Re: Kim- Forgot this question

[Guest guest]

I know it can be hard to decide upon getting a wheelchair, but I knew

when we got one for Asenath that it was the best thing I could do for her.

Walking to far only wears them down and causes further regressions. We have

not regretted getting Asenath's wheelchair once as it has been such a

blessing at Mayo. We don't use it very when here in Des Moines, IA but when

we go to Mayo it is such a great treasure to have with us. On days we use

the bus to get to the clinic I miss it and end up using the wheelchairs

provided for patients. They are so much less comfortable and do not

recline. Strollers are good too, but just weren't the right choice for us.

Hope you are able to make the best choice for your child and yourself.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Forgot this question

>

> I just wanted to thank all of ya'll,for your input. It helps so much to

> have a group of friends that really understands. I have read all the

> suggestions,,and I have decided to call the case manager,,and see what she

> thinks would be best,for Logan,and what the insurance would pay for. I

> think a wheelchair would be the best choice,as far as how old he is,,and

> his embarrassment at being in a stroller. On the other hand,,a stroller is

> so much easier to 'swallow'.It wouldn't seem so disabled. Then,I have the

> problem,of trying to decide if he REALLY needs it. I mean,he does when we

> go long distances,,but how often do we do that ? I guess it is best to

> have it,just in case,huh?

> I don't know which one we will do,,but I just wanted to say thanks for

> being there for me.

>

>

> Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7

> Autism,congenital myopathy,possible mitochondrial disease,and JRA ~~ and

> Ethan 5 and 100 % BOY

>

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