Re: negligent doctor

[Guest guest]

Thanks Rose. You're right. I did try to contact the anesthesiologist through his free standing practice (he's with 75 or so others) but my email was returned as undeliverable. I got my records per my pulmo's request and that was how I positively knew I was given scoline as it was written. As I get more back to normal I plan to write the CEO of the hospital (BTW it's the hospital I am on medical leave from). People do make mistakes but this was inexcuseable. I did everything I could to protect myself and just couldn't believe it. Blessings, BeckyRose wrote: Becky, letters like yours remind me of how fortunate I really am. I am so sorry that you, or anyone else, has to go through this kind of experience. As for the anesthesiologist, when you feel up to it, I'd recommend writing a letter to the hospital administrator with a copy to the head of the anesthesia department. This is inexcusable. Also, write down this guy's name & refuse any future care by him. People are human (hmmm, pretty smart, aren't I?) and mistakes do happen, but this one is just plain negligence. Ramblin' Rose Moderator From: Mac Tosh <macandtosh626 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: No pred...CellceptDate: Wed, 21 Mar 2007 17:01:41 -0700 (PDT) Missed you too ! Surgery was tough and the doctor had to do something he had never done before...he used a spinal needle to get to my subclavian vein to thread the lead to my right

ventricle (screwed it in once there). But, the worst part was I had severe wheezing, shortness of breath, and chest tightness, along with many, many PVC's, muscle pain, etc. for several days after the surgery. I have had a problem with scoline (paralytic) during surgery in the past (severe muscle pains) so was told to make sure I told any future anesthesiologists this so would never get it again. I had a typed letter placed in my chart, told my anesthesiologist myself, and it was even listed on my red allergy bracelet and I was STILL given the med. Could have caused my breathing problems. Now, my upper left arm is about 2 1/2 inches larger but no clot via sonogram. Will see EP guy tomorrow...he's thinking the lead may be impeding blood flow but hopefully I will develop collateral circulation to compensate. I haven't been on the computer much and just am now getting back to where I really feel up to it. You remain in my prayers...Blessings, Becky <topdat (AT) bellsouth (DOT) net> wrote: Becky, I've been so worried about you! I've asked several times if anyone has heard from you and thank god you posted.. I lost your phone number and didn't know how to get in touch.. I hope everything went well and that your slowly getting back on your feet... Email me at topdat (AT) bellsouth (DOT) net if you want or if you want to talk through the group that's fine too. I'm so glad to see you

back.. I've missed you.. -- Re: No pred...Cellcept Tony, I started Cellcept a few months ago but had to go off until after my AICD/pacemaker surgery (Jan 25 for cardiac sarcoid). I'm several weeks post-op now but with a rash under my left arm so can't re-start the Cellcept until it's gone. I had NO

problems with the med and I will be glad to get back on it. Right now, my left arm is swollen (checked for clots but none there) so will see the EP doctor (he did the surgery) tomorrow about my arm. Cellcept was prescribed by my s Hopkins Sarcoidosis specialist in Baltimore. God bless you, BeckyTony <dancingangelsfarm (AT) hotmail (DOT) com> wrote: Yesterday was one for the books. A small victory, but a victory none the less. Perhaps I was still raging from the pred...gosh, I hate that stuff. The doc began the conversation with the phrase "Have we tested you for MS?" and I snapped. Been there, done that, have the T-shirt, the jacket, the bopple headed dog & all of the souvenirs! Enough already! I walked through 15 years of symptoms, tests, and frustration. In the end, he conceded that in retrospect, the symptoms & test results are consistent with chronic

sarcoid with skin, pulmonary, CNS & peripheral nerve involvement. He even wrote it on my chart! Halleluiah, the diagnostic phase is finally behind us...time to move on.He attributed the temporary loss of vision over the weekend to an ocular migraine. While not overly concerned, he told me to contact the office if the symptoms presented again. I wasn't familiar with the term or the event so I took his word, especially since we had bigger fish to fry. On to potential treatments. We talked about prednisone, the side effects, the auxiliary pharmacy to counteract the side effects (insomnia, anxiety, etc). I could tell that the doc wasn't a big fan. Then he told me about Cellcept (Roche labs), an immuno-suppressant, including benefits & risks, indicating that he has prescribed the drug for hundreds of his MS & sarc patients with a good success rate. OK, this is an off label use so here's the

disclaimer..., the doctor met the criteria of 21 CFR (http://www.fda.gov/oc/ohrt/irbs/offlabel.html) by being "well informed …and using firm scientific rationale and sound medical evidence". I signed an informed consent form in return for the rx & went off to surf the net to find out what else I could. My biggest concerns are the side effects…possible infections due to the suppressed immune response, increased risk of skin cancer (4.2%) & lymphoma (<2%) , pain (76%) & headaches (24%) ...pain reported by 76% of the test group without much of a description as to what type / level...the pain & headache are a real concern for me considering my present state, not to mention the thought of purposely increasing my risk of cancer…sad to realize what risks one is willing to accept once you've surpassed your threshold of pain

twice over. Regardless of the not so good symptoms, the pred reduced the headache, reminding me of what life used to be like. I want that life back. I filled the rx yesterday afternoon. If nothing else, I'll give it a go for a month. I always have the option to stop if the treatment is worse than the disease or otherwise ineffective... peace to you, my friends. Tony Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center. Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users. << image5.gif >> Watch free concerts with Pink, Rod , Oasis and more. Visit MSN Presents today.

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[Guest guest]

Well, Becky, I guess you could have put a piece of duct tape on your IV arm, with a note. Or hire a bodyguard. I recently read an article about the number of medical errors in hospitals. I can't believe that doctors are still operating on the wrong body parts, etc., after all the publicity in the past few years. Makes me sick, especially being a nurse. I know one thing, Marcus Welby would never screw up like that! (for you youngsters out there, Dr. Welby was one of the first--maybe THE first--TV doctors.)

