Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 Pomy, One of the things that makes our vision blurry-- is that our eyes get very dry. If we've been up all day, and find that as soon as we sit down at night, our eyes seem to get worse, try using some artificial tears. The cornea of the eye is 70% fluid-- if that fluid is not there- like when you've been reading or on the computer or out in the wind-- (for those with NO eye issues) eyes will blur. For us, since the lacrimal glands under the eyelids, become inflammed from the sarc-- then you've added a second dimension to the problem. We need more help producing tears to keep the cornea mirror like- so that what we see is clear. Artificial tears can be used as often as feels good. You can't overdo them! Take care, Tracie Ns Co-owner/moderator************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 Has anyone had optic neuritis? This is how my attack started again right before christmas where I lost my ability to see close in my left eye.See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 Quite a few of us have ocular sarcoidosis. I have the chronic iritis, and severe dry eyes. Last time I was in, the MD saw plaques on my optic nerve so we're watching that. It is so important to make sure to get in every 6 months for full exams-- from an Ophthalmologist--MD; instead of an Optometrist--OD. OD are great for refractive exams, when you need new glasses or contacts. They can identify early signs of glaucoma- but with our eyes being a favorite of sarcoidosis-- we really need the MD. There are alot of posts in our ARCHIVES on eye health-- if you scroll down to the bottom of this and each email from the group, it should give you the link to the ARCHIVES and LINKS. Any sign of light sensitivity, (photophobia) should be checked out as an URGENT appt-- this is a sign of iritis and/or uveitis. Since the uveal tract is what acts as the "pumping station" to keep the intraocular pressure down in our eyes-- it is imperative that we get ourself checked. Uveitis is the spiderweb ligaments that open and close the iris-- and if either the iris or uveal becomes inflammed, this can lead to an ACUTE glaucoma attack. Glaucoma generally comes on slowly, but for us- it can be an overnight problem. With glaucoma, you lose the peripheral vision--so that you feel like you're looking thru a straw. In acute attacks, the damage can be dones so quickly, that you lose your vision permanently. so far, they can't undo what damage is done. With optic neuritis, the optic nerve is inflammed, and the signals going into the optic nerve are interrupted, and you may have blind spots in your vision. Nausea, vomitting, light sensitivity, pain, redness, dry eyes all can be signs of a problem. Artificial tears are excellant, and my personal experience with Restasis along with Synvisc artificial tears has helped get the inflammation down. Take care, Tracie NS Co-owner/moderator ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Thanks Pomy From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Blurry dry eyesDate: Mon, 2 Apr 2007 18:42:50 EDT Pomy,One of the things that makes our vision blurry-- is that our eyes get very dry. If we've been up all day, and find that as soon as we sit down at night, our eyes seem to get worse, try using some artificial tears. The cornea of the eye is 70% fluid-- if that fluid is not there- like when you've been reading or on the computer or out in the wind-- (for those with NO eye issues) eyes will blur. For us, since the lacrimal glands under the eyelids, become inflammed from the sarc-- then you've added a second dimension to the problem. We need more help producing tears to keep the cornea mirror like- so that what we see is clear. Artificial tears can be used as often as feels good. You can't overdo them! Take care,TracieNs Co-owner/moderator**************************************See what's free at http://www.aol.com. Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 See that bothers me. I was just at my opthalmologist today and asked him about the dry eyes and sarcoidosis. I could not get into the doctor of choice as I lost my eyesight during christmas time and he was on vacation. So I got in as an emergency with this eye doctor and he started me on the 3 IV treatments of solumedrol to get my eyesight back. Today he told me that there is no correlation between dry eyes and sarcoidosis. He did give me some eye drops to try for moisture. I had been on eyedrops for allergies for the last 12 years and I know that they were drying my eyes out. They took the red away for awhile but then they would be very red by noon and afternoon. I have stopped all drops since my loss of eyesight and they were able to get it back but I do have damage to this eye in the inner perimeter. KatSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Kat, ditch this guy & see another opthamologist. Meanwhile, poke him in the eye with this little piece of info: DCI Home: Lung Diseases: Sarcoidosis: What Is ... What Is ... Causes Who Is At Risk Signs & Symptoms Diagnosis Treatments Living With Summary Links What Is Sarcoidosis? Sarcoidosis (sar"koi-do'sis) involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas (gran"u-lo'mahs) because they look like grains of sugar or sand. They are very small and can be seen only with a microscope. These tiny granulomas can grow and clump together, making many large and small groups of lumps. If many granulomas form in an organ, they can affect how the organ works. This can cause symptoms of sarcoidosis. Sarcoidosis can occur in almost any part of your body, although it usually affects some organs more than others. It usually starts in one of two places: Lungs Lymph nodes, especially the lymph nodes in your chest cavity. Sarcoidosis also often affects your: Skin Eyes Liver. Less often, sarcoidosis affects your: Spleen Brain Nerves Heart Tear glands Salivary glands Bones and joints. Rarely, sarcoidosis affects other organs, including your: Thyroid gland Breasts Kidneys Reproductive organs. Sarcoidosis almost always occurs in more than one organ at a time. More bozos & birdbrains. Ramblin' Rose Moderator From: katskreations1@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Blurry dry eyesDate: Wed, 4 Apr 2007 21:51:55 EDT See that bothers me. I was just at my opthalmologist today and asked him about the dry eyes and sarcoidosis. I could not get into the doctor of choice as I lost my eyesight during christmas time and he was on vacation. So I got in as an emergency with this eye doctor and he started me on the 3 IV treatments of solumedrol to get my eyesight back. Today he told me that there is no correlation between dry eyes and sarcoidosis. He did give me some eye drops to try for moisture. I had been on eyedrops for allergies for the last 12 years and I know that they were drying my eyes out. They took the red away for awhile but then they would be very red by noon and afternoon. I have stopped all drops since my loss of eyesight and they were able to get it back but I do have damage to this eye in the inner perimeter. Kat See what's free at AOL.com. MSN is giving away a trip to Vegas to see Elton . Enter to win today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 Today he told me that there is no correlation between dry eyes and sarcoidosis. HE'S AN IDIOT! Sarc effects the inside of the conjunctiva-- where the lining has all kinds of tear glands. It can also effect the iris, the optic nerves and the uveal tract. Because we end up with systemic inflammation--the inflammation that hits the eyes does all kinds of stuff. Find another doc-- this one will help you lose your vision. Hugs, Tracie************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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