RE: Controversial issue***** May delete if you like

[Guest guest]

Debbie, we've talked about problems with pooping, peeing, having sex,etc. I don't see anything wrong with talking about marijuana! I'm apparently one of the rare Baby Boomers that have never "inhaled," so I'll let some others respond while I do a little research.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Controversial issue***** May delete if you likeDate: Wed, 18 Apr 2007 07:12:18 -0700 (PDT)

I know this has been brought up before but I was in my therapist's office and I was telling him the symptoms that I have with sarcoid. I am going through a lot of stress and anxiety in my life right now which is making them worse. He mentioned to me on the sly if I had ever tried marijuana for the pain. I told him yes but it was quite a few years ago. He told me that in foreign country's it was given out freely and there were no big laws against it. It was given out as painkillers. I was kinda of taken aback that he mentioned it to me. But in a way it makes sense. I have a lot of nausea too every day and none of the drugs my gastronolegist (sp?) have worked. So that would be another thing it would help he mentioned. Also relax the stress that makes the body hurt worse. What is the concensus on this and it is allowed to discuss it on here?

Debbie T.

Co-Moderator

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[Guest guest]

I've never done pot but as a nurse I have given Marinol (pill form of marijuana) to pts for nausea and appetite stimulation. Blessings,BeckyRose wrote: Debbie, we've talked about problems with pooping, peeing, having sex,etc. I don't see anything wrong with talking about marijuana! I'm apparently one of the rare Baby Boomers that have never "inhaled," so I'll let some others respond while I do a little research.

Ramblin' Rose Moderator From: Debbie <rozebudz36 (AT) yahoo (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Controversial issue***** May delete if you likeDate: Wed, 18 Apr 2007 07:12:18 -0700 (PDT) I know this has been brought up before but I was in my therapist's office and I was telling him the symptoms that I have with sarcoid. I am going through a lot of stress and anxiety in my life right now which is making them worse. He mentioned to me on the sly if I had ever tried marijuana for the pain. I told him yes but it was quite a few years ago. He told me that in foreign country's it was given out freely and there were no big laws against it. It was given out as painkillers. I was kinda of taken aback that he mentioned it to me. But in a way it makes sense. I have a lot of nausea too every day and none of the drugs my gastronolegist (sp?) have worked. So that would be another thing it would help he mentioned. Also relax the stress that makes the body hurt worse. What is the concensus on this and it is allowed to discuss

it on here? Debbie T. Co-Moderator Ahhh...imagining that irresistible "new car" smell?Check out new cars at Yahoo! Autos. Need a break? Find your escape route with Live Search Maps.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

Deb.

Yes, the medical marijuana issue is ok to discuss here. I'm sure that several of us are of the age that it was cool when we were younger-- in the 60's and 70's. (years,not age).

I had a dear friend that had severe late effects of childhood Hodgekins disease. She had radiation in the 1960's-- when they first starting using it. It fried her organs, the pericardial sac around her heart- to such a point that it had to be removed surgically, as her heart could no longer beat correctly inside the sac.

Her esophagus, liver, kidneys-- were all fried. The scar tissue was horrible.

She had such a hard time keeping food down, and many times would have to have her esophagus dilated prior to eating. Otherwise she couldn't swallow.

As I watched her journey with chronic illness-- there came a time when her pain and her appetite made it so very very difficult. Pot was the answer. IT not only calmed her down, but it gave her the munchies. So she was able to get some nutrition down.

The other very positive side effect was that it also got her glaucoma under control.

another friend had advanced breast cancer, that later metastisized-- and for her pain control-- again, pot was the answer.

Many states have passed legislation that approved medical marijuana. The feds still have it as illegal. Sadly, one of the most effective and an herb that has very few side effects-- is still an issue.

where we live, we can grow up to 2 plants that are for personal medical use- but again-- tho the state and county won't prosecute, the feds may.

************************************** See what's free at http://www.aol.com.

[Guest guest]

I was told about the use of marijuana by a friend who had lupus. She

said that it helped her greatly with her pain and with her insomnia

from the prednisone. I decided to try it and in small doses i think

that it is a very helpful drug. It did somewhat numb the pain but

the best effect was that it took all the aggrivation, hurt, anxiety,

etc and got rid of it for a bit. I was able to sleep better than I

had in days. My only problem was that I didn't know how to go about

getting a prescription so I was not able to continue for very long.

If I knew where to get it legally here I definately would try it

again.

>

> I know this has been brought up before but I was in my

therapist's office and I was telling him the symptoms that I have

with sarcoid. I am going through a lot of stress and anxiety in my

life right now which is making them worse. He mentioned to me on the

sly if I had ever tried marijuana for the pain. I told him yes but

it was quite a few years ago. He told me that in foreign country's

it was given out freely and there were no big laws against it. It

was given out as painkillers. I was kinda of taken aback that he

mentioned it to me. But in a way it makes sense. I have a lot of

nausea too every day and none of the drugs my gastronolegist (sp?)

have worked. So that would be another thing it would help he

mentioned. Also relax the stress that makes the body hurt worse.

What is the concensus on this and it is allowed to discuss it on

here?

>

> Debbie T.

> Co-Moderator

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

[Guest guest]

Hey Guys,

I thought I would put in something on this because when I worked in

rheumatology, I had a sarcoid patient who used pot. He did not have NS

but he had systemic sarcoid and was in severe pain. He used it even

though he knew we were going to drug test him. The pain meds did him

little good and the pot increased his appetite and helped him to

maintain some weight (he was very thin). Of course, since he signed a

drug contract and agreed not to use any illegal substances, he was

discharged from the practice.

