Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomyExpress yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I tried to answer you yesteday but could not access the site. I had the speaking issues the first year that I became ill. It still happens from time to time when I am extremely tired and I will start stuttering first. I have had two episodes where I could not speak at all. I could read, write and understand but nothing would come out. My thoughts were there but I could not voice them. Since I am not working, I will take a quiet time out, go into a quiet dark room, watch a movie, listen to relaxing music and rest. This usually goes away for me in about 24 hours. Attempting to multi-task is what does it for me. I can do and think about 1 thing at a time. Period. As far as the numbness I get this too. I also having burning feelings about my teeth on the left side quite a bit. My numbness will now extend sometimes across the forehead and down and around on the right cheek and chin. You will want to report these symptoms to your doctor; mine are documented and we know from MRI that it is not anything like a stroke (all of these can be symptoms of other diseases). Now I have a question for you or others: if you have double or blurred vision, does it seem to worsen with fatigue or does it stay the same. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I tried to answer you yesteday but could not access the site. I had the speaking issues the first year that I became ill. It still happens from time to time when I am extremely tired and I will start stuttering first. I have had two episodes where I could not speak at all. I could read, write and understand but nothing would come out. My thoughts were there but I could not voice them. Since I am not working, I will take a quiet time out, go into a quiet dark room, watch a movie, listen to relaxing music and rest. This usually goes away for me in about 24 hours. Attempting to multi-task is what does it for me. I can do and think about 1 thing at a time. Period. As far as the numbness I get this too. I also having burning feelings about my teeth on the left side quite a bit. My numbness will now extend sometimes across the forehead and down and around on the right cheek and chin. You will want to report these symptoms to your doctor; mine are documented and we know from MRI that it is not anything like a stroke (all of these can be symptoms of other diseases). Now I have a question for you or others: if you have double or blurred vision, does it seem to worsen with fatigue or does it stay the same. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I tried to answer you yesteday but could not access the site. I had the speaking issues the first year that I became ill. It still happens from time to time when I am extremely tired and I will start stuttering first. I have had two episodes where I could not speak at all. I could read, write and understand but nothing would come out. My thoughts were there but I could not voice them. Since I am not working, I will take a quiet time out, go into a quiet dark room, watch a movie, listen to relaxing music and rest. This usually goes away for me in about 24 hours. Attempting to multi-task is what does it for me. I can do and think about 1 thing at a time. Period. As far as the numbness I get this too. I also having burning feelings about my teeth on the left side quite a bit. My numbness will now extend sometimes across the forehead and down and around on the right cheek and chin. You will want to report these symptoms to your doctor; mine are documented and we know from MRI that it is not anything like a stroke (all of these can be symptoms of other diseases). Now I have a question for you or others: if you have double or blurred vision, does it seem to worsen with fatigue or does it stay the same. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Pomy, are you living in Israel now or in the States? It sounds to me like you need a doctor who is more informed on the latest NS treatment options. Ramblin' Rose Moderator i'm making a difference. Make every IM count for the cause of your choice. Join Now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Hang in there Pomy, I have similiar days when the words just won't come out no matter what I do. This gets worse when I get tired. As to the numbness in the face...and please know this is not meant to scare you...my last flare started that way. I lost all the feeling on the left side of my face and 1/2 way up the right side. Now that I probably scared the heck out of you...the numbness went away within a few weeks with no permanent effects. It felt no worse than having a face full of novecaine. Mine was brought on by stress when my Grandma became very ill and eventually passed. My neuro said that facial palsy, typically of the 7th nerve, is very common in folks with neurosarc. Peace Tony > > > > > Hi, > > > > Due to my ns, I have days where I don't speak well. I know what I want to > > say or explain, but it just doesn't come out as I want it to. Yesterday was > > one of those days, nothing came out that people could understand well. Does > > anyone have these days? > > > > Today, I had a real fright. In the morning, my face sarted to feel numb, > > like ants craweing over it. felted it even my nose and my front teeth. It > > was scary, I thought I was having a ns attack and the ambulance was coming > > to take me away. Does anyone ever have this feeling and what do you take for > > it? > > > > I don't want to go to the dr. whodx'ed me or my gp because the first one > > only says that that'ds the way it is and nothing can be done, the gp says I > > have to go to him right awaay so he can understand what's happening. The > > real problem is that i am alone in this fight and getting no support. It's > > all so frustrating. > > > > Voiced pomy > > > > ------------------------------ > > Express yourself instantly with MSN Messenger! MSN Messengerhttp://g.msn.com/8HMAEN/2728??PS=47575>Download today it's FREE! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? Pomy, Occasionally I will have this happen. sometimes it's the Bells Palsy-- but it could also be a stroke or transient ischemic attack(the warning signs of a stroke.) When this happens, it is important to get into the ER. If it is truly a stroke, they can give you TPA-- a medication that when administered within the first couple of hours (preferably in the first hour) it has shown to break up the blood clot and minimize damage. The garbled speech, face sags, weakness in one arm - headache, call all be signs of a stroke. Please don't wait until you are unable to speak, or end up paralyzed-- this is an easy fix- if you address it quickly. That is why the GP wants to see you when it's happening. Take care, Tracie************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 Sorry Moish, I just saw this today. I do the same thing, the antsy crawly thing has been a new thing. In fact I am looking at a note on my computer screen dated 6/1/07 which says face tingling & numb feeling from 1:30 to..... I put it there so I would remember to talk to my neuro - my legs keep going numb too. Oh well......ConnieMoish Pomeranc wrote: Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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