and the hits just keep on a comin

[Guest guest]

Since it has been almost 1 1/2 weeks since anything has gone totally

and completely out of whack, (you know, just the usual daily pain

numbness brain farts etc.), today I thought Id try something brand

new,,,,,,,,,,,,jes fer fun.

1 AM today I woke out of a dead sleep from both legs buzzing with

nerve pain, well shoot, this is new was my first thought, (well maybe

second behind damnit I was just about to get, wellll never mind, but

suffice it to say it was a good dream,,,,,,,,,until then!), I was kept

awake most of the rest of the night with the pain and numbness that

had until that moment only been in my hands and feet before.

When I got up around 6 I discovered that not only was I enjoying

neropathy in my lower legs but they were so painful to touch that the

water in the shower hurt. The rest of the day has been just as plesant

and since I work on my feet all day I learned early, (oh about 905

since I start at 9am) that my legs are also weak and shaky.

AAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHH I do love an adventure!!!!!!

still waiting for the neuro to call back & tell me what he wants to

do, at least I hope he wants to do something cuz if I have to spend

another day like this one Im likely to go postal on his ^$^&%&$!!!

[Guest guest]

Stu, I'm sure you have already told us, but are you on any meds for neuropathic pain, like Neurontin, Trileptal, Lyrica, etc? Had you been having any numbness, burning or other weird symptoms in your feet, or did this just start from out of the blue? I know my neuropathy came on slowly & intermittently, going from patchy numbness on the bottom of my feet to mild burning (like having my feet too close to a fire), then worse burning, feeling like little knives sticking in me, on to feeling like my feet were going to explode & not being able to stand even light blankets on my feet. Even washing between my toes used to be very painful; now that part's more numb. I suppose I should be grateful?!? Recently to add to the fun, I get intense itching in my feet, but nothing relieves it. Luckily it only lasts a few minutes--knock on wood--because I feel like screaming. So that's the story of my feet, in case you were curious.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: and the hits just keep on a cominDate: Tue, 15 May 2007 22:54:03 -0000

Since it has been almost 1 1/2 weeks since anything has gone totallyand completely out of whack, (you know, just the usual daily painnumbness brain farts etc.), today I thought Id try something brandnew,,,,,,,,,,,,jes fer fun.1 AM today I woke out of a dead sleep from both legs buzzing withnerve pain, well shoot, this is new was my first thought, (well maybesecond behind damnit I was just about to get, wellll never mind, butsuffice it to say it was a good dream,,,,,,,,,until then!), I was keptawake most of the rest of the night with the pain and numbness thathad until that moment only been in my hands and feet before.When I got up around 6 I discovered that not only was I enjoyingneropathy in my lower legs but they were so painful to touch that thewater in the shower hurt. The rest of the day has been just as plesantand since I work on my feet all day I learned early, (oh about 905since I start at 9am) that my legs are also weak and shaky.AAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHH I do love an adventure!!!!!!still waiting for the neuro to call back & tell me what he wants todo, at least I hope he wants to do something cuz if I have to spendanother day like this one Im likely to go postal on his ^$^ & % & $!!!

More photos, more messages, more storage—get 2GB with Windows Live Hotmail.

[Guest guest]

Rose

I am taking imiprimen (sp?) for the nerve pain, which worked great the

first two or three months but lately hasnt been working well at all.

Have had neuropathy in my hands and feet for 10 yeears or so, but

nothing like this has ever happened before.

[Guest guest]

Hi Rose, I was reading your reply to Stu. I know

about the itching in the feet and lowers legs. It is

insane, and and have clawed at the skin until I have

torn it. Lanacaine Maximum helps a little, but not

much. Grief don't we love our little chewies (sarc)

connie

--- Rose mamadogrose@...> wrote:

---------------------------------

Stu, I'm sure you have already told us, but are you on

any meds for neuropathic pain, like Neurontin,

Trileptal, Lyrica, etc? Had you been having any

numbness, burning or other weird symptoms in your

feet, or did this just start from out of the blue? I

know my neuropathy came on slowly & intermittently,

going from patchy numbness on the bottom of my feet to

mild burning (like having my feet too close to a

fire), then worse burning, feeling like little knives

sticking in me, on to feeling like my feet were going

to explode & not being able to stand even light

blankets on my feet. Even washing between my toes

used to be very painful; now that part's more numb. I

suppose I should be grateful?!? Recently to add to

the fun, I get intense itching in my feet, but nothing

relieves it. Luckily it only lasts a few

minutes--knock on wood--because I feel like screaming.

So that's the story of my feet, in case you were

curious.

