Child pen pal idea/support for our kids (anyone's kids interested???)

[Guest guest]

A recent post prompted me to act upon something I have been considering

for a while now. I have up to 5 children that would love to write to other

kids (with Mito or siblings of Mito affected kids) to develop relationships.

I think it would be neat to put together a list of interested kids, their

ages, where they live, and get many of our kids connected. We have this

support group to help us deal with the issues we face daily with Mito, but

what about our kids??? I know my kids have a lot to deal with emotionally

and the affected one, physically. Anyone interested let me know and I will

organize the group that wants to develop relationships. If the interest is

large it could later possibly develop into an e-mail support group for kids,

BUT I honestly don't encourage my kids to be online too much. I know

sib-kids e-mail group is a group for siblings of kids with health issues but

it wasn't a good fit for my kids and it mostly had one line e-mails that

added up to way too much of a pain for our family. But I know for our kids

it would be great to write letters, send e-mails, possibly phone calls, to

connect and make relationships with other Mito affected kids or siblings.

LET ME KNOW WHOSE INTERESTED!

For starters, we live in Des Moines, Iowa and my kids are:

Luke 16

Leah 14

Rachael 12

Isaac 10

Tirzah 08

*Asenath (4) Kezia (3) Marquis (2) and Zipporrah (10

months) These guys are probably too young to do much, but if interested

still let me know. Us moms could write little notes with stickers or

something to the toddler/pre-school aged kids.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), &

Marquis (2) (some with Mito symptoms)