New Crohns 12yd looking for success stories and help

[Guest guest]

Hi. I have a 12 y/o daughter diagnosed with Crohn's last spring. Her scope

showed several ulcers (H Pylori ruled out) and inflammation throughout the GI

tract, but she did not have C or D. Her main symptoms

were fatigue, weight loss, nausea nad belly pain with occasional blood on the

t.p. We have gone the traditional med. route (currently on 6MP and we did a

short course of prednisone) and though we have seen improvement in her

ssumptoms, she is still inflamed (sed rate is 45) and not growing in height. We

are seriously considering SCD but are wondering if anybody with similar symptoms

has found success?

I think it would be hard for us to tell is she is tolerating foods in the

different stages as she can pretty much eat anything right now without having

any obvious symptoms. So, I think we would be tempted to skip or drastically

shorten stages because of this. Can we do that? Also, has anybody dumped their

medicine before going on the diet? I feel like the 6mp is probably masking her

symptoms. Thank you in advance.

Josie -Mom of 12 yd Crohns 6mp

Wisconsin

[Guest guest]

On Fri, 15 Jan 2010 19:23:56 -0500, serenitynowupnorth wrote:> Hi. I have a 12 y/o daughter diagnosed with Crohn's last spring. Her > scope showed several ulcers (H Pylori ruled out) and inflammation > throughout the GI tract, but she did not have C or D. Her main symptoms> were fatigue, weight loss, nausea nad belly pain with occasional blood > on the t.p. We have gone the traditional med. route (currently on 6MP > and we did a short course of prednisone) and though we have seen > improvement in her ssumptoms, she is still inflamed (sed rate is 45) and > not growing in height. We are seriously considering SCD but are > wondering if anybody with similar symptoms has found success?>> I think it would be hard for us to tell is she is tolerating foods in > the different stages as she can pretty much eat anything right now > without having any obvious symptoms. So, I think we would be tempted to > skip or drastically shorten stages because of this. Can we do that? > Also, has anybody dumped their medicine before going on the diet? I > feel like the 6mp is probably masking her symptoms. Thank you in > advance.>> Josie -Mom of 12 yd Crohns 6mp> Wisconsin>Since 6MP is an immunosuppressant you may well be right that it is masking her symptoms. It's obviously a useful drug, like prednisone is, but also like prednisone, definitely not something a person would want to be on for a long time, and especially not a child. That's a major reason I would encourage you to get her on the diet, then to soon start to taper of the 6MP. Actually, the symptoms you describe were essentially my symptoms when I first had Crohn's 30 years ago, and I developed other symptoms along the way. Fatigue was a big-ee. But whatever symptoms people have, and however well a given drug works at first, it doesn't work indefinitely, and nor should any of them be taken indefinitely because of their serious side effects. So the diet is  the best alternative. (I wouldn't rule out LDN either, if after a while on the diet you feel she needs something more. She may not, but if so, that would be something effective that can be taken indefinitely without bad side effects.) n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

she is still inflamed (sed rate is 45) and not growing in height. We are seriously considering SCD but are wondering if anybody with similar symptoms has found success?Hi Josie,When my son started SCD in 2002 he was considering intestinal surgery for Crohn's Disease. Even on numerous medications and after a ten day hospital stay he continued to lose weight and experience pain. However, within a few days of beginning the Specific Carbohydrate Diet he improved dramatically. Today, he has no symptoms of Crohn's Disease, is off all medications and has gained weight. All his lab results are normal. These include electrolytes, cholesterol, LDL (was low), HDL (above average), iron, SED rate, and C-reactive protein (a marker of systemic inflammation). After one year on the diet, he had an Upper Gastrointestinal Endoscopy and Colonoscopy and the gastroenterologist found NO evidence of

Crohn's Disease or any other inflamation including his fistula. He still remains mostly SCD but does eat out and have non- SCD foods occasionally without getting any symptoms. He is also still med free!I would still start with the intro diet and introduce foods slowly. Keep a journal so you can track any foods that cause a reaction.Take care,Pat

[Guest guest]

Take the diet slow. The meds are masking her symptoms and that doesn't mean she

will tolerate more advanced foods. Just try one food at a time for 2-3 days. If

there are no symptoms, try something else. If you move too fast in the diet, it

will not work. I am walking proof of this. I have CD an my major symptoms were

constipation ©, gas, bloating, extremely sharp, tigtening, burning pain

through my entire digestive system, fissures (which led to a little blood on

tp), fatigue, inability to sleep. SCD fixed everything but the C. Most of the

time I'm regular now, but I still go through bouts of C. Almost overnight

everything but the C was gone. My doc had me on Entocort, Pentasa and pain meds.

Those drugs were actually making my symptoms worse and my doc said I had to get

on Humira or Remicaid or I would be facing surgery in a year. Those drugs or

diagnosis were not an option for me, so I restarted SCD and did it right.

Misty Kimble

CD - no meds

SCD - 2 Years

So, I think we would be tempted to skip or drastically shorten stages because of

this. Can we do that? Also, has anybody dumped their medicine before going on

the diet? I feel like the 6mp is probably masking her symptoms. Thank you in

advance.

> Josie -Mom of 12 yd Crohns 6mp

> Wisconsin

>