RE: Hello SCD friends . . . update

[Guest guest]

so glad to hear you're feeling better (a bit) and that you all have a good

outlook! hang in is right - such a healing diet!

did you get D even from IV antibiotics -i just read you could - I had 1 of the 3

lyme bands show positive - and not sure what that means for the future yet??

thanks

Eileen 2 years scd

son 3 1/2 months scd

>

> Happy new year . . .

> I have not posted since Septemper or October, when I began my treatments for

Lyme. I have missed the interaction and support that this group provides. I just

wanted to touch base and let you know my status.

>

> I recently completed 74 days of daily IV rocephin for chronic Lyme, and also 2

rounds of IVIG. I am improving, but am weak and pretty tired. I have been eating

pretty much variations on intro, and when I stray off of it, I am very

uncomfortable. Although oddly, coconut flour is my friend.

>

> My 4.5 yr old boys are doing well on SCD too, and my husband is transitioning

into SCD because he also has Lyme and gluten issues. It has been a crazy year

for us. We were thrilled at 12:01 AM on Jan 1! Things can only get better . . .

>

> Anyway, I am looking forward to having some energy back - enough to keep up

with this list (I will give it a try anyway!) and keep life on track for all of

us. I do think it will eventually be easier with all of us on the same eating

plan.

>

> Hoping that everyone is doing well . . . If you are new, hang in there! SCD

works - it really, really does.

>

> Kim in NJ

> old email address = altataos@...

> SCD 13 months for bowel resection/SBS

> 2 boys 4.5 yrs old SCD 13 months for ASD, food intolerance, and immune issues

> Husband transitioning to SCD for lyme and gluten intolerance

>

[Guest guest]

I've been on scd 7 going on 8 months now and I still need encouragement that this works.... all i'd really have to do is eat some pizza hut pizza, or a sandwich from the local deli to see first hand that it's working This diet has helped way too many people to not work, even if UC, Crohn's, and IBD in general is caused by different things all rolled into one diagnosis.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: kim@...Date: Sun, 10 Jan 2010 20:30:13 +0000Subject: Hello SCD friends . . . update

Happy new year . . .

I have not posted since Septemper or October, when I began my treatments for Lyme. I have missed the interaction and support that this group provides. I just wanted to touch base and let you know my status.

I recently completed 74 days of daily IV rocephin for chronic Lyme, and also 2 rounds of IVIG. I am improving, but am weak and pretty tired. I have been eating pretty much variations on intro, and when I stray off of it, I am very uncomfortable. Although oddly, coconut flour is my friend.

My 4.5 yr old boys are doing well on SCD too, and my husband is transitioning into SCD because he also has Lyme and gluten issues. It has been a crazy year for us. We were thrilled at 12:01 AM on Jan 1! Things can only get better . . .

Anyway, I am looking forward to having some energy back - enough to keep up with this list (I will give it a try anyway!) and keep life on track for all of us. I do think it will eventually be easier with all of us on the same eating plan.

Hoping that everyone is doing well . . . If you are new, hang in there! SCD works - it really, really does.

Kim in NJ

old email address = altataos (AT) aol (DOT) com

SCD 13 months for bowel resection/SBS

2 boys 4.5 yrs old SCD 13 months for ASD, food intolerance, and immune issues

Husband transitioning to SCD for lyme and gluten intolerance

Hotmail: Free, trusted and rich email service. Get it now.

[Guest guest]

Hi Eileen,

I did get D from abx - the best my stools ever get on SCD is soft firm, but the

D was watery - no avoiding it. However, I tested positive for co-infections

which can cause major abdominal discomfort and D - bartonella, babesia and also

HHV6 and Epstein Barr - I am still taking 3 kinds of oral abx, but since

stopping the IV, my stools are more firm, back to being better. I'm also taking

VSL which is not leagl, in addition to yogurt and acidophilus, because I need

the support - just a tempoary mesaure.I did also stool test + for C. diff, but

white cell counts were normal, so Flagyl was only 5 days instead of 10 - and

that seemed to work.

Treatment of Lyme is so complicated - I cannot even comment on + for 1/3 bands!

Best of course to be preventative, as I learned. Best book to read: " Cure

Unknown " . I can also email you some further information about long term lyme

treatment if you are intersted. LMK!

Glad to be back!

Kim in NJ

>

> so glad to hear you're feeling better (a bit) and that you all have a good

outlook! hang in is right - such a healing diet!

> did you get D even from IV antibiotics -i just read you could - I had 1 of the

3 lyme bands show positive - and not sure what that means for the future yet??

thanks

> Eileen 2 years scd

> son 3 1/2 months scd

>

>

> >

> > Happy new year . . .

> > I have not posted since Septemper or October, when I began my treatments for

Lyme. I have missed the interaction and support that this group provides. I just

wanted to touch base and let you know my status.

> >

> > I recently completed 74 days of daily IV rocephin for chronic Lyme, and also

2 rounds of IVIG. I am improving, but am weak and pretty tired. I have been

eating pretty much variations on intro, and when I stray off of it, I am very

uncomfortable. Although oddly, coconut flour is my friend.

> >

> > My 4.5 yr old boys are doing well on SCD too, and my husband is

transitioning into SCD because he also has Lyme and gluten issues. It has been a

crazy year for us. We were thrilled at 12:01 AM on Jan 1! Things can only get

better . . .

> >

> > Anyway, I am looking forward to having some energy back - enough to keep up

with this list (I will give it a try anyway!) and keep life on track for all of

us. I do think it will eventually be easier with all of us on the same eating

plan.

> >

> > Hoping that everyone is doing well . . . If you are new, hang in there! SCD

works - it really, really does.

> >

> > Kim in NJ

> > old email address = altataos@

> > SCD 13 months for bowel resection/SBS

> > 2 boys 4.5 yrs old SCD 13 months for ASD, food intolerance, and immune

issues

> > Husband transitioning to SCD for lyme and gluten intolerance

> >

>