Re: PAIN: tiodaat

[Guest guest]

Hi,

I have been having pain in my jonts for several years. It alll started with my bout with ns. The dr. said it's arthritis that the ns caused. Sometimes, i can't move my fingers due o the pain. My feet were worse but have become better. A few months ago, I developed pain around my knee and the dr's say now it developed into bursitis.

Hope you fell better. i take Advil or something of that sort to ease the pain.

Voiced Pomy

From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: PAINDate: Tue, 24 Apr 2007 19:21:06 EDT

In a message dated 4/24/07 3:42:27 PM Pacific Daylight Time, kathy_ceamoore (AT) yahoo (DOT) com writes:

I am also experiencing a great deal of pain in my knees and other joints. has any one else had these problems? D oese aqnyone have any advice on how to deal with the pain? Please e-mail me it would be good to talk to someone in the same situation.HI kATHY,Welcome to the group. We have over 400+ members and we are all experiencing the pain of sarcoidosis. so you'll have plenty of people to talk too!Many of us have the sarcoid-induced arthritis-- and have found different ways to deal with the pain. I for one, don't take pain meds very often-- years ago I had a problem with abusing them-- so it's not a good thing for me.What I've been able to do is to use guided meditation, biofeedback, and massage to help with the pain. I also take MSM Powder to help with the mineral depletion. I order mine from PUREMSM.com. It's a natural mineral that we have engineered out of our soil and foods. I have also found that any amount of dehydration and any increase in my blood sugars-- add directly to the amount of pain I experience.I am on Plaquenil and methotrexate to help with the sarc induce arthritis, along with Remicade. I have the granulomas in my lungs, eyes, every joint and ligament- and my spine. So I'm very systemic! What kind of meds do they have you on? In our ARCHIVES AND LINKS - scroll down and you'll see the address- you can get a tremendous amount of information on medication choices, and topics that we've covered. You'll find that we have a vast amount of knowledge here-- all of us on the same path. Again, welcome, and know you've found a place to ask questions, vent laugh, cry-- we even have live online chats-- (also listed at the bottom of the page)-- so make yourself at home.Know that if we don't answer right away, that it is because the owners and moderators are all sick also- but we do check in daily-- so we'll do what we can as quickly as possible!Sincerely,TracieNS Co-owner/moderator**************************************See what's free at http://www.aol.com.

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[Guest guest]

Pomy,

I am so sorry that you are experiencing the sarcoid-induced arthritis. That was the toughest part for me--

I know I've said it before, and I still swear by it-- hydration, hydration, hydration. If the joints and ligaments aren't getting enough fluids and electrolytes-- then we hurt-- alot!

The other component for me was my blood sugar-- even the slightest bit high (I'm talking about 110-120--and if I get up to 140) then I'm in severe pain. So the prednisone induced diabetes has shorted my neuropathy.

The one thing that has helped the most is the MSM powder. I order from PUREMSM.COM and swear by it. It helps to get the minerals back into my system, and that seems to be a key component.

One thing that you may want to do is to measure the fluids you drink in a day. If you are a coffee lover, the caffeine will increase the pain and in some cases, act as a dehydrator. Alcohol is also a dehydrator. It robs the B vitamins, along with the Vit C. Take away the B's and you have nerve pain.

If you're drinking soda's then you have the increased salt in your system, and that brings swelling to the joints. Juice, water, decaf teas, are all good choices.

One other trigger for me, was dairy products. The lactic acid buildup was and still is a problem. So I'm in the process of seeing what I can do in the way of dairy, or at least soymilks. That way I still get some calcium in my system.

Hope these suggestions help,

Tracie

NS Co-owner/moderator************************************** See what's free at http://www.aol.com.

[Guest guest]

Tracie, another thing many people aren't aware of is that drinking carbonated beverages, even sugar-free, decaf, can interfere with your absorption of calcium. The phosporus in the sodas is the culprit. So good old water is the best bet. If your tap water isn't so tasty, you can buy a filtering pitcher at Walmart (don't remember the cost, but wasn't bad) that really improves the taste. You can also add half a lime or a little lime juice.

Ramblin' Rose

Moderator

From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: PAIN: tiodaatDate: Tue, 15 May 2007 03:14:54 EDT

Pomy,I am so sorry that you are experiencing the sarcoid-induced arthritis. That was the toughest part for me-- I know I've said it before, and I still swear by it-- hydration, hydration, hydration. If the joints and ligaments aren't getting enough fluids and electrolytes-- then we hurt-- alot!The other component for me was my blood sugar-- even the slightest bit high (I'm talking about 110-120--and if I get up to 140) then I'm in severe pain. So the prednisone induced diabetes has shorted my neuropathy. The one thing that has helped the most is the MSM powder. I order from PUREMSM.COM and swear by it. It helps to get the minerals back into my system, and that seems to be a key component. One thing that you may want to do is to measure the fluids you drink in a day. If you are a coffee lover, the caffeine will increase the pain and in some cases, act as a dehydrator. Alcohol is also a dehydrator. It robs the B vitamins, along with the Vit C. Take away the B's and you have nerve pain. If you're drinking soda's then you have the increased salt in your system, and that brings swelling to the joints. Juice, water, decaf teas, are all good choices. One other trigger for me, was dairy products. The lactic acid buildup was and still is a problem. So I'm in the process of seeing what I can do in the way of dairy, or at least soymilks. That way I still get some calcium in my system.Hope these suggestions help, TracieNS Co-owner/moderator**************************************See what's free at http://www.aol.com.

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