Any help with Temp control and excessive sweating?

[Guest guest]

Connor has a problem with controlling his heat. He was always a baby

that kicked off any blankets that were put on him. But since he has

exhibited his mitochondrial related problems this issue has become

more severe and more important.

If we put any blankets on him or we are holding him in our arms he

gets sopping wet. In South Africa we are heading into Summer, which

gets very hot and obviously this is going to become more of an issue.

Is there any thing out there that can be done for him apart from

keeping him cool with few clothes and air conditioning. Those that

have similar problems what do you do?

[Guest guest]

My daughter Grace has a very hard time with the heat. During the warmer months, above 73 F or higher, we have to use many protective garments to go outside. In the house we use air conditioning and we just recieved a cooling pad to go into her pillow (but we put it under her sheets.) She also has a teddy bear that can be put into the freezer for comfort.

Her cooling garments include:

Cooling Vest

Cooling Hat

Cool wrist bands

Cooling Neck band

We also have a cooling pad to go in the back of her carseat.

We recieved all of these items from the Moody Foundation. They will provide all of these items at no charge to the parents, but the waiting list is very long. We were able to have the MDA pay for her items, due to a desperate need (she has had a heat stroke this past summer, it only took 20 min outside.) If a sponser is unavailable to you, you can pay directly for the items. (I believe the cost is about 300 US dollars.)

Also you can purchase all of these items seperatly through www.heatreliefdepot.com. This is the company Moody Foundation is currently using for there supplier. They do plan on starting to manufacture there own garments, but it is still in the planning process.

Moody Foundations website is www.sarahmoodyfoundation.org. They are a very wonderful organization and I have gotten to know them well, as they have gone out of there way to help our daughter.

Best wishes

[Guest guest]

has trouble with temp control...

90% of the time hes alright, his temp runs a tad high (99-100

normally) but overal is not a big issue...

when he loses control though it gets very bad very fast...

We were on a 2 hour flight this summer, and when we got on the plane

his temp was 100, when we got off the plane it was 107. Initially i

was told that 107 was impossible, but they confirmed it at the ER,

so I guess with our kids its not...

anyways, I dont have a cooling vest or anything of the sort, however

we live in Canada and had a rather cold summer, so it hasnt been a

big problem this year. BRandon in 22 months old, and Im not

exagerating when i say he spent most of the warmer days wearing

nothing but a diaper... any clothes at all and he would overheat.

I may be looking into a cooling vest for next summer if he continues

to have issues with heat.

I myself have heat issues, however my body temp never seems to go

too high (its low to start with). I had a sweat test done last year

and it showed that i have large areas of my body that dont sweat, so

that probably explains why i dont tolerate the heat well... i

ALWAYS have ice water or juice with ice in it... Same with ,

on the rarer hot days, we would make sure he always had a bottle

with juice and ice cubes available... he drank alot, and i think it

went a long way to keep him cool.

sorry, I guess i dont have much advice...

Keely

>

> Connor has a problem with controlling his heat. He was always a

baby

> that kicked off any blankets that were put on him. But since he

has

> exhibited his mitochondrial related problems this issue has become

> more severe and more important.

>

> If we put any blankets on him or we are holding him in our arms he

> gets sopping wet. In South Africa we are heading into Summer,

which

> gets very hot and obviously this is going to become more of an

issue.

>

> Is there any thing out there that can be done for him apart from

> keeping him cool with few clothes and air conditioning. Those that

> have similar problems what do you do?

>

>