pen pal issue/support group

[Guest guest]

Just want to make sure everyone knows there was a group started for our

kids called Mitokidsandsibs and can be joined by e-mailing me your kids'

e-mails. IF they do NOT want to join this group BUT DO want to receive

letters vi e-mail or postal mail please send me your child's e-mail or home

address along with their age and name to honeybear50317@... and we will

try to let everyone interested each others info. Hopefully this will help

our kids to develop good relationships that will help them deal with Mito

and just make some good friends. Let me know if you have any questions!

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), &

Marquis (2) (some with Mito symptoms)