Anyone experienced this???

September 7, 2004

Hello everyone. My name is Vicki and I posted a while back right

after our neurologist told us that my son Caden might have mito. I

received lots of supportive responses. Since then, I have mostly

been lurking and trying to learn about this disease. We are not

sure if he does in fact have mito, but I was wondering if someone

might help me with what has been going on with Caden this weekend....

All was fine Saturday, then Sunday morning he was burning up. His

fever actually only got up to 101, but it was our first fever ever.

We gave him Tylenol and it gradually came down all day. Only thing

was, he couldn't keep any formula down. He would eat fine then

about 30 min. to an hour later, it would all come back up,

projectile. Now, Caden has had severe GERD since he came, so we

really didn't think much about it, but his reflux had been so much

better lately. He hasn't been throwing up like this since he was

first diagnosed with reflux. But it was only his formula.

Pedialyte, juice, and cereal stayed down fine. Now, yesterday he

had no fever all day but was very groggy and lethargic in the AM.

He still couldn't keep his formula down, but was still doing fine

with pedilyte and juice. We called the pedi on call and he seemed

to think that we were doing all the right things as long as he was

keeping down some liquids and didn't have diahrrea. So we went

about our day and just fed him cereal and juices. So I stayed home

with him today and gave him 4 oz. of formula this morning hopeing

that he hust had a " bug " and it was over. Well, nope! It stayed

down about 30 min. then came back up all over both of us. We have

an appt. with our pedi this afternoon, but I was wondering if anyone

had experienced this with mito. I know some people have talked

about cyclic vomiting, but I don't know what that is. I have

horrible visions of a feeding tube in our future, but maybe I am

overreacting. Please help if you can. Thanks so much!

Oh yes, we use the ready to feed formula, so I thought maybe we got

a bad bottle, so I threw out that one and tried a new one this

morning, but it didn't help. Pedialyte stayed down again this

morning. ????????????

Vicki~ proud mom to Caden, 11 mo. possible mito

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