Virus causing gagging (to those who deal with swallow issues)

[Guest guest]

Both of the girls are getting a virus and Zipporrah in particular has

me worried. She is getting stuffed up and really gagging due to it. With

all her swallow issues and not being allowed to eat orally anything yet, how

do I deal with the excess secretions and phlegm? Do I need to worry about

this? I am worried that if she has a bad enough viral attack that she will

not be able to handle it. Can any of you give me advise or let me know when

you decided to get a suctioner or whatever your docs suggest you do?

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, chronic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

[Guest guest]

The times when Jericho has had trouble with aspirating his own secretions,

he is also very weak. We lay him on his side, so the secretions tend

to run out the side of his mouth as drool. It works much better than

anything else we found. We have to prop him up adequately, or else

he rolls onto his back and has lots of trouble again.

Jericho has only had serious trouble for a few days or a week or so

at a time. If it lasts longer than that, you'll want to look into

other options. At least with Jericho, it can be very hard to keep

a child propped on their side when they are very floppy. Plus it

is still a major problem when you go places, and they are riding upright

in the carseat or booster seat. Those times, it seems to help to

keep the seat as upright as they can possibly manage and still maintain

a minimum of head control, so their head isn't falling. Having an

older sibling alongside them can help tremendously, because the older one

can help prop up the younger one's head, and then the seat can be more

upright. We found that we just had to accept that he would be wheezing

when we got someplace, but we tried to minimize it as best we could.

Lynne

Darla Klein wrote:

Both of the girls are

getting a virus and Zipporrah in particular has

me worried. She is getting stuffed up and really gagging

due to it. With

all her swallow issues and not being allowed to eat orally anything

yet, how

do I deal with the excess secretions and phlegm? Do I need

to worry about

this? I am worried that if she has a bad enough viral attack

that she will

not be able to handle it. Can any of you give me advise or

let me know when

you decided to get a suctioner or whatever your docs suggest you

do?

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures,

G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, chronic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed,

asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible

seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia

(3), &

Marquis (2) (some with Mito symptoms)

Please contact mito-owner with any problems or questions.

[Guest guest]

The times when Jericho has had trouble with aspirating his own secretions,

he is also very weak. We lay him on his side, so the secretions tend

to run out the side of his mouth as drool. It works much better than

anything else we found. We have to prop him up adequately, or else

he rolls onto his back and has lots of trouble again.

Jericho has only had serious trouble for a few days or a week or so

at a time. If it lasts longer than that, you'll want to look into

other options. At least with Jericho, it can be very hard to keep

a child propped on their side when they are very floppy. Plus it

is still a major problem when you go places, and they are riding upright

in the carseat or booster seat. Those times, it seems to help to

keep the seat as upright as they can possibly manage and still maintain

a minimum of head control, so their head isn't falling. Having an

older sibling alongside them can help tremendously, because the older one

can help prop up the younger one's head, and then the seat can be more

upright. We found that we just had to accept that he would be wheezing

when we got someplace, but we tried to minimize it as best we could.

Lynne

Darla Klein wrote:

Both of the girls are

getting a virus and Zipporrah in particular has

me worried. She is getting stuffed up and really gagging

due to it. With

all her swallow issues and not being allowed to eat orally anything

yet, how

do I deal with the excess secretions and phlegm? Do I need

to worry about

this? I am worried that if she has a bad enough viral attack

that she will

not be able to handle it. Can any of you give me advise or

let me know when

you decided to get a suctioner or whatever your docs suggest you

do?

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures,

G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, chronic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed,

asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible

seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia

(3), &

Marquis (2) (some with Mito symptoms)

Please contact mito-owner with any problems or questions.

[Guest guest]

Darla, Sorry to hear your girls are sick, it sounds like they have the same virus that everyone around here has had (including Chelsea & I). It is a real energy sucker, Chelsea slept thru Labor Day Weekend and I was tired for over a week from it! Chelsea's coughing and gagging from this virus just tapered off this past weekend.

Chelsea came home from the hospital with a suction machine after her 1st aspiration pneumonia. She has used it since and it usually goes every where with her. She can cough up her secretions, but sometimes cannot manage it herself, so I suction her mouth out. Sometimes she just won't cough, especially if she is sick, and sounds like she is drowning. For this, I use a catheter to go down her nose and force a cough. I believe this has helped her improve her cough over the years.

Postural drainage (laying with the head inclined down) may be helpful, to let some of the secretions drain down to be cough out.

Hope they feel better soon=)

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)