Ramblin' Rose

Moderator

---------------------------------

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: and the hits just keep on

a comin

Date: Tue, 15 May 2007 22:54:03 -0000

Since it has been almost 1 1/2 weeks since anything

has gone totally

and completely out of whack, (you know, just the usual

daily pain

numbness brain farts etc.), today I thought Id try

something brand

new,,,,,,,,,,,,jes fer fun.

1 AM today I woke out of a dead sleep from both legs

buzzing with

nerve pain, well shoot, this is new was my first

thought, (well maybe

second behind damnit I was just about to get, wellll

never mind, but

suffice it to say it was a good dream,,,,,,,,,until

then!), I was kept

awake most of the rest of the night with the pain and

numbness that

had until that moment only been in my hands and feet

before.

When I got up around 6 I discovered that not only was

I enjoying

neropathy in my lower legs but they were so painful to

touch that the

water in the shower hurt. The rest of the day has been

just as plesant

and since I work on my feet all day I learned early,

(oh about 905

since I start at 9am) that my legs are also weak and

shaky.

AAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHH I do love an

adventure!!!!!!

still waiting for the neuro to call back & tell me

what he wants to

do, at least I hope he wants to do something cuz if I

have to spend

another day like this one Im likely to go postal on

his ^$^&%&$!!!

---------------------------------

More photos, more messages, more storage—get 2GB with

Windows Live Hotmail.

________________________________________________________________________________\

____

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Yahoo! Games.

http://sims.yahoo.com/

[Guest guest]

Hi

everyone, I know I’m not around much, but try to read. I take Lorazapam

when I get the itchy attacks as I call them, if I have been out in the sun for

any amount of time I get them bad, and have to take the drug, or go nuts, which

I still do at times too.

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Connie Griffis

Sent: Friday, July 06, 2007 8:09

PM

To: Neurosarcoidosis

Subject: RE:

and the hits just keep on a comin

Hi Rose,

I was reading your reply to Stu. I know

about the itching in the feet and lowers legs. It is

insane, and and have clawed at the skin until I have

torn it. Lanacaine Maximum helps a little, but not

much. Grief don't we love our little chewies (sarc)

connie

--- Rose <mamadogrose (AT) hotmail (DOT) com>

wrote:

---------------------------------

Stu, I'm sure you have already told us, but are you on

any meds for neuropathic pain, like Neurontin,

Trileptal, Lyrica, etc? Had you been having any

numbness, burning or other weird symptoms in your

feet, or did this just start from out of the blue? I

know my neuropathy came on slowly & intermittently,

going from patchy numbness on the bottom of my feet to

mild burning (like having my feet too close to a

fire), then worse burning, feeling like little knives

sticking in me, on to feeling like my feet were going

to explode & not being able to stand even light

blankets on my feet. Even washing between my toes

used to be very painful; now that part's more numb. I

suppose I should be grateful?!? Recently to add to

the fun, I get intense itching in my feet, but nothing

relieves it. Luckily it only lasts a few

minutes--knock on wood--because I feel like screaming.

So that's the story of my feet, in case you were

curious.

Ramblin' Rose

Moderator

---------------------------------

From: " lizzyandstu " <stumail (AT) email (DOT) com>

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: and the hits just keep on

a comin

Date: Tue, 15 May 2007 22:54:03 -0000

Since it has been almost 1 1/2 weeks since anything

has gone totally

and completely out of whack, (you know, just the usual

daily pain

numbness brain farts etc.), today I thought Id try

something brand

new,,,,,,,,,,,,jes fer fun.

1 AM today I woke out of a dead sleep from both legs

buzzing with

nerve pain, well shoot, this is new was my first

thought, (well maybe

second behind damnit I was just about to get, wellll

never mind, but

suffice it to say it was a good dream,,,,,,,,,until

then!), I was kept

awake most of the rest of the night with the pain and

numbness that

had until that moment only been in my hands and feet

before.

When I got up around 6 I discovered that not only was

I enjoying

neropathy in my lower legs but they were so painful to

touch that the

water in the shower hurt. The rest of the day has been

just as plesant

and since I work on my feet all day I learned early,

(oh about 905

since I start at 9am) that my legs are also weak and

shaky.

AAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHH I do love an

adventure!!!!!!

still waiting for the neuro to call back & tell me

what he wants to

do, at least I hope he wants to do something cuz if I

have to spend

another day like this one Im likely to go postal on

his ^$^ & % & $!!!

---------------------------------

More photos, more messages, more storage—get 2GB with

Windows Live Hotmail.

__________________________________________________________

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play

Sims Stories at Yahoo! Games.

http://sims.yahoo.com/