Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Whoohoo! Go Gabe!! Kori At 07:16 AM 9/27/2005, you wrote: >So, Gabe's been walking/running around for about a month now, and >it's been really hard to put his shoes back on at the end of the >day. Well, looks like I won't have to feel badly anymore because >yesterday he learned how to walk in the things! It's awfully funny >to see him teeter-totter around, but he sure is happy about it. >Aren't these kids just amazing? > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 Whoohoo! Go Gabe!! Kori At 07:16 AM 9/27/2005, you wrote: >So, Gabe's been walking/running around for about a month now, and >it's been really hard to put his shoes back on at the end of the >day. Well, looks like I won't have to feel badly anymore because >yesterday he learned how to walk in the things! It's awfully funny >to see him teeter-totter around, but he sure is happy about it. >Aren't these kids just amazing? > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 That's so sweet! You'll have to get a pic! Go Gabe!! & Grace > So, Gabe's been walking/running around for about a month now, and it's been really hard to put his shoes back on at the end of the day. Well, looks like I won't have to feel badly anymore because yesterday he learned how to walk in the things! It's awfully funny to see him teeter-totter around, but he sure is happy about it. Aren't these kids just amazing? > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 That's so sweet! You'll have to get a pic! Go Gabe!! & Grace > So, Gabe's been walking/running around for about a month now, and it's been really hard to put his shoes back on at the end of the day. Well, looks like I won't have to feel badly anymore because yesterday he learned how to walk in the things! It's awfully funny to see him teeter-totter around, but he sure is happy about it. Aren't these kids just amazing? > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2007 Report Share Posted May 1, 2007 Debbie, it took me a long time before I broke down & used the electric carts. Now I'm perfectly comfortable, except when I turn too quickly & nearly mow someone down. My biggest problem is that I can't fit much in the cart. If I'm getting dogfood, toilet paper, etc., I end up with the dogfood wedged between my legs & stuff piled so high I can hardly see! is actually very helpful, especially for a 5 yo. He pushes a small cart & helps me with the heavier items. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: guilt tripDate: Mon, 30 Apr 2007 03:05:20 -0700 (PDT) Terri, In regards to grocery shopping, before I was first diagnosed I went with my husband every week rountinely. After the symptoms and diagnosis, I couldn't go at all. By the time I got halfway thru the store, I was hurting so bad, I had to go sit in the car. There was a couple of times that I didn't, and I ended up passing out by the time we got home. That was 4 years ago. Since then my husband goes alone every week. I know he hates it, but he realizes I can't take it. Sometimes I feel so guilty when he gives me dirty looks and gets aggravated when he has to some weeks. I tried to suggest the carts with the seats, but he just won't agree to that. He doesn't want to "look different". It embarasses him. The same with other stores that I can't walk thru. If I go to the mall, I make it thru 2 stores then that's it. I have to home and take a long nap after, just like you. Whew, did I go off about that subject, I guess your post just hit a nerve! lol Hugs, Debbie T. Co-Moderatormosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com> wrote: Bonnie,I agree with Rose. I forgot to include that in my post. I used to workhard all week then sleep all weekend so I could do a great job at work. How screwed up is that. Now I would be happy to only have to sleep onthe weekends. I pushed myself too hard and now I pay for it. When I amflaring I have to sleep 3-4 hours during the day then go back to sleep 9hours a night. Do you think I get much done now? My biggest thing isgrocery shopping; I might sleep the rest of the day after that.I should have gotten my priorities straight first before I got likethis. But I didn't and now I deal with it. Don't make the samemistake. Money isn't everything.Terri G.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Hi Rose,I have a daily medication log that I use to write down every med time so that I don't forget or take an extra dose. I then file these papers so that if I have a question when I see my dr I can refer back to my med sheets. I also use a medication 7 day (4 slots for each day) container and fill 2 weeks worth at a time. This also reminds me when I am getting close to a refill. I have a yrly calender that is a book type that I keep track of appts. I keep it with me in my purse so that I can refer back to it for when I had certain tests, etc. Blessings,BeckyRose wrote: I was thinking about the fatigue thing & all the ways we devise to deal with it. Then this morning when I put my (plastic) glass of juice into a coffee mug (to lessen the chance of knocking it over), I thought of all the other ways we learn to adapt. I know that I have come up with lots of innovative ideas, which would probably not make me rich if I tried to market them (except maybe the ICE BRA R). Maybe we could all contribute our ideas & I'll try to organize them into a list that new, and old, members could use. Even though my adaptations are necessary & helpful, sometimes I still resent the fact that I have to do it at all. Anyone else want to join the project? Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Gear up for Halo® 3 and get a $25 Best Buy gift card. It’s our way of saying thanks for using Windows Live™. Get it now! Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Rose, When it comes to coming up with ways to adapt, you inspire me! As to your question " Cant you knit with a ball bat? " hahahahaha You should see the size of the needles I use. For knitting they are almost the size of a quarter & I crochet with one the size of my arthritic thumbs using 3 strands of yarn so my less than perfect eyes can make out what I am doing. At first I resented them almost as much as the sponge padded eating utensils I some times have to resort to. Surprisingly I found that they make the softes fluffiest items that are super cuddly. Who'da thunk? Also my house is small & over crowded. Much more so during rainy weather. When my back & hips simply toss in the praverbial towel. Thats when the computer chair becomes my best friend. Bless it as it has wheels. Carol >>> I was > thinking about the fatigue thing & all the ways we devise todeal with > it. Then this morning when I put my (plastic) glass of juiceinto a > coffee mug (to lessen the chance of knocking it over), I thoughtof all > the other ways we learn to adapt. I know that I have come up withlots of > innovative ideas, which would probably not make me rich if Itried to > market them (except maybe the ICE BRA R). Maybe we could allcontribute > our ideas & I'll try to organize them into a list that new,and old, > members could use. Even though my adaptations are necessary & helpful, > sometimes I still resent the fact that I have to do it at all.Anyone > else want to join the project?>> Ramblin' Rose> Moderator>> A merry > heart is good medicine. Proverbs 17:22>>> > __________________________________________________________> Gear up for > Halo® 3 with free downloads and an exclusive offer.It's our way of > saying thanks for using Windows Live™.> > http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2> > > > > > > > > > > > > > > _________________________________________________________________ > > Capture your memories in an online journal! > > http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME > CHATROOM LINK: http://www.emxpc.net/chat/index.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 >> Rose,> > When it comes to coming up with ways to adapt,> you inspire me!> As to your question"Cant you knit with a ball bat?"> hahahahaha> You should see the size of the needles I use.> For knitting they are almost the size of a quarter & I crochet with > one the size of my arthritic thumbs using 3 strands of yarn so my > less than perfect eyes can make out what I am doing.> At first I resented them almost as much as the sponge padded> eating utensils I some times have to resort to.> Surprisingly I found that they make the softes fluffiest items that > are super cuddly.> > Who'da thunk?> > Also my house is small & over crowded. Much more so during rainy > weather. When my back & hips simply toss in the praverbial towel.> Thats when the computer chair becomes my best friend. Bless it as > it has wheels.> > Carol> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 >> Rose,> > When it comes to coming up with ways to adapt,> you inspire me!> As to your question"Cant you knit with a ball bat?"> hahahahaha> You should see the size of the needles I use.> For knitting they are almost the size of a quarter & I crochet with > one the size of my arthritic thumbs using 3 strands of yarn so my > less than perfect eyes can make out what I am doing.> At first I resented them almost as much as the sponge padded> eating utensils I some times have to resort to.> Surprisingly I found that they make the softes fluffiest items that > are super cuddly.> > Who'da thunk?> > Also my house is small & over crowded. Much more so during rainy > weather. When my back & hips simply toss in the praverbial towel.> Thats when the computer chair becomes my best friend. Bless it as > it has wheels.> > Carol> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 probably everyone already does it, but i have a problem with choking when I drink or if something takes alot of chewing. The gastroenterologist says that it is the sarc causing my esophagus not to work properly. I use a straw with nearly everything I drink and that helps alot, and I am extremely careful about things like cheesesticks & steak. Connie --- Rose wrote: > > I was thinking about the fatigue thing & all the > ways we devise to deal with it. Then this morning > when I put my (plastic) glass of juice into a coffee > mug (to lessen the chance of knocking it over), I > thought of all the other ways we learn to adapt. I > know that I have come up with lots of innovative > ideas, which would probably not make me rich if I > tried to market them (except maybe the ICE BRA R). > Maybe we could all contribute our ideas & I'll try > to organize them into a list that new, and old, > members could use. Even though my adaptations are > necessary & helpful, sometimes I still resent the > fact that I have to do it at all. Anyone else want > to join the project? > > Ramblin' Rose > Moderator > > A merry heart is good medicine. Proverbs 17:22 > > > _________________________________________________________________ > Gear up for Halo® 3 with free downloads and an > exclusive offer. It’s our way of saying thanks for > using Windows Live™. > http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 probably everyone already does it, but i have a problem with choking when I drink or if something takes alot of chewing. The gastroenterologist says that it is the sarc causing my esophagus not to work properly. I use a straw with nearly everything I drink and that helps alot, and I am extremely careful about things like cheesesticks & steak. Connie --- Rose wrote: > > I was thinking about the fatigue thing & all the > ways we devise to deal with it. Then this morning > when I put my (plastic) glass of juice into a coffee > mug (to lessen the chance of knocking it over), I > thought of all the other ways we learn to adapt. I > know that I have come up with lots of innovative > ideas, which would probably not make me rich if I > tried to market them (except maybe the ICE BRA R). > Maybe we could all contribute our ideas & I'll try > to organize them into a list that new, and old, > members could use. Even though my adaptations are > necessary & helpful, sometimes I still resent the > fact that I have to do it at all. Anyone else want > to join the project? > > Ramblin' Rose > Moderator > > A merry heart is good medicine. Proverbs 17:22 > > > _________________________________________________________________ > Gear up for Halo® 3 with free downloads and an > exclusive offer. It’s our way of saying thanks for > using Windows Live™. > http://gethalo3gear.com?ocid=SeptemberWLHalo3_WLHMTxt_2 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.