RE: Who treats mito disorders in Seattle?-Amy & Joni

September 23, 2004

Dear Joni

and Amy… I live in the Seattle

area. I have two children with Mito. We were fortunate to have Dr. Saneto join Children’s

Hospital in Seattle about two years ago.

He studied under Bruce Cohen.

He is on the scientific board for UMDF and is working on patient care

and research. Several Seattle area

families joined a guild to support his work there at Children’s. We just had an Auction on Sept. 10 and

it was a great success. Please

read our website and there is a page to read more about Dr. Saneto. You probably can read info about him on

the www.seattlechildrens.org website.

He has written several articles for the UMDF newsletter, too, re:

movement disorders, acute care of illness in mito patients, etc. Feel free to

ask me questions or email me direct at rella19@....

Cindy, mom

to Seth (13) and Ben (8)

Amy wrote:

I live

in Puyallup and I've heard that WSU children's hospital has someone, but I go

to Oregon Health and Science University (Doernbaucher Children's Hospital) It

is in Portland. So far I really like them. I was able to get my daughter, Lily,

a fresh muscle biopsy done there which was important to me. Lily's

neurologist here felt OHSU was better with mito then Seattle, but

don't know... Where do you live? Feel free to email me anytime

amyrd@...

Amy,

mother to Lily, 2 unspecified mito; and Austin, 5

Joni wrote:

Hi all,

Does

anyone know if there is a child mito specialist in Seattle or

Washington

State? Also, I have not been receiving posts so I will

check back for

reply. Thanks, Joni

September 23, 2004

Sorry, I forgot to give the Guild website where you can read our page

about Dr. Saneto. www.nwmito-research.org.

-----Original

Message-----

From: Cindy Cruz

Sent: Thursday, September 23, 2004

6:09 AM

To: Mito

Subject: RE: Who treats

mito disorders in Seattle?-Amy & Joni

Dear Joni and Amy… I live in the Seattle area. I have two

children with Mito. We were

fortunate to have Dr. Saneto join Children’s Hospital in Seattle about two

years ago. He studied under Bruce

Cohen. He is on the scientific

board for UMDF and is working on patient care and research. Several Seattle area families joined a

guild to support his work there at Children’s. We just had an Auction on Sept. 10 and it was a great

success. Please read our website

and there is a page to read more about Dr. Saneto. You probably can read info about him on the

www.seattlechildrens.org website.

He has written several articles for the UMDF newsletter, too, re:

movement disorders, acute care of illness in mito patients, etc. Feel free to

ask me questions or email me direct at rella19@....

Cindy, mom to Seth (13) and Ben (8)

Amy wrote:

I live

in Puyallup and I've heard that WSU children's hospital has someone, but I go to

Oregon Health and Science University (Doernbaucher Children's Hospital) It is

in Portland. So far I really like them. I was able to get my daughter, Lily,