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Re: Re:e- Virus causing gagging (to those who deal with swallow...

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I have been thinking about a suction machine but it sounds like our ped wants her to get worse before us getting one. Not sure how I feel about this as she has had two cases of aspiration pneumonia herself.

How much worse does she have to get??? Sheesh!! I am sorry to hear you are having such a hard time getting what you need to care for your girls. I had medical proffessionals stuffing medical equipment down my throat after Chelsea's 1st pneumonia, and I didn't want ANY of it! Will keep you in my prayers=)

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

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