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HELP... Having a really rough night

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Hi all,

Im not sure what to do. I have been having a lot of problems with my

free insulin levels lately

and the endo. has said I am now prediabetic. Im on glucophage and 2

weeks ago the doc increased

my dose as my labs are still way off.

For the past week I have been very nauseated and had a few times where

I was really close to vomiting.

But tonight it wont stop. I am pretty shaky and have a headache and

can't seem to even hold water or

any liquid down.

My question is how do I know when to head to the ER for help? I hate

feeling like such a wimp but I

feel so horrible right now. How will I know if I am getting

dehydrated or when it gets dangerous?

Thanks in advance..

AnnMarie L. - Complex IV, Married to my best friend Rick,

Mom of (15), (12), Cassandra (6)

and Joe (4 1/2) - complex IV, lactic acidosis,

CP,tethered chord syndrome, dysautonomia,

and a smile that never quits ☺

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I am so sorry to hear you had a rough night. I don't have much advice

other than if you are feeling that bad and can't keep anything or very

little down with all the issues you are dealing with it is better to go than

stay home until you are too weak to go or don't know cognitively (due to

dehydration) you need to go. Do you have someone there with you that can

help you? It is better to get help early on rather than later when dealing

with Mito as the worse you are the worse you crash. It sounds like you need

to see someone whether your doc or the ER. Let us know how you are doing

when you can. :)

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, chronic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

HELP... Having a really rough night

> Hi all,

> Im not sure what to do. I have been having a lot of problems with my

> free insulin levels lately

> and the endo. has said I am now prediabetic. Im on glucophage and 2

> weeks ago the doc increased

> my dose as my labs are still way off.

> For the past week I have been very nauseated and had a few times where

> I was really close to vomiting.

> But tonight it wont stop. I am pretty shaky and have a headache and

> can't seem to even hold water or

> any liquid down.

> My question is how do I know when to head to the ER for help? I hate

> feeling like such a wimp but I

> feel so horrible right now. How will I know if I am getting

> dehydrated or when it gets dangerous?

>

> Thanks in advance..

> AnnMarie L. - Complex IV, Married to my best friend Rick,

> Mom of (15), (12), Cassandra (6)

> and Joe (4 1/2) - complex IV, lactic acidosis,

> CP,tethered chord syndrome, dysautonomia,

> and a smile that never quits ☺

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

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Hi Darla,

Thank you so much for your comments. Things improved and I finally

got some much needed sleep today. I feel so many times that I just

don't know where to draw that line between handling it myself in the

comfort of my own home or really needing medical intervention. I

found out today that it might be the increase in the glucophage that

might be making me so ill. And of course the endo is closed Fridays,

so i will go back to my original dose over the weekend and see if that

helps.

I don't know how you do it with all of yours! I admire you so much.

Just know that even though I don't post much, your family is in my

prayers often.

Thank you so much!

AnnMarie L. - Complex IV, Married to my best friend Rick,

Mom of (15), (12), Cassandra (6)

and Joe (4 1/2) - complex IV, lactic acidosis,

CP,tethered chord syndrome, dysautonomia,

and a smile that never quits :)

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