Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Hey Guys, I wonder if anyone has been on Imuran? How did you do on it? I am weaning off the prednisone (3-4 months) but am starting Imuran tomorrow or Saturday. Thanks for the info. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Terri, I took Imuran for over two years, along with Prednisone. My neuro just started me off on 50mg 3x a day. I tolerated it fine, but I think some others have had problems. I think that some have started at a lower dose & then increased it. One of the things I'm grateful for is that I have no drug allergies & seldom suffer any side effects, which is good since I'm on 22 meds, counting the "as needed" and OTC. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: ImuranDate: Thu, 03 May 2007 20:47:41 -0000 Hey Guys,I wonder if anyone has been on Imuran? How did you do on it? I amweaning off the prednisone (3-4 months) but am starting Imuran tomorrowor Saturday.Thanks for the info.Terri G. Download Messenger. Join the i’m Initiative. Help make a difference today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Rose, I am going to start off 50 mg bid. That seems to be a low dose so then maybe I won't get many side effects. Thanks for the help. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Happy Birthday/Anniversary/whatever I missed during my extended pity party. I let this dumb disease depress me & the Cytoxin treatments are worse than the disease. I finally got the nausea & anorexia they promised me as a side effect. I've lost 29 of the 50 or so I gained when I was about 6 months or so into the treatment. At University Hospital Medicare patients go through the same clinic as all the rest of the poor. LOL I didn't want to walk the extra block to the other building to pay a $20 copay for the same treatment & a cup of juice. If we got lucky they had a quarter size pack of crackers to go with it. At least I can get my Mocha at the little stand in the waiting room for half the price of StarBucks! I just had treatment Thursday so I may be in and out again as the crap hits me. Come on Rosie & Terri I know you can pull me out of this funk. I'm too tired to put on a grade "A" rant about all this but I did wind up in the ER with my first diagnosed case of Cellulitis. Got to moon the nurse when she gave me a shot in the rump! Haven't had one of those in decades & decades. No, I didn't take a picture to post. LOL I had this crazy idea I'd actually get around to reading almost 5,000 pieces of sarc mail but the delete key is some much easier & quicker so sorry for the events I have missed. I'll try to catch up with it daily now & stay out of ebay! It would be more budget friendly anyway. Hello to all the new people I haven't met yet. Don't let my email name scare you I don't bite often. LOL Hugs to all! Maybe I can sleep now.grannylunatic@... The fish are biting. Get more visitors on your site using Yahoo! Search Marketing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 Terri I am trying to get on Imuran. Can you let me know how it goes? My neuro wants to switch me & get me the rest of the way off the Pred & off the Cytoxin but wants Dr. B to release me first. They want to wait another 4 months & do another MRI but they've fooled me with that one before. Am I getting paranoid? grannylunatic@... Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 , Yeah - I have missed you girl. I am sorry for all of the problems you have had but can I have the cytoxan and I will give you the Imuran. I need to loose some weight! I wish you would have taken a picture of your moon to post. That would "crack" us all up. I am glad you are back online. How is your cellultis? That can be some pretty nasty stuff. Take care of yourself and let me know how you are doing!!!! Terri G.>> Happy Birthday/Anniversary/whatever I missed during my extended pity party. I let this dumb disease depress me & the Cytoxin treatments are worse than the disease. I finally got the nausea & anorexia they promised me as a side effect. I've lost 29 of the 50 or so I gained when I was about 6 months or so into the treatment. At University Hospital Medicare patients go through the same clinic as all the rest of the poor. LOL I didn't want to walk the extra block to the other building to pay a $20 copay for the same treatment & a cup of juice. If we got lucky they had a quarter size pack of crackers to go with it. At least I can get my Mocha at the little stand in the waiting room for half the price of StarBucks! I just had treatment Thursday so I may be in and out again as the crap hits me. Come on Rosie & Terri I know you can pull me out of this funk. I'm too tired to put on a grade "A" rant about all this but I did wind up in the ER with my first diagnosed case of> Cellulitis. Got to moon the nurse when she gave me a shot in the rump! Haven't had one of those in decades & decades. No, I didn't take a picture to post. LOL I had this crazy idea I'd actually get around to reading almost 5,000 pieces of sarc mail but the delete key is some much easier & quicker so sorry for the events I have missed. I'll try to catch up with it daily now & stay out of ebay! It would be more budget friendly anyway. Hello to all the new people I haven't met yet. Don't let my email name scare you I don't bite often. LOL Hugs to all! Maybe I can sleep now.> > > > grannylunatic@...> > ---------------------------------> The fish are biting.