update

September 28, 2004

Hello all,

I just spoke to Heidi about an hour ago and is acting a lot

better. She isn't as lethargic and cranky as she had been and the

antibiotics seem to be working.

Dr. Korson (Mito doctor at NEMC) feels 's issues is a stress

response to all her illness' and her body is taking a while to get back on

line. He wants us to try to het her healthy and not to stress her body

(easier said than done..).

I guess immunology, neurology, and GI will all be getting a hand on

at some point during her stay. They did an ultrasound of her liver

because her LST's were elevated (went from 30-120). The residents sounded

concerned but the doctors who have dealt with kids like didn't sound

too concerned unless she continues to be elevated.

During the ultrasound they looked at her bladder and gall-bladder and

found some interesting things. The gall-bladder has a " wall " in it. They

think it may be an annomally (spelling???). Her bladder was quite full

which normally wouldn't be surprising except she just had an explosion of

pee prior to the test. So, the doctors want to look more at her bladder

because of the UTI's that she's been having.

is still on full TPN and is getting back to her old fussy self

when it comes to getting her pulmicort treatments. I'm visiting Heidi and

tomorrow and I'll let her know that you all are thinking of them.

Thank you for your thoughts and prayers.

- father to (mito, autonomic dysfunction, RTA, seizures, etc),

Kaitlin (5), and (6 1/2), and husband to a great wife, Heidi.

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