Re: hip surgery--TWANA & SEANNE

[Guest guest]

twana & seanne

thank you for responding. we are starting to gather all of our

questions to ask at the next appt. and even stuff for our reg.

pediatrician. anna grace is also nonambulatory, but can bear weight

and walk in a gait trainer. and right now, anna grace is not in

pain (as far as we know, b/c she is nonverbal)

so, all of the responses are really helping us look into other

options, gather questions to be asked, and learning from all of your

experiences.

thank you,

bethany

> Bethany

>

> Gaby had hip dysplasia, with a dislocated hip for years.

Initially we chse

> do do nothing about it, as she was still able to weight bear and

step

> assisted (she cannot walk independently.)

> Her dislocated hip caused leg shortening. We had her shoe raised

up so that

> her legs were equal.

> However, last year, Gaby developed pain in that hip. After

long hard

> discussions, we consented to surgery. We knew her mito issues were

more of a

> danger with surgery, and this was complicated as she is also on a

ketogenic

> diet.

> All went smoothly though, and Gaby has recovered well.

> She had an osteotomy to her hip (bone graft to reform the hip

socket), and

> also an osteotomy and limb shortening to her femur. The draw back

from

> waiting so long to have the surgery was that there was no way they

could

> 'pull' her femur down into the new socket. The leg was shortened

and

> re-directed into the new socket.

> She was in a hip spica plaster for 6 weeks post op (that

was the worst!!)

> She has fully recovered and is 'back on her feet' with no pain!

> Her leg is obviously still shorter and requires a built up

shoe, but her

> hip is stable, and she is pain free

>

> ne Mum to Gaby aged 9. PDH