HELP AGAIN

[Guest guest]

Does anybody know anything about CellCept. I just started it this

week. Anybody on it and is it helping. I was wondering if anybody has

had any luck with social security disability? I work as a medical

transcriptionist and my doctor says I probably cannot return to my

current job as a transcriptionist, but I will be " employable " . What

does that mean? Last year I was off for 6 months and now this year I

have been off for three months. I can do three months short-term and

then three months long-term and then I lose my job if I am not back to

work. I have sarcoid in my lungs, spleen, brain and just last week I

had a MRI of my crevical spine and they said it was full of lesions. I

am also very frustrated with my doctor. He says be patient, we will

get it. I believe him, but what to do about work? Thanks so much for

listening. Lori

[Guest guest]

If you have Sarcoid in all these places you will not be able to work again. If you cannot use your hands for typing, you probably cannot use your feet for walking. If it is your cognitive situation that prevents you from working as a Transcriptionist, then it will prevent you from doing other work also. If you have been off work for 9 months out of the past year and a half, you are not going to be working full time anywhere. You won't be able to make a living at working. Find a doctor who will tell them this. You are permanently disabled. I remember when I was trying to decide if and when and how I could work. I couldn't and I don't think you can either. Barbloripavey wrote: Does anybody know anything about CellCept. I just started it this week. Anybody on it and is it helping. I was wondering if anybody has had any luck with social security disability? I work as a medical transcriptionist and my doctor says I probably cannot return to my current job as a transcriptionist, but I will be "employable". What does that mean? Last year I was off for 6 months and now this year I have been off for three months. I can do three months short-term and then three months long-term and then I lose my job if I am not back to work. I have sarcoid in my lungs, spleen, brain and just last week I had a MRI of my crevical spine and they said it was full of lesions. I am also very frustrated with my

doctor. He says be patient, we will get it. I believe him, but what to do about work? Thanks so much for listening. Lori

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[Guest guest]

Thanks Barb, that helps so much. Lori

> Does anybody know anything about CellCept. I just started

it this

> week. Anybody on it and is it helping. I was wondering if anybody

has

> had any luck with social security disability? I work as a medical

> transcriptionist and my doctor says I probably cannot return to my

> current job as a transcriptionist, but I will be " employable " . What

> does that mean? Last year I was off for 6 months and now this year

I

> have been off for three months. I can do three months short-term

and

> then three months long-term and then I lose my job if I am not back

to

> work. I have sarcoid in my lungs, spleen, brain and just last week

I

> had a MRI of my crevical spine and they said it was full of

lesions. I

> am also very frustrated with my doctor. He says be patient, we will

> get it. I believe him, but what to do about work? Thanks so much

for

> listening. Lori

>

>

>

>

>

>

> ---------------------------------

> No need to miss a message. Get email on-the-go

> with Yahoo! Mail for Mobile. Get started.

>

[Guest guest]

I just ended ~3 weeks on cellcept. It helped reduce my sarc symptoms

including a horrendous migraine + sinus type headache. Unfortunately,

for me the side effects included bad tremours so I had to stop. Much

of my work involves written reports...bad enough my vision is not very

good...it's almost impossible to touch type with the shakes.

[Guest guest]

I have been on the Cellcept for about two weeks now, so far so good I think.

Thanks Tony

>

>Reply-To: Neurosarcoidosis

>To: Neurosarcoidosis

>Subject: Re: HELP AGAIN

>Date: Mon, 09 Apr 2007 16:06:31 -0000

>

>I just ended ~3 weeks on cellcept. It helped reduce my sarc symptoms

>including a horrendous migraine + sinus type headache. Unfortunately,

>for me the side effects included bad tremours so I had to stop. Much

>of my work involves written reports...bad enough my vision is not very

>good...it's almost impossible to touch type with the shakes.

>

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[Guest guest]

Sorry to hear you had problems with the cellcept. Are the tremors a side effect that might decreae with time. Hopefully you will be given somethhing that will help without the side effects. I once worked in a unit that approved drugs that were off label usage and brand necessary drugs. Our medical advisor often said that MS and NS had something different in their body makeup that gave them problems different type of reactions to drugs that people without MS or NS didn't have. Judy in PA