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: negligent doctorDate: Wed, 21 Mar 2007 18:51:27 -0700 (PDT)

Thanks Rose. You're right. I did try to contact the anesthesiologist through his free standing practice (he's with 75 or so others) but my email was returned as undeliverable. I got my records per my pulmo's request and that was how I positively knew I was given scoline as it was written. As I get more back to normal I plan to write the CEO of the hospital (BTW it's the hospital I am on medical leave from). People do make mistakes but this was inexcuseable. I did everything I could to protect myself and just couldn't believe it. Blessings, BeckyRose <mamadogrose (AT) hotmail (DOT) com> wrote:

Becky, letters like yours remind me of how fortunate I really am. I am so sorry that you, or anyone else, has to go through this kind of experience. As for the anesthesiologist, when you feel up to it, I'd recommend writing a letter to the hospital administrator with a copy to the head of the anesthesia department. This is inexcusable. Also, write down this guy's name & refuse any future care by him. People are human (hmmm, pretty smart, aren't I?) and mistakes do happen, but this one is just plain negligence.

Ramblin' Rose

Moderator

From: Mac Tosh <macandtosh626 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: No pred...CellceptDate: Wed, 21 Mar 2007 17:01:41 -0700 (PDT)

Missed you too ! Surgery was tough and the doctor had to do something he had never done before...he used a spinal needle to get to my subclavian vein to thread the lead to my right ventricle (screwed it in once there). But, the worst part was I had severe wheezing, shortness of breath, and chest tightness, along with many, many PVC's, muscle pain, etc. for several days after the surgery. I have had a problem with scoline (paralytic) during surgery in the past (severe muscle pains) so was told to make sure I told any future anesthesiologists this so would never get it again. I had a typed letter placed in my chart, told my anesthesiologist myself, and it was even listed on my red allergy bracelet and I was STILL given the med. Could have caused my breathing problems. Now, my upper left arm is about 2 1/2 inches larger but no clot via sonogram. Will see EP guy tomorrow...he's thinking the lead may be impeding blood flow but hopefully I will develop collateral circulation to compensate. I haven't been on the computer much and just am now getting back to where I really feel up to it. You remain in my prayers...Blessings, Becky <topdat (AT) bellsouth (DOT) net> wrote:

Becky, I've been so worried about you! I've asked several times if anyone has heard from you and thank god you posted.. I lost your phone number and didn't know how to get in touch.. I hope everything went well and that your slowly getting back on your feet... Email me at topdat (AT) bellsouth (DOT) net if you want or if you want to talk through the group that's fine too.

I'm so glad to see you back.. I've missed you..

-- Re: No pred...Cellcept

Tony, I started Cellcept a few months ago but had to go off until after my AICD/pacemaker surgery (Jan 25 for cardiac sarcoid). I'm several weeks post-op now but with a rash under my left arm so can't re-start the Cellcept until it's gone. I had NO problems with the med and I will be glad to get back on it. Right now, my left arm is swollen (checked for clots but none there) so will see the EP doctor (he did the surgery) tomorrow about my arm. Cellcept was prescribed by my s Hopkins Sarcoidosis specialist in Baltimore. God bless you, BeckyTony <dancingangelsfarm (AT) hotmail (DOT) com> wrote:

Yesterday was one for the books. A small victory, but a victory none the less. Perhaps I was still raging from the pred...gosh, I hate that stuff. The doc began the conversation with the phrase "Have we tested you for MS?" and I snapped. Been there, done that, have the T-shirt, the jacket, the bopple headed dog & all of the souvenirs! Enough already! I walked through 15 years of symptoms, tests, and frustration. In the end, he conceded that in retrospect, the symptoms & test results are consistent with chronic sarcoid with skin, pulmonary, CNS & peripheral nerve involvement. He even wrote it on my chart! Halleluiah, the diagnostic phase is finally behind us...time to move on.He attributed the temporary loss of vision over the weekend to an ocular migraine. While not overly concerned, he told me to contact the office if the symptoms presented again. I wasn't familiar with the term or the event so I took his word, especially since we had bigger fish to fry. On to potential treatments. We talked about prednisone, the side effects, the auxiliary pharmacy to counteract the side effects (insomnia, anxiety, etc). I could tell that the doc wasn't a big fan. Then he told me about Cellcept (Roche labs), an immuno-suppressant, including benefits & risks, indicating that he has prescribed the drug for hundreds of his MS & sarc patients with a good success rate. OK, this is an off label use so here's the disclaimer..., the doctor met the criteria of 21 CFR (http://www.fda.gov/oc/ohrt/irbs/offlabel.html) by being "well informed …and using firm scientific rationale and sound medical evidence". I signed an informed consent form in return for the rx & went off to surf the net to find out what else I could. My biggest concerns are the side effects…possible infections due to the suppressed immune response, increased risk of skin cancer (4.2%) & lymphoma (<2%) , pain (76%) & headaches (24%) ...pain reported by 76% of the test group without much of a description as to what type / level...the pain & headache are a real concern for me considering my present state, not to mention the thought of purposely increasing my risk of cancer…sad to realize what risks one is willing to accept once you've surpassed your threshold of pain twice over. Regardless of the not so good symptoms, the pred reduced the headache, reminding me of what life used to be like. I want that life back. I filled the rx yesterday afternoon. If nothing else, I'll give it a go for a month. I always have the option to stop if the treatment is worse than the disease or otherwise ineffective... peace to you, my friends. Tony

Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.

Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

<< image5.gif >>

Watch free concerts with Pink, Rod , Oasis and more. Visit MSN Presents today.

Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

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