Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 If you would like to have some of my kids or others on this list write to Matt please send me your address on my personal e-mail address (honeybear50317@...) I would like to get a list of kids' addresses so different families can write each other. Mitokidsandsibs (kid's support group) is also started and if he wants to be a part of it let me know. Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, chronic vomiting... Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Re: Child pen pal idea/support for our kids (anyone's kids interested???) > Hi Darla, I spoke to my son Matt age 8, and he says you have a great > idea. He really does not have any close friends, and hasnt yet met > any other child with mito,(hopefully he will try MDA camp in the > future), therefore has no peers that would really understand what he > goes through day in and day out, and would really appreciate making > friends who lets say " the shoe fits " too!!! Let us know if you get > this going or if you need any help getting this going, we'd be glad > to help. Barb: mito myopathy, and mom to Matt: MERFF > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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