Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 Hi I am a new member here and would like to hear from any other members in the UK. I would especially like to know of any consultants who specialise in Sarcoidosis with neuro involvement. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Hi Pat, Welcome to the gang-- and I surely wish you didn't have this disease-- but at least we can help each other with the journey. I will refer you to another site that has an MD listing available.--FSR www.stopsarcoidosis.org You go find a doctor, and you may be able to get some names. I read your history, and like many of us, the pulmonary and intermittent numbness are all part of the program. It is difficult when are MD's want us to believe that it's not all inter-related. With the TIA's that you've had-- it is so very important that whenever those signs of arm, facial drags, etc happen that you get into the ER. If a flowblown stroke hits, they can administer TPa in the first couple of hours and in many cases, it reverses the damage done by a stroke. (TPa is a clot buster medication) Well, you have found over 400 people with sarcoidosis-- most all of us with neurological symptoms, on top of all the systemic effects. We laugh, cry, swear-- and even pray with each other. We have open Faith chats- as well as Open chat night for those that need support in other ways. The link is at the bottom of the emails. so just scroll down- and you'll see them. take care, Tracie NS Co-owner/moderator************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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