Re: Needed prayers for our Kira-Myst

[Guest guest]

Hi Myst,

I know Kira would love a get well card. I spent today back in the hospital with for severe chest pain. He was crying hysterically from the pain. They said it was just the inner muscle wall that had gone into a spasm this time thank the Lord because he has already had on Mi. I am getting so tired! I was in tears myself with DR Boles' nurse today. I am so thankful they are there!!!!! They are trying to figure a way for us to get some nursing help. It is so crazy. I have 3 Mito children and I don't qualify for respite or home nursing care! Yet if I didn't work we would get it handed to us even when I didn't need it! I am soooo frustrated. Below is our address/ Thanks for caring! DR Boles is worried about her level of depression right now so I think the card might just help her see people do think she is valued.

34651 Cape Cod CT

Yucaipa, Ca

92399

Thanks again

O

[Guest guest]

:

What kind of care does she need? Is it just for some one to be there

for her while you are at work to make sure she is ok? Is there a

nursing school nearby that some one needs to do "volunteer" work to go

toward their credits? I'm stumped on this one, too. Is there

a family support service that you can contact in your town to also guide

you? How about even calling early intervention and asking.

Are the kids on any MA program? It is so difficult to read your messages

right now because I feel for you and your family right now. Knowing

people are praying for you is a small help; but it doesn;'t do it all.

How about contacting your pastor and see if they know of anyone or can

pull strings with anyone. It's amazing who ministers know.

Try to take a nap if you can. At our school two teachers job shared

a 5th grade class. One had the mornings and one had the afternoons.

Could that be a possibility to run past your principal? Sort of like

a part time sub I guess coming in. How much sick time do you have?

Keep us posted.

Nerenhausen

mom to Leah

mitooggo@... wrote:

Hi Myst,

I know Kira would love a get well card.

I spent today back in the hospital with for severe chest pain.

He was crying hysterically from the pain. They said it was just the

inner muscle wall that had gone into a spasm this time thank the Lord because

he has already had on Mi. I am getting so tired! I was in tears

myself with DR Boles' nurse today. I am so thankful they are there!!!!!

They are trying to figure a way for us to get some nursing help.

It is so crazy. I have 3 Mito children and I don't qualify for respite

or home nursing care! Yet if I didn't work we would get it handed

to us even when I didn't need it! I am soooo frustrated. Below

is our address/ Thanks for caring! DR Boles is worried about her

level of depression right now so I think the card might just help her see

people do think she is valued.

34651 Cape Cod CT

Yucaipa, Ca

92399

Thanks again

O

Please contact mito-owner

with any problems or questions.

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[Guest guest]

Sorry, I guess our last name would help! LOL It is Ortiz. I am soooo frustrated, DR Boles is having a hard time getting us a nurse thanks to our insurance. It is just ridicules!

Hugs

Ortiz

[Guest guest]

Oh I forgot! Kira is going to be 14 on the 10th of next month.

Hugs

O