Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Hey Guys, Just wanted to say Hi. I had to have a bone scan today because I have been having rib pain again. For those of you who know me, I had one back in 99 and though I had "spots" on my ribs they considered them old fractures. Today, I had to have some additional xrays to go with the bone scan of my left scapula. I wonder what excuse they are going to have this time for the "spots". I hate this waiting and once again I know there will be an excuse . It can't possibly sarcoid induce arthritis - that is what I will hear. I am so sick of this crap I could scream. But I won't - I will give the radiologist and my doctor the opportunity to redeem themselves. Well, enough of that crap. I will keep going as usual but from experience I don't expect much. Thanks. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Terry scream as loud as you want, we understand we'e all been there, so let it be loud and long. I have had this NS since 1971. I've sreamed many times. It also makes me feel better and alive. Judy in PA -- In Neurosarcoidosis , " mosaicgirl1 " wrote: > > > Hey Guys, > > Just wanted to say Hi. I had to have a bone scan today because I have > been having rib pain again. For those of you who know me, I had one > back in 99 and though I had " spots " on my ribs they considered them old > fractures. > > Today, I had to have some additional xrays to go with the bone scan of > my left scapula. I wonder what excuse they are going to have this time > for the " spots " . I hate this waiting and once again I know there will > be an excuse . It can't possibly sarcoid induce arthritis - that is > what I will hear. > > I am so sick of this crap I could scream. But I won't - I will give the > radiologist and my doctor the opportunity to redeem themselves. Well, > enough of that crap. I will keep going as usual but from experience I > don't expect much. > > Thanks. > > Terri G. [Grrr] > http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> > > > > > > > http://smiley.smileycentral.com/download/index.jhtml? partner=ZSzeb097_Z\ > SYYYYYYJJUS&utm_id=7925> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 Yeah, my bone scan found a fracture of my left foot was still fractured. They found a recently fractured rib (from a massage no less) and some sort of joint damage in my right foot. They figure some of the damage is sarcoidosis but a bone biopsy (any biopsy for that matter) has been ruled out as too dangerous. I hope the remicade will stop these problems from occurring. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 Judy, Can you hear me now? Terri G. > > > > > > Hey Guys, > > > > Just wanted to say Hi. I had to have a bone scan today because I > have > > been having rib pain again. For those of you who know me, I had one > > back in 99 and though I had " spots " on my ribs they considered them > old > > fractures. > > > > Today, I had to have some additional xrays to go with the bone scan > of > > my left scapula. I wonder what excuse they are going to have this > time > > for the " spots " . I hate this waiting and once again I know there > will > > be an excuse . It can't possibly sarcoid induce arthritis - that is > > what I will hear. > > > > I am so sick of this crap I could scream. But I won't - I will > give the > > radiologist and my doctor the opportunity to redeem themselves. > Well, > > enough of that crap. I will keep going as usual but from > experience I > > don't expect much. > > > > Thanks. > > > > Terri G. [Grrr] > > http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> > > > > > > > > > > > > > > http://smiley.smileycentral.com/download/index.jhtml? > partner=ZSzeb097_Z\ > > SYYYYYYJJUS&utm_id=7925> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 Terri, I was just wondering about your rib pain because I have been telling my doctor for about four months that I have right rib pain and he just doesn't think anything about it. I told him I was having neck and back pain also and he did nothing. He said I slept on my neck wrong or something. I told him it has been for about three months. I took it upon myself to see a neurologist and he did a MRI of the cervical spine which showed many lesions. My doctor just said well we found the sarcoid in a new place. I have it in my lungs, spleen, brain (over 20 lesions) and spine. He really does not care to check out where else it is. I just wish he would listen. Thanks Terri. Lori In Neurosarcoidosis , " mosaicgirl1 " wrote: > > > Hey Guys, > > Just wanted to say Hi. I had to have a bone scan today because I have > been having rib pain again. For those of you who know me, I had one > back in 99 and though I had " spots " on my ribs they considered them old > fractures. > > Today, I had to have some additional xrays to go with the bone scan of > my left scapula. I wonder what excuse they are going to have this time > for the " spots " . I hate this waiting and once again I know there will > be an excuse . It can't possibly sarcoid induce arthritis - that is > what I will hear. > > I am so sick of this crap I could scream. But I won't - I will give the > radiologist and my doctor the opportunity to redeem themselves. Well, > enough of that crap. I will keep going as usual but from experience I > don't expect much. > > Thanks. > > Terri G. [Grrr] > http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> > > > > > > > http://smiley.smileycentral.com/download/index.jhtml? partner=ZSzeb097_Z\ > SYYYYYYJJUS&utm_id=7925> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Marla, Thank you so much. That is so sweet. The care and consideration I get from this site is unbelievable and one of the things that keeps me going. Terri G. > > Terri, > > I haven't been around much, but I'm sorry you have to go through all this, > and will keep you in my prayers. Marla > > > > Marla Bramer > > " Faith sees the invisible, believes the incredible and receives the > impossible " > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1 > Sent: Wednesday, May 16, 2007 6:40 PM > To: Neurosarcoidosis > Subject: bone scan > > > > Hey Guys, > > Just wanted to say Hi. I had to have a bone scan today because I have been > having rib pain again. For those of you who know me, I had one back in 99 > and though I had " spots " on my ribs they considered them old fractures. > > Today, I had to have some additional xrays to go with the bone scan of my > left scapula. I wonder what excuse they are going to have this time for the > " spots " . I hate this waiting and once again I know there will be an excuse > . It can't possibly sarcoid induce arthritis - that is what I will hear. > > I am so sick of this crap I could scream. But I won't - I will give the > radiologist and my doctor the opportunity to redeem themselves. Well, > enough of that crap. I will keep going as usual but from experience I don't > expect much. > > Thanks. > > Terri G. http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> Grrr > > > > > > > > http://smiley.smileycentral.com/download/index.jhtml?partner=ZSzeb097_Z\ SYYY > YYYJJUS&utm_id=7925> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Lori, Sorry you are going through all of this and I wish he would listen. I am familiar with the not listening. Just keep telling them and maybe one of them will listen. I am not sure what else to say except I will say a prayer for one of them to help you. Terri G. > > > > > > Hey Guys, > > > > Just wanted to say Hi. I had to have a bone scan today because I > have > > been having rib pain again. For those of you who know me, I had one > > back in 99 and though I had " spots " on my ribs they considered them > old > > fractures. > > > > Today, I had to have some additional xrays to go with the bone scan > of > > my left scapula. I wonder what excuse they are going to have this > time > > for the " spots " . I hate this waiting and once again I know there > will > > be an excuse . It can't possibly sarcoid induce arthritis - that is > > what I will hear. > > > > I am so sick of this crap I could scream. But I won't - I will > give the > > radiologist and my doctor the opportunity to redeem themselves. > Well, > > enough of that crