Guest guest Posted January 19, 1996 Report Share Posted January 19, 1996 Hi everyone, My granddaughter Kaytie aged 2 years curls her toes under as she walks. She also limps occasionally and as well as falls over on occasions. Someone has told me she is Pigeon toed. Has anyone else experienced this please and if so can anything be done to correct it? Thanks, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 1996 Report Share Posted January 19, 1996 Thanks to both and Keeley for your answer. She does fall as well as limp. It is something that I have brought to the attention of both the GP and the paediatrician including the fact that to pass a bowel motion she lies on her side and grunts for up to 10 minutes several times a day, sometimes for several days before passing a 'soft motion'. This also seems wrong to me but I am told not to worry about it by the paediatrician. The GP has been more open-minded than the paediatrician. The problem is that we live in New-Zealand where Mito is largely ignored as it is not understood. It is still believed here that people with Mito are always in wheelchairs and brain-damaged therefore I need to gather as much information as I can to help me in my search for the truth. Would it be okay to keep both your e-mails to add to my ever growing number that I may someday need to 'show' to her paediatrician.? I promise they will go no further than my grandaughter's paediatrician or GP. I feel that there is an element of fear behind the paediatrician's non exceptance of anything being wrong which stems from his care of my daughter -Kay one weekend when he was on duty. She was very ill that weekend and ended up in intensive care and he was sweating with anxiety and told me he would be real glad to see her own paediatrician back on duty. Thanks for your help. . Re: Pigeon toe This was the first sign in brandon that there was a problem. is 21 months old (today!) and when hes sitting playing, he curls his toes under quite tightly and twists his feet inwards (this is a link to a photo of it, http://im1.shutterfly.com/procserv/47b4d724b3127cceb5b3131351ce0000001510 )BRandon also falls alot for his age... he has decent balance and walks well, but tends to stumble alot and falls when he is rushing. when he gets sick or tiered all of this gets ALOT worse. As of present, we dont have anything in place to try to correct or control this, as we are still in the diagnosis stage, however we have been told that if it gets worse, we can expect night time braces, and possibly walking braces for a while... at this point the toe curling doesnt seem to be interfering with his walking though, we really only see it alot when he is resting. I know that there are a few causes of 'pidgeon toes' or 'club feet', one is tendon tightness, another is muscle tightness (contractures?), another is orthopedic (the bones), and the last one is neurological (nerve problems). Until a doc has done a work up (usually a physical exam, xrays, and possibly a CT or MRI and bloodwork) theres no easy way to determine the cause as far as im aware... does it seem to hurt her? i know muscle contractures can be very painful... my cousins daughter has neurological club feet, and they are painless... My aunt had orthopedic club feet and wore braces as a baby, and you could never tell now... They dont know the cause of s yet, however they are leaning to neurologic as well at this point. a good friend of mine had orthopedically caused club feet and if i were to look at all 3 of those people I never could have told the difference, as they all present looking and walking exactly the same... Have you asked your doc about this yet? probably best to have it checked sooner rather than later, as braces have better results the earlier they are introduced... I hope you get some answers!! good luck!Keely> Hi everyone,> > My granddaughter Kaytie aged 2 years curls her toes under as she walks. She also limps occasionally and as well as falls over on occasions. > > Someone has told me she is Pigeon toed. Has anyone else experienced this please and if so can anything be done to correct it?> > Thanks,> .Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 1996 Report Share Posted January 19, 1996 Thanks - You are right in saying that sometimes treating a problem before it gets serious has much better outcomes. My niece has something called RSD (Reflex Sympathetic Dystrophy) which can be related to Mito. This condition was ignored by Doctors until it became so bad that she has just had her leg removed above the knee due to pain and swelling. I feel very frustrated. Thanks also for agreeing to allowing me to show your email to the paediatrician. I appreciate your help. . Re: Re: Pigeon toe Feel free to use my email if you need too. Hopefully your doctors can understand that sometimes treating a problem, before it gets serious has much better outcomes. This is why we decided to get Gracies foot problems battled now. As of today she really has no major problem, and if she was otherwise healthy they would probably wait to treat. Since she does have mito, we decided to treat before her ankles showed damage. We know for her healing is harder than most so we try to avoid it. Best Wishes, Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 1996 Report Share Posted January 19, 1996 Thanks Keely. The photo was also very interesting. . Re: Pigeon toe feel free to hang onto my email, if you have any questions my ady is kschellenberg@...:)Keely> > Hi everyone,> > > > My granddaughter Kaytie aged 2 years curls her toes under as she > walks. She also limps occasionally and as well as falls over on > occasions. > > > > Someone has told me she is Pigeon toed. Has anyone else > experienced this please and if so can anything be done to correct it?