While I am a stickler for the rules, I don't blame him one bit. If you

could have seen him try to walk....it was pitiful. So, I hope he is out

there smokin' some and getting a little relief. You would think our

government would make it easier for patients and legalize medical

marijuana for people such as him and for those on this site who could

you a respite from the pain and suffering.

Well, that is that.

Terri G.

[Guest guest]

Terri, Thanks for the input. It's too bad this patient was discharged from the practice over this . Like I said earlier, if we were in other countries like my therapist told me, (European), it would be no problem at all to have access to this drug legally. I have heard of so many people that use it for pain and nausea purposes and not to "get high". It helps them get through the awful side effects of their illnesses. Debbie T. Co-Moderator mosaicgirl1 wrote: Hey Guys,I thought I would put in something on this because when I worked inrheumatology, I had a sarcoid patient who used pot. He did not have NSbut he had systemic sarcoid and was in

severe pain. He used it eventhough he knew we were going to drug test him. The pain meds did himlittle good and the pot increased his appetite and helped him tomaintain some weight (he was very thin). Of course, since he signed adrug contract and agreed not to use any illegal substances, he wasdischarged from the practice.While I am a stickler for the rules, I don't blame him one bit. If youcould have seen him try to walk....it was pitiful. So, I hope he is outthere smokin' some and getting a little relief. You would think ourgovernment would make it easier for patients and legalize medicalmarijuana for people such as him and for those on this site who couldyou a respite from the pain and suffering.Well, that is that.Terri G.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT

EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Dear Sarcgirl, I agree with you on the good effects that it helped you with your issues. Unfortunately it is very hard to get it with a prescription unless you are very, very ill like having cancer or another serious, serious disease. I bet most of the people who have used it for the benefits associated with it have got it on their own without a prescription (if you know what I mean). I am not suggesting that people go against the law. It is a very personal issue. But I hope it enters your life in the future so you may experience the benefits of helping with the pain,nausea , anxiety , insomina (as you mentioned). Debbie T. Co-Moderatorsarcgirl wrote: I was told

about the use of marijuana by a friend who had lupus. She said that it helped her greatly with her pain and with her insomnia from the prednisone. I decided to try it and in small doses i think that it is a very helpful drug. It did somewhat numb the pain but the best effect was that it took all the aggrivation, hurt, anxiety, etc and got rid of it for a bit. I was able to sleep better than I had in days. My only problem was that I didn't know how to go about getting a prescription so I was not able to continue for very long. If I knew where to get it legally here I definately would try it again. >> I know this has been brought up before but I was in my therapist's office and I was telling him the symptoms that I have with sarcoid. I am going through a lot of stress and anxiety in my life right now which is making them worse. He

mentioned to me on the sly if I had ever tried marijuana for the pain. I told him yes but it was quite a few years ago. He told me that in foreign country's it was given out freely and there were no big laws against it. It was given out as painkillers. I was kinda of taken aback that he mentioned it to me. But in a way it makes sense. I have a lot of nausea too every day and none of the drugs my gastronolegist (sp?) have worked. So that would be another thing it would help he mentioned. Also relax the stress that makes the body hurt worse. What is the concensus on this and it is allowed to discuss it on here? > > Debbie T.> Co-Moderator> > > ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check outnew cars at Yahoo! Autos.>~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH

CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Debbie,

It is a shame but unfortunately, he signed a drug contract saying he

would not use anything other than what was prescribed including

marijuana. I don't agree with the decision to dismiss, I just wish he

wouldn't have signed the contract.

And you are right, in other countries this would not be an issue. Our

country thinks it is ok for people to suffer.

Terri G.

>

> Hey Guys,

>

> I thought I would put in something on this because when I worked in

> rheumatology, I had a sarcoid patient who used pot. He did not have NS

> but he had systemic sarcoid and was in severe pain. He used it even

> though he knew we were going to drug test him. The pain meds did him

> little good and the pot increased his appetite and helped him to

> maintain some weight (he was very thin). Of course, since he signed a

> drug contract and agreed not to use any illegal substances, he was

> discharged from the practice.

>

> While I am a stickler for the rules, I don't blame him one bit. If you

> could have seen him try to walk....it was pitiful. So, I hope he is

out

> there smokin' some and getting a little relief. You would think our

> government would make it easier for patients and legalize medical

> marijuana for people such as him and for those on this site who could

> you a respite from the pain and suffering.

>

> Well, that is that.

>

> Terri G.

>

>

>

>

>

>

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>

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>

>

[Guest guest]

Thanks Terri for the support. Debbie T. Co-Moderatormosaicgirl1 wrote: Debbie,It is a shame but unfortunately, he signed a drug contract saying hewould not use anything other than what was prescribed includingmarijuana. I don't agree with the decision to dismiss, I just wish hewouldn't have signed the contract.And you are right, in other countries this would not be an issue. Ourcountry thinks it is ok for people to suffer.Terri G.>> Hey Guys,>> I thought I would put in something on this because when I worked in> rheumatology, I had a sarcoid patient who used pot. He did not have NS> but he had systemic sarcoid and was in severe pain. He used it even> though he knew we were going to drug test him. The pain meds did him> little good and the pot increased his appetite and helped him to> maintain some weight (he was very thin). Of course, since he signed a> drug contract and agreed not to use any illegal substances, he was> discharged from the practice.>>

While I am a stickler for the rules, I don't blame him one bit. If you> could have seen him try to walk....it was pitiful. So, I hope he isout> there smokin' some and getting a little relief. You would think our> government would make it easier for patients and legalize medical> marijuana for people such as him and for those on this site who could> you a respite from the pain and suffering.>> Well, that is that.>> Terri G.>>>>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> NS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST> SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PST> OPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PST> SUNDAY 4PM EST. 3PM CENTRAL. 1PM PST>> CHATROOM LINK: http://www.emxpc.net/chat/index.php>> Message Archives:->

http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>>