slowly-- very slowly, and adding a couple of minutes each week until you can get on a treadmill or stationary bike or around the block-- and spend 30 minutes or so of weight bearing exercise.

some people love to get into a pool- but do be careful, if you have lung sarc- again- it's not about that heart rate, but it's building up endurance. (Ya know, getting to 1/2 of what was normal)

Take care, and be gentle with yourself, you can get better.

BTW-- for those of you that have followed the no sunlight routine or the high calcium levels -- we need Vit D to regulate calcium output-- not alot of it, so use sunscreen, but get outside. If you've been on high dose prednisone-- you have leached the calcium out of your body, and your bones are naturally going to thin. Anything we do to an extreme is going to do more harm in side effects than if we do things in small doses. Coming back to basic common sense ways to take care of yourself is healing.

Sincerely,

Tracie

NS Co-owner/moderator************************************** See what's free at http://www.aol.com.

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Great advice. I finally began working with an understanding trainer at

our local gym. She developed a very low level program I can do at home

and emails/calls to check on my progress. I don't feel up to it every

day, but when I do I feel better! I tend to crash and burn, doing too

much, too soon. Getting another person to help monitor is great. Make

sure they understand you are fragile! and will have ups and downs, not

steady progress.

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  • 2 years later...

I have been feeling somewhat normal as of late and wanted to get back on my treadmill to hopefully drop ten pounds. I did some walking and added in some jogging. The next day my guts felt terrible! Loose stools and gassy. I am sure I have scar tissue so I am thinking this is the culprit. I go in for surgery in March for a complete hysterectomy and to remove scar tissue in the abdomen. But, I was wondering, has anyone noticed an increase in symptoms when they do vigorous exercise?

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I do. BEfore I got Ulcerative Colitis I was in the gym every other day, active in sports, ect. I had to take ayear off from everything while I learned to manage this disease and when I feel up to it I go back. Alot of times I feel more pain the next day but it's only if I do exercises that rely on the stomach (such as walking, running, ect) I'm pretty sure it's just because you're working that area and it's already sensitive. I think in time as we heal it will be ok and exercising is supposed to help symptoms anyway. Works just like LDN.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: btvc-scd From: gramenz0919@...Date: Sat, 9 Jan 2010 10:18:12 -0600Subject: Exercise

I have been feeling somewhat normal as of late and wanted to get back on my treadmill to hopefully drop ten pounds. I did some walking and added in some jogging. The next day my guts felt terrible! Loose stools and gassy. I am sure I have scar tissue so I am thinking this is the culprit. I go in for surgery in March for a complete hysterectomy and to remove scar tissue in the abdomen. But, I was wondering, has anyone noticed an increase in symptoms when they do vigorous exercise?

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>I am sure I have scar tissue so I am thinking this is the culprit. I go in for

surgery in March for a complete hysterectomy and to remove scar tissue in the

abdomen.

There are manual therapies such as Myofascial Release and Visceral Manipulation

that can be used to alleviate problems with adhesions and scarring.

Unfortunately, when scar tissue is removed surgically, a sometimes necessary

intervention, the procedure itself causes new scar tissue.

Lilian

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:( I'm sorry to hear that you feel bad. Just goes to show again that every

body is different; exercise significantly helps my symptoms.

Stacey

>

>

> I have been feeling somewhat normal as of late and wanted to get back on my

treadmill to hopefully drop ten pounds. I did some walking and added in some

jogging. The next day my guts felt terrible! Loose stools and gassy. I am

sure I have scar tissue so I am thinking this is the culprit. I go in for

surgery in March for a complete hysterectomy and to remove scar tissue in the

abdomen. But, I was wondering, has anyone noticed an increase in symptoms when

they do vigorous exercise?

>

>

>

>

>

> _________________________________________________________________

> Hotmail: Trusted email with powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/196390707/direct/01/

>

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Certainly. Since my diagnosis of upper GI disorders I have to be very careful with exercise, particularly any that stress the upper abdominals or require bending, otherwise I am hit with severe nausea and right upper quadrant pain within minutes, the kind that puts me flat very rapidly. I don't have much stamina, either, and fatigue quickly. Plus I've developed other neuromuscular issues that are quickly aggravated by physical activity.

So, I just make do with mild exercise like walking, and only for 30 minutes at a time. I miss yoga, and I miss being able to go hiking. These days I'm happy just to get through my 30 minute walk without collapsing when I get home.

Since my ability to exercise has slowly deteriorated over the past six years (and my digestive disorder diagnosis), I'm assuming I won't get any better. My doctors are non-committal on this issue... I'm work at just maintaining mild exercise levels -- and some days that is problematic for me [sigh].

I think most people with digestive disorders that can go into remission improve enough that they can return to regular exercise. But sometimes our bodies have other ideas so we have to change another aspect of our life.

Kim M.

SCD 6 years

>>>>>>>>>>

......But, I was wondering, has anyone noticed an increase in symptoms when they do vigorous exercise?

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yes - bigtime! DH used to be a runner. He stopped for a few years and when he started running again, that was the first time he had a really bad flare. So he stopped for a long time and felt better. Started running again and had the worst flare ever. I don't know if it's all exercise, or running in particular (that is a LOT of pressure on your body), but there is a definite connection for him (unfortunately).

To: SCD Diet <btvc-scd >Sent: Sat, January 9, 2010 8:18:12 AMSubject: Exercise

I have been feeling somewhat normal as of late and wanted to get back on my treadmill to hopefully drop ten pounds. I did some walking and added in some jogging. The next day my guts felt terrible! Loose stools and gassy. I am sure I have scar tissue so I am thinking this is the culprit. I go in for surgery in March for a complete hysterectomy and to remove scar tissue in the abdomen. But, I was wondering, has anyone noticed an increase in symptoms when they do vigorous exercise?

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