> > > > Thanks,> > .> > > > Please contact mito-owner with any problems or questions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2004 Report Share Posted September 5, 2004 My daughter is also two, and has foot and ankle problems. She does not curl her toes under, however, but often stretches them outwards. She also has extremely flat feet, and her ankles roll both inwards and outwards. Falling is also a very big problem for her, as sometimes her arms are too weak to catch her, resulting in her hitting her head. We first brought it to our pediatrician, for advice. She quickly noticed the very flat feet. Since muscle issues are common with mito, she thought best to have her evaluated by an orthopedic doctor. The orthopedic doctor took x rays and watched her walk, stand up ect... He decided that the majority of Gracies problem were due to muscle weakness. He prescribed foot supports that she will need to wear in her shoes. We just had the molds made last week, so we are expecting them to be done in a few weeks. We are hoping they provide her with more support, and eventually will not need them anymore. We do not even need to see the orthopedic doctor for another year, and that is actually to check on a hip problem she has. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2004 Report Share Posted September 5, 2004 This was the first sign in brandon that there was a problem. is 21 months old (today!) and when hes sitting playing, he curls his toes under quite tightly and twists his feet inwards (this is a link to a photo of it, http://im1.shutterfly.com/procserv/47b4d724b3127cceb5b3131351ce000000 1510 ) BRandon also falls alot for his age... he has decent balance and walks well, but tends to stumble alot and falls when he is rushing. when he gets sick or tiered all of this gets ALOT worse. As of present, we dont have anything in place to try to correct or control this, as we are still in the diagnosis stage, however we have been told that if it gets worse, we can expect night time braces, and possibly walking braces for a while... at this point the toe curling doesnt seem to be interfering with his walking though, we really only see it alot when he is resting. I know that there are a few causes of 'pidgeon toes' or 'club feet', one is tendon tightness, another is muscle tightness (contractures?), another is orthopedic (the bones), and the last one is neurological (nerve problems). Until a doc has done a work up (usually a physical exam, xrays, and possibly a CT or MRI and bloodwork) theres no easy way to determine the cause as far as im aware... does it seem to hurt her? i know muscle contractures can be very painful... my cousins daughter has neurological club feet, and they are painless... My aunt had orthopedic club feet and wore braces as a baby, and you could never tell now... They dont know the cause of s yet, however they are leaning to neurologic as well at this point. a good friend of mine had orthopedically caused club feet and if i were to look at all 3 of those people I never could have told the difference, as they all present looking and walking exactly the same... Have you asked your doc about this yet? probably best to have it checked sooner rather than later, as braces have better results the earlier they are introduced... I hope you get some answers!! good luck! Keely > Hi everyone, > > My granddaughter Kaytie aged 2 years curls her toes under as she walks. She also limps occasionally and as well as falls over on occasions. > > Someone has told me she is Pigeon toed. Has anyone else experienced this please and if so can anything be done to correct it? > > Thanks, > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 feel free to hang onto my email, if you have any questions my ady is kschellenberg@... Keely > > Hi everyone, > > > > My granddaughter Kaytie aged 2 years curls her toes under as she > walks. She also limps occasionally and as well as falls over on > occasions. > > > > Someone has told me she is Pigeon toed. Has anyone else > experienced this please and if so can anything be done to correct it? > > > > Thanks, > > . > > > > Please contact mito-owner with any problems or questions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Feel free to use my email if you need too. Hopefully your doctors can understand that sometimes treating a problem, before it gets serious has much better outcomes. This is why we decided to get Gracies foot problems battled now. As of today she really has no major problem, and if she was otherwise healthy they would probably wait to treat. Since she does have mito, we decided to treat before her ankles showed damage. We know for her healing is harder than most so we try to avoid it. Best Wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 My daughter Molly who is being evaluated at the end of the month for Mito has begun to walk pigeon toed too. Is this something that just can happen? I always figured it (pigeon toed) was something from birth but have just noticed it the past six months (she is three). She does not fall but it a very prominent when you look at her walk. Is it common with mito? Dawn Quote Link to comment Share on other sites More sharing options...
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