Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Since you spoke to Dr. Whiteman about this, I would be curious if he mentioned fresh versus frozen to you, as we use him for our families issues. Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting... Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), & Marquis (2) (some with Mito symptoms) Re: Negative frozen biopsy > , > > Will your insurance pay for either Cleveland or Atlanta? If so, I would > go > there. I spoke to Dr. Whiteman (Mayo) at the Pittsburgh conference and > gave > him a list of my son's symptoms. They include: > > uncontrolled migraine > tremor (intermittent) > dysautonomia (temp control probs, syncope, near- syncope, orthostatic > hypotension, ,etc) > abdominal pain > ?GERD (no Nissen) > periphrial neuropathy > joint pain > asthma > cognitive changes (short term memory loss) > periodic vision changes > absence spells (without EEG changes) > bleeding problems > mood problems > fatigue > > Anyway, within five minutes Dr. Whiteman said, " You've convinced me. I'd > take him to Cohen and get a fresh biopsy. " He said that that is what he > would > do first. It took us a year to get into Cleveland. > > > Your problems with frozen biopsy and problems I've heard that other have > made me convinced that we wanted no part in frozen biopsies. I have > refused > to consider one even though our docs have been pretty insistent. > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 > Since you spoke to Dr. Whiteman about this, I would be curious if he > mentioned fresh versus frozen to you, as we use him for our families issues. He told me that if we saw him he would send us to get a fresh biopsy. I also heard a talk with Bill Rhead and he also said that fresh is best. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.