Needed prayers for our Kira-thanks all

[Guest guest]

Hi guys!

You guys are all so wonderful what can I say? Thanks for all the encouragement. I didn't even think to call MDA and talk to them about maybe someone sending her a get well card or Dream Street for that matter. Thanks for the great Idea. It might just help her. I did just send Dr. Boles a call for nursing help! I hope he hears my desperation. I truly am exhausted and need to know that she is OK while I am at work. My friends are all too freaked out to deal with her when she is like this, and rightly so if I am not in the house. I am not sure if the tables were turned I would be too comfortable with doing it either. I have to work to carry their insurance. Being a teacher does not lend well to deal with 36 kids when I am so tired either! I am just at my wits end, and way tired, and worried sick about her as well. My own health cannot take too much more either. Thanks again you guys and keep sending prayers and good wishes her way! She is an angel girl for having survived what she has so far. We just have to get through this thing too! And Yes, Dr. Boles feels they picked something up from the telethon, so many people there with Lord knows what! He still tells me it was a good decision though to let them participate in it. I know this in my heart, but about now I am thinking I don't want to do that again! DR Boles is all for them "living" life to their fullest! I am too but when this happens it is so hard!!!!

HUGS!

O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad Enrique

Visit our web page: WWW. caringbridge.org/ca/mitooggo

Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-)

Hi guys!

You guys are all so wonderful what can I say? Thanks for all the encouragement. I didn't even think to call MDA and talk to them about maybe someone sending her a get well card or Dream Street for that matter. Thanks for the great Idea. It might just help her. I did just send Dr. Boles a call for nursing help! I hope he hears my desperation. I truly am exhausted and need to know that she is OK while I am at work. My friends are all too freaked out to deal with her when she is like this, and rightly so if I am not in the house. I am not sure if the tables were turned I would be too comfortable with doing it either. I have to work to carry their insurance. Being a teacher does not lend well to deal with 36 kids when I am so tired either! I am just at my wits end, and way tired, and worried sick about her as well. My own health cannot take too much more either. Thanks again you guys and keep sending prayers and good wishes her way! She is an angel girl for having survived what she has so far. We just have to get through this thing too! And Yes, Dr. Boles feels they picked something up from the telethon, so many people there with Lord knows what! He still tells me it was a good decision though to let them participate in it. I know this in my heart, but about now I am thinking I don't want to do that again! DR Boles is all for them "living" life to their fullest! I am too but when this happens it is so hard!!!!

HUGS!

O and crew - Kira,, and Krisalynn Mitochondrial Myopathy-MIDS Maternally Inherited Dysautonomia- NVD ( Nuro Vascular Dystrophy) and dad Enrique

Visit our web page: WWW. caringbridge.org/ca/mitooggo

Help support my sister in her new business at : Come and see what's NEW! http://www.youravon.com/elleenmiller Your AVON representative (Sign in passcode: ElleensAVON if you are signing in for the first time :-)