Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 well i was just informed that anna graces left hip is " out of socket " and she will need surgery. i do not have much info at this time, as we were at our yearly (league for crippled children) clinic for a checkup, they ordered the standard hip xrays and then shown how her left hip is out of place compared to 2 years ago. so, i am wondering if anyone has experience with any type of hip surgery. if so, what did it involve? we do not meet with the ortho surgeon for like a month, so i have time to gather my questions and prepare. i have no idea what to expect. just curious b/c i'm so unsure. thanks, bethany mom to brennan 7, palmer & anna grace (leighs) 4.9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 Hi Bethany, Did the doctors say Grace has hip dysplasia? Both my boys do. It's where the hip socket is too shallow and the femur head eventually works its way out. That's what happend with both my kids. had a Girdlestone procedure (it was not rebuilt) and Billy we just left his dislocated (after getting his spine fused) because I didn't want to face another hip surgery. If the hip isn't bothering Grace then I say leave it alone! still has pain from the surgery, which was over a year ago. The doc did do abductor (adductor? I can never remember the inside one!) releases, but they didn't seem to help. AAMOF, Chris' OTHER hip is starting to bother him. We have just ordered new reclining wheelchairs so the kids can take the pressure off their hips. Unless it's life threatening, I will not do another hip surgery!!!!!!! That is my experience. Other's may have better ones. Sue & Jack, worn out parents to the greatests kids on earth, Las Vegas, NV-- (14) & Billy (13)--both with Leigh's Disease (?), MR (mild), g-tube. Billy--fundo, trach (larynotracheomalacia), vent 24/7, spinal fusion, baclofen pump. Chris-no left hip socket! Visit us! http://members.cox.net/jscb > well i was just informed that anna graces left hip is " out of > socket " and she will need surgery. i do not have much info at this > time, as we were at our yearly (league for crippled children) clinic > for a checkup, they ordered the standard hip xrays and then shown > how her left hip is out of place compared to 2 years ago. > > so, i am wondering if anyone has experience with any type of hip > surgery. if so, what did it involve? > > we do not meet with the ortho surgeon for like a month, so i have > time to gather my questions and prepare. i have no idea what to > expect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2004 Report Share Posted October 1, 2004 You may want to consider seeing a chiropractor first before doing surgery. When our daughter Leah was a baby the docs talked about doing surgery for hers and just one visit to the chiropractor fixed hers and the docs were satisfied. I was so thankful we took the chance on the chiropractor first before going through with a surgery. Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, chronic vomiting... Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) hip surgery? > > well i was just informed that anna graces left hip is " out of > socket " and she will need surgery. i do not have much info at this > time, as we were at our yearly (league for crippled children) clinic > for a checkup, they ordered the standard hip xrays and then shown > how her left hip is out of place compared to 2 years ago. > > so, i am wondering if anyone has experience with any type of hip > surgery. if so, what did it involve? > > we do not meet with the ortho surgeon for like a month, so i have > time to gather my questions and prepare. i have no idea what to > expect. > > just curious b/c i'm so unsure. > > thanks, > bethany > mom to brennan 7, palmer & anna grace (leighs) 4.9 > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Beth, Several questions pop into my mind when I read your post. If they do the surgery do they think the hip will remain in the socket? The mito kids with their low muscle tone to not always heal the way most kids do. How long is the recovery time estimated to be? Any of the " stresses " the kids get can set them back so far! Is her prognosis such that she will benifit from the surgery? What is the benefit? Will this make her walk? Will this keep her from walking the months she will be in the bracing/cast? Some of the mito kids have nuropathy which makes them have pain in their limbs. When Billy got a cast with his Botox shots, the first thing he said in the morning is can I have this off? This was also the last thing he said at night. He wanted to know what he had done to merit such punishment and promised never to do it again. It was heartbreaking to see a kid who never compains about anything so upset for so long! He said it was like having needles in his feet. Also you are going to need to be able to transport/move her with the bracing on. You are going to need to look at some serious weight since she won't be able to move. We are looking at Billy's falling apart from his bone sockets too. His hips are both out of joint by about 50%, his clavicals pop out when you pick him up. You can feel his whole body sort of squish together. So many of the surgeries require the persons body to " tighten " up back around the surgery and his can't. Sorry, I am gloomy about this maybe someone else has better experiences. Twana > well i was just informed that anna graces left hip is " out of > socket " and she will need surgery. > so, i am wondering if anyone has experience with any type of hip > surgery. if so, what did it involve? Quote Link to comment Share on other sites More sharing options...
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