Re: Cyclic vomiting issues again/Stacey

[Guest guest]

> at those times. We're going to Boston at the end of the month to

see

> a GI doc about dysmotility issues.

Stacey, are you going to see Dr. ? saw him in

August. He's great, he really " gets it. " Our GI had us feeling bad,

like we weren't trying hard enough to 'make' tolerate her j

tube feeds, and Dr. R. took a look at and read her records

and was pleased at how well she was doing despite everything she had

been to. As pseudo obstruction kids go, is doing pretty

decently. She can tolerate anywhere from 25% to 50% of her nutrition

in her gut, and gets the balance in TPN. He has many kids who can

tolerate 12cc of neocate a DAY, never mind 12cc an hour.

Does your son see Dr. Korson?

Heidi, 's Mom

PS. we use clorox oxi magic. It cleans up all sorts of ick off the

carpet. But when we get a bedroom built for , we're getting

linoleum.

>