Mito Kids from Monterey to San Francisco?

September 4, 2004

HI

My name is Rosy and our girl Max, 5, has been dx with comlex I.

Now at the age of 5 she likes very much to meet other kids in her

situation. On her own she feels different and even so we tell her she

is not the only one, it is hard for her to accept, never having met

other kids like her.

If you live anywhere alongthe ca coast from Carmel to San Francisco,

even in Marin, we love to hear from you.

sincerely,

rosy, mum to max, 5

September 5, 2004

Would she be interested in a pen pal as well? I don't have any

children aged 5 and Asenath, at 4, isn't cognitively that old so probably

wouldn't work BUT I bet my " just turned " 8 year old would love to have a

pen pal. She could tell her about her sisters and just be a friend. She

does have some issues suspected related we think, but is mild at this point.

If your interested, let me know. I know you were more talking about MEETING

with someone, but, thought I might ask. Either way, it's ok.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach