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,

I saw your post yesterday but didn't get to write; I am sorry you are

having such a hard time. Girl get out those paints and paint your heart

out. It will help your depression.

I have a sister like yours but she is bi-polar and drug addicted. I

finally had to just shut her out. I know how bad it hurts my Mom, but

besides just wearing me out, she was stealing pills,

prescriptions....anything that would help her get high. When she

couldn't get meds she would eat over the counter benadryl just to try to

get high.

, I know you are a Christian and you need to pray about your sister.

What I did was not easy and it really hurt my Mom, but my other sister

and brother have done the same thing. You just don't need the extra

stress. God is always with us and when she gets on your nerves, start

praying like there is no tomorrow.

I used to pray that He would change my health, my situation; now I just

pray that I get to be here to see a new day and to enjoy my life no

matter how long or short it is.

So , any time you need to vent just go for it. Just know that you

are being thought of and prayed for.

Terri G.

>

> ...I am just feeling so crappy today. ...really depressed and just

need a cry and a hug today. If you're up to it today send some prayers,

good thoughts, whatever you can. Yesterday I got dressed (took about

three hours...) and took a twenty minute drive to see my mom and the

subsequent houseful of people. I felt so tired/fatigued that I basically

sat for an hour...felt overwhelmed by the constant loud talking...that I

gave my mom a hug and told her I had to leave cuz I wasn't feeling well.

My sister who is on dexatrin(speed) (NOT dexatrim ...the diet pill)for

her fibro just talked nonstop for the whole time I was there. I

wondered...how does she breathe? Someone would ask her husband a

question and he would say one sentence stop to breathe and in she would

go to finish what he would have said. I find this behavior so

self-centered and rude but I don't have the strength to confront her

about it anymore. This turn-back to colder weather has also turned my

pain back

> up a large notch or two. And my depression has also returned. I am so

tired of this cold. On days like this it just all seems just too much

too handle and I want to stay in bed all day. But I will force myself to

start a new painting and reach out to other people so I can Try to take

my mind off my own troubles. I am going to be impolite... so those of

you bothered by cussing please don't read on.... SHIT SHIT SHIT damn the

headaches damn the irritating behaviour of inconsiderate people damn

this disease damn the pain damn the fatigue But hugs to all of you..now

I'll try to work through my pity party of today...thanks for listening

S.

>

> ---------------------------------

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Terri, I am glad to read your post back to me. I have wanted a closer relationship with my sister but even when I let my guard down she slams me down. She even told me she thinks she could have sarc, too, and I wonder if it isn't because it seems a worse illness than fibro. When I told her my doc said I had fibro, (though I think the pain is sarc...) she didn't like it much. She even yelled at my mom about the 'attention' I was getting cuz she has had fibro longer(...in her mind). Is this a 'contest'?!!! What the hell, If she wants to be sicker...hey, go for it...lol. Thank you for reminding me to pray for her. It is one of those 'agonies' for me...the loss of a sister(relationship-wise..), the loss of ever really getting close to her. I am much closer to other women in my life so it hurts alot. Every time we are at the same get-together she has

something negative to say about me or someone in my family. I'm quite sick of it. I need some kindof joy daily or I start slipping down into depression. I am sorry about your relationship with your sister. My youngest son, while he was in high school, was stealing from us regularly for ...whatever. I flushed little bags of pot down the commode a couple of times. Once I actually saved a bag for an 'pain emergency' and hid it and he even found that! LOL?!!! I don't know if I would have ever used it but somehow it helped my mind knowing I had it for some future use...lol. I know that wasn't the best example for him but I didn't think he'd find it. Lordy, Lordy...what pain will make you do. He's married now and his wife doesn't like pot...though they are proud enough of consuming large quantities of alcohol. They test at his job for drugs but that doesn't include alcohol. So that keeps him in

line cuz he wouldn't dare lose his job. He promised her the world to marry him. Whatever works right?....lol. I'm abit better today though there is snow in the forecast again. hugs S. mosaicgirl1 wrote: ,I saw your post yesterday but didn't get to write; I am sorry you arehaving such a hard time. Girl get out those paints and paint your heartout. It will help your depression.I have a sister like yours but she is

bi-polar and drug addicted. Ifinally had to just shut her out. I know how bad it hurts my Mom, butbesides just wearing me out, she was stealing pills,prescriptions....anything that would help her get high. When shecouldn't get meds she would eat over the counter benadryl just to try toget high., I know you are a Christian and you need to pray about your sister.What I did was not easy and it really hurt my Mom, but my other sisterand brother have done the same thing. You just don't need the extrastress. God is always with us and when she gets on your nerves, startpraying like there is no tomorrow.I used to pray that He would change my health, my situation; now I justpray that I get to be here to see a new day and to enjoy my life nomatter how long or short it is.So , any time you need to vent just go for it. Just know that youare being thought of and prayed for.Terri G.>> ...I am just feeling so crappy today. ...really depressed and justneed a cry and a hug today. If you're up to it today send some prayers,good thoughts, whatever you can. Yesterday I got dressed (took aboutthree hours...) and took a twenty minute drive to see my mom and thesubsequent houseful of people. I felt so tired/fatigued that I basicallysat for an hour...felt overwhelmed by the constant loud talking...that Igave my mom a hug and told her I had to leave cuz I wasn't feeling well.My sister who is on dexatrin(speed) (NOT dexatrim ...the diet pill)forher fibro just talked nonstop for the whole time I was there. Iwondered...how does she breathe? Someone would ask her husband aquestion and he would say one sentence stop to breathe and in she wouldgo to finish what he

would have said. I find this behavior soself-centered and rude but I don't have the strength to confront herabout it anymore. This turn-back to colder weather has also turned mypain back> up a large notch or two. And my depression has also returned. I am sotired of this cold. On days like this it just all seems just too muchtoo handle and I want to stay in bed all day. But I will force myself tostart a new painting and reach out to other people so I can Try to takemy mind off my own troubles. I am going to be impolite... so those ofyou bothered by cussing please don't read on.... SHIT SHIT SHIT damn theheadaches damn the irritating behaviour of inconsiderate people damnthis disease damn the pain damn the fatigue But hugs to all of you..nowI'll try to work through my pity party of today...thanks for listening S.>> ---------------------------------> Expecting? Get great news right

away with email Auto-Check.> Try the Yahoo! Mail Beta.>

Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Yahoo! Travel to find your fit.

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,

It sounds like our sisters are sisters. Everything has always had to be

about her; she was always sicker, unluckier, whatever - she needed to be

the center of attention.

Like I said, I jsut pray for her. I am long past all the hurt and anger

and just stay close to those people who bring something positive to my

life.

As far as the fibro goes, the fibro guru here feels when other diseases

are present such as NS, a lot of time you have fibro on top of it. Your

pain filter doesn't work correctly and it makes your pain a lot worse.

As far as your son goes and your emergency baggie, man haven't we all

probably thought about that one - pretty good!

Well, please write anytime you are fed up, depressed, lonely, happy or

whatever. We are here for you.

Terri G.

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Terri & , I was reading about your sisters & I have a similar situation with my cousin. She was not only a cousin but also a great friend. But as I got physically sick , she started getting more mentally ill. Her mother is szchophrenic(sp?) and I think that's where her illness is coming from. She is not a szcho., but she has quite a multitude of mental problems now. But I have noticed since the illness' started, I have had to kindly "push" her out of my life. She would get me so wired and upset, it would make me feel more ill. I finally found myself avoiding her calls and hiding out from her because subconciously, I couldn't handle her visits anymore. I know she is ill just like me and she does need the support which makes me feel so guilty for pushing her away. I also find myself thinking about her and worrying about her. But if praying

for her is the only way I can help her without making myself sick, that's all that I can do, I guess. Thanks for listening. Debbie Co-Moderatormosaicgirl1 wrote: ,I saw your post yesterday but didn't get to write; I am sorry you arehaving such a hard time. Girl get out those paints and paint your heartout. It will help your depression.I have a sister like yours but she is bi-polar and drug addicted. Ifinally had to just shut her out. I know how bad it hurts my Mom, butbesides just wearing me out, she was stealing pills,prescriptions....anything that would help her get high. When shecouldn't get meds she would eat over the counter benadryl just to try toget high., I know you are a

Christian and you need to pray about your sister.What I did was not easy and it really hurt my Mom, but my other sisterand brother have done the same thing. You just don't need the extrastress. God is always with us and when she gets on your nerves, startpraying like there is no tomorrow.I used to pray that He would change my health, my situation; now I justpray that I get to be here to see a new day and to enjoy my life nomatter how long or short it is.So , any time you need to vent just go for it. Just know that youare being thought of and prayed for.Terri G.>> ...I am just feeling so crappy today. ...really depressed and justneed a cry and a hug today. If you're up to it today send some prayers,good thoughts, whatever you can. Yesterday I got dressed (took aboutthree hours...) and took a twenty minute drive

to see my mom and thesubsequent houseful of people. I felt so tired/fatigued that I basicallysat for an hour...felt overwhelmed by the constant loud talking...that Igave my mom a hug and told her I had to leave cuz I wasn't feeling well.My sister who is on dexatrin(speed) (NOT dexatrim ...the diet pill)forher fibro just talked nonstop for the whole time I was there. Iwondered...how does she breathe? Someone would ask her husband aquestion and he would say one sentence stop to breathe and in she wouldgo to finish what he would have said. I find this behavior soself-centered and rude but I don't have the strength to confront herabout it anymore. This turn-back to colder weather has also turned mypain back> up a large notch or two. And my depression has also returned. I am sotired of this cold. On days like this it just all seems just too muchtoo handle and I want to stay in bed all day. But I will force myself

tostart a new painting and reach out to other people so I can Try to takemy mind off my own troubles. I am going to be impolite... so those ofyou bothered by cussing please don't read on.... SHIT SHIT SHIT damn theheadaches damn the irritating behaviour of inconsiderate people damnthis disease damn the pain damn the fatigue But hugs to all of you..nowI'll try to work through my pity party of today...thanks for listening S.>> ---------------------------------> Expecting? Get great news right away with email Auto-Check.> Try the Yahoo! Mail Beta.>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php

Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Debbie, I can certainly see where you're coming from. I have certain people that had been in my life that are just to hard for me to handle at this time. With my health problems and my husband's Asperger's syndrome...i have too much on my plate already. Let's add in my own boys and one daughter-in-law and elderly parents on both sides and I am already exhausted. So far this year My father-in-law had a 5 way by pass and a week ago my mother-in-law had to go to the hospital with chest pains. She's losing blood and they don't know where from. Who has time for extra-difficult relationships? I pray that they find the friends they need at this time and unless the Lord speaks directly in my ear I won't go out of my way for them. It's prioritizing need. Some people just drain too much out of you. If every time I meet with someone I feel awful afterwards I

just can't continue to abuse myself that way. Keep praying for them and it will take care of itself somehow. I really do believe that. hugs S.Debbie wrote: Terri & , I was reading about your sisters & I have a similar situation with my cousin. She was not only a cousin but also a great friend. But as I got physically sick , she started getting more mentally

ill. Her mother is szchophrenic(sp?) and I think that's where her illness is coming from. She is not a szcho., but she has quite a multitude of mental problems now. But I have noticed since the illness' started, I have had to kindly "push" her out of my life. She would get me so wired and upset, it would make me feel more ill. I finally found myself avoiding her calls and hiding out from her because subconciously, I couldn't handle her visits anymore. I know she is ill just like me and she does need the support which makes me feel so guilty for pushing her away. I also find myself thinking about her and worrying about her. But if praying for her is the only way I can help her without making myself sick, that's all that I can do, I guess. Thanks for listening. Debbie Co-Moderatormosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com>

wrote: ,I saw your post yesterday but didn't get to write; I am sorry you arehaving such a hard time. Girl get out those paints and paint your heartout. It will help your depression.I have a sister like yours but she is bi-polar and drug addicted. Ifinally had to just shut her out. I know how bad it hurts my Mom, butbesides just wearing me out, she was stealing pills,prescriptions....anything that would help her get high. When shecouldn't get meds she would eat over the counter benadryl just to try toget high., I know you are a Christian and you need to pray about your sister.What I did was not easy and it really hurt my Mom, but my other sisterand brother have done the same thing. You just don't need the extrastress. God is always with us and when she gets on your nerves, startpraying like there is no

tomorrow.I used to pray that He would change my health, my situation; now I justpray that I get to be here to see a new day and to enjoy my life nomatter how long or short it is.So , any time you need to vent just go for it. Just know that youare being thought of and prayed for.Terri G.>> ...I am just feeling so crappy today. ...really depressed and justneed a cry and a hug today. If you're up to it today send some prayers,good thoughts, whatever you can. Yesterday I got dressed (took aboutthree hours...) and took a twenty minute drive to see my mom and thesubsequent houseful of people. I felt so tired/fatigued that I basicallysat for an hour...felt overwhelmed by the constant loud talking...that Igave my mom a hug and told her I had to leave cuz I wasn't feeling well.My sister who is on dexatrin(speed) (NOT

dexatrim ...the diet pill)forher fibro just talked nonstop for the whole time I was there. Iwondered...how does she breathe? Someone would ask her husband aquestion and he would say one sentence stop to breathe and in she wouldgo to finish what he would have said. I find this behavior soself-centered and rude but I don't have the strength to confront herabout it anymore. This turn-back to colder weather has also turned mypain back> up a large notch or two. And my depression has also returned. I am sotired of this cold. On days like this it just all seems just too muchtoo handle and I want to stay in bed all day. But I will force myself tostart a new painting and reach out to other people so I can Try to takemy mind off my own troubles. I am going to be impolite... so those ofyou bothered by cussing please don't read on.... SHIT SHIT SHIT damn theheadaches damn the irritating behaviour of inconsiderate people

damnthis disease damn the pain damn the fatigue But hugs to all of you..nowI'll try to work through my pity party of today...thanks for listening S.>> ---------------------------------> Expecting? Get great news right away with email Auto-Check.> Try the Yahoo! Mail Beta.>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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