> Get more visitors on your site using Yahoo! Search Marketing.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 , I really have had no problems with the Imuran - only on it a couple of weeks. I am tired a lot but I don't know if that is from the Imuran or not. I am getting off the prednisone but it will take me until August before I am done. Right now I look like a smiley face - I have the typical round face that comes with prednisone. I am not sure if we are going to add something else after I get off the pred. I guess I will find out when the time comes. I am not sure of the cost of the Imuran but it does come in generic which is all my insurance company will pay for. I only pay my copy of $10. I take 50 mg twice a day. Well, I will let you know how it goes. Glad to have you back. Terri G. > > Terri > I am trying to get on Imuran. Can you let me know how it goes? My neuro wants to switch me & get me the rest of the way off the Pred & off the Cytoxin but wants Dr. B to release me first. They want to wait another 4 months & do another MRI but they've fooled me with that one before. Am I getting paranoid? > > > > grannylunatic@... > > --------------------------------- > Sucker-punch spam with award-winning protection. > Try the free Yahoo! Mail Beta. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Terri I didn't know (or remember) you were on Imuran. How is it treating you? My chemo doc thinks I "pooped" the 7 lbs in one month.......Hmm maybe I am full of "IT".grannylunatic@... Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 , when do you see Baughman again? I have an appt on June 1; it would be great to get together somehow! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: ImuranDate: Sat, 19 May 2007 04:32:10 -0700 (PDT) Terri I am trying to get on Imuran. Can you let me know how it goes? My neuro wants to switch me & get me the rest of the way off the Pred & off the Cytoxin but wants Dr. B to release me first. They want to wait another 4 months & do another MRI but they've fooled me with that one before. Am I getting paranoid? grannylunatic (AT) yahoo (DOT) com Sucker-punch spam with award-winning protection.Try the free Yahoo! Mail Beta. More photos, more messages, more storage—get 2GB with Windows Live Hotmail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Honey, We all know you are full of IT - Hee Hee. I just started the Imuran about 3 weeks ago and I am weening off the prednisone. Not sure if we are going to add anything else after but we will see. I wish I could poop out 7 pounds a week. It wouldn't take me long to loose my weight. Hope you had a good weekend. Terri G. > > Terri > I didn't know (or remember) you were on Imuran. How is it treating you? My chemo doc thinks I " pooped " the 7 lbs in one month.......Hmm maybe I am full of " IT " . > > > > grannylunatic@... > > --------------------------------- > Be a better Globetrotter. Get better travel answers from someone who knows. > Yahoo! Answers - Check it out. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Rose, I would love to be a fly on the wall when you and get together. That must be a hoot! Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Well, Terri, we haven't actually gotten together, in person, yet. Maybe it'll happen this year. Grannylunatic and Psychogranny--who need Superheroes? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: ImuranDate: Mon, 21 May 2007 10:31:42 -0000 Rose,I would love to be a fly on the wall when you and get together. That must be a hoot!Terri G. More photos, more messages, more storage—get 2GB with Windows Live Hotmail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Hey Rose! I don't really see Dr B at my appts. It's the chemo doctor and I believe it's mid June......If I can save a buck or two maybe I could come up & meet you! I have to reschedule my urologist appt maybe I can get in on the first. grannylunatic@... Get the Yahoo! toolbar and be alerted to new email wherever you're surfing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 , it would be so much fun to have lunch or coffee somewhere! Let me know. I think my appt. is at 1pm; I'll check to be sure. Grannies rock! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: ImuranDate: Tue, 22 May 2007 02:55:21 -0700 (PDT) Hey Rose! I don't really see Dr B at my appts. It's the chemo doctor and I believe it's mid June......If I can save a buck or two maybe I could come up & meet you! I have to reschedule my urologist appt maybe I can get in on the first. grannylunatic (AT) yahoo (DOT) com Get the Yahoo! toolbar and be alerted to new email wherever you're surfing. PC Magazine’s 2007 editors’ choice for best Web mail—award-winning Windows Live Hotmail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Cincinnati LOOK OUT! Here we come. Hopefully NO film at 11.grannylunatic@... TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Awww, , you're no fun. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Re: ImuranDate: Tue, 22 May 2007 18:47:07 -0700 (PDT) Cincinnati LOOK OUT! Here we come. Hopefully NO film at 11.grannylunatic (AT) yahoo (DOT) com TV dinner still cooling?Check out "Tonight's Picks" on Yahoo! TV. PC Magazine’s 2007 editors’ choice for best Web mail—award-winning Windows Live Hotmail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 You got bail money Rose?? LOLgrannylunatic@... Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
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