Re:e- Virus causing gagging (to those who deal with swallow issues)

[Guest guest]

Thanks for your suggestions. I have been thinking about a suction machine

but it sounds like our ped wants her to get worse before us getting one.

Not sure how I feel about this as she has had two cases of aspiration

pneumonia herself.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy,SID, dev. delays, asthma, chronic vomiting...

Zipporrah (10 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (7), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Virus causing gagging (to those who deal with swallow

issues)

> Darla, Sorry to hear your girls are sick, it sounds like they have the

> same

> virus that everyone around here has had (including Chelsea & I). It is a

> real

> energy sucker, Chelsea slept thru Labor Day Weekend and I was tired for

> over a

> week from it! Chelsea's coughing and gagging from this virus just tapered

> off

> this past weekend.

> Chelsea came home from the hospital with a suction machine after her 1st

> aspiration pneumonia. She has used it since and it usually goes every

> where with

> her. She can cough up her secretions, but sometimes cannot manage it

> herself,

> so I suction her mouth out. Sometimes she just won't cough, especially if

> she

> is sick, and sounds like she is drowning. For this, I use a catheter to go

> down

> her nose and force a cough. I believe this has helped her improve her

> cough

> over the years.

> Postural drainage (laying with the head inclined down) may be helpful, to

> let

> some of the secretions drain down to be cough out.

> Hope they feel better soon=)

>

> e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

>