sleep

[Guest guest]

It is 5:30am and for the last week I haven't been able to sleep but

for a few hours at night. This causes panic attacks. For the last 3

years I slept 10 to 14 hours a night.This is my first post. I am also

feeling extremely claustrophobic. I am having hard time with this

latest symtem. Thanks for listening. I am driving my husband crazy. He

is wonderful but I think my illness is starting to get to him.

[Guest guest]

barbaraboliva wrote: It is 5:30am and for the last week I haven't been able to sleep but for a few hours at night. This causes panic attacks. For the last 3 years I slept 10 to 14 hours a night.This is my first post. I am also feeling extremely claustrophobic. I am having hard time with this latest symtem. Thanks for listening. I am driving my husband crazy. He is wonderful but I think my illness is starting to get to him.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message

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[Guest guest]

Barbara I have gone thru many stages where I will need as much sleep as possible and then I would live on only5 hrs at a time with waking up several times a night having to go on the computer or reading a book to relax and make me drowsy enough to go back to sleep. You are probably not only getting the panic attacks from not only being able to sleep, which I think you should mention to you doctor and he may be able to give you something to sleep the whole night thru. Because loss of sleep does not help our disease and wears us down even more. The other reason is you are probably having panic attacks from the reaction from your husband is that is "getting sick of your disease". Explain to him these issues are a part of your illness and you can't help what is happening right now. More support from him would be helpful right now because of your anxiety. Another thing he is probably

in a state of denial right now and doesn't want to realize that these situations are making your illness worse and he doesn't want to admit or is scared himself of what you are going thru and what may happen in the future. Giving him more info on that may relief his mind and make him more supportive for you. Debbie T. Co-ModeratorDebbie wrote: barbaraboliva wrote: It is 5:30am and for the last week I haven't been able to sleep but for a few hours at night. This causes panic attacks. For the last 3 years I slept 10 to 14 hours a night.This is my first post. I am also feeling extremely claustrophobic. I am having

hard time with this latest symtem. Thanks for listening. I am driving my husband crazy. He is wonderful but I think my illness is starting to get to him.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hi Barb,

Sounds like you may have some sleep apnea on top of the sarc. Have you been tested?

When pain is interrupting our sleep, then yes, the seratonin and norephinephrine levels in our brains get totally out of whack, and that too will interfer with sleep.

The reason I go with sleep apnea is that if you are not breathing correctly, then you wake yourself up- hundreds of times a night- and you will have those feelings of anxiety and panic and overwhelm. Basically, your throat collapses over the windpipe and you can't breath, so you wake up and gasp for breath, and fall back to sleep, until it happens again, minutes later. Are you a snorer? Overweight?

I know that it is so hard to handle these issues, or know where to start. If it is sleep apnea it can easily be managed. You will need a sleep study test, which is painless, but can answer so many of the questions of insomnia. A CPAP machine works wonders and man, I tell ya, it's wonderful to sleep thru the night!

If you are on high dose prednisone, that too can run havoc on your sleep and moods. In a very major way. It too can make you psychotic.

Tell us a bit more about yourself, and know that we are here for you.

You've found a wonderful bunch of people that have and are dealing with these same issues, and this is a great place to vent, ask questions, laugh, cry and learn to take care of yourself and advocate for the health care you deserve.

Sincerely,

Tracie

NS Co-owner/moderator************************************** See what's free at http://www.aol.com.

[Guest guest]

The other reason is you are probably having panic attacks from the reaction from your husband is that is "getting sick of your disease". Explain to him these issues are a part of your illness and you can't help what is happening right now. More support from him would be helpful right now because of your anxiety. Another thing he is probably in a state of denial right now and doesn't want to realize that these situations are making your illness worse and he doesn't want to admit or is scared himself of what you are going thru and what may happen in the future. Giving him more info on that may relief his mind and make him more supportive for you.

Debbie, this is fantastic! Thank you for sharing this insight. You're in the process, and you've come such a long ways! I'm proud of you my dear friend!

Love to you,

Tracie************************************** See what's free at http://www.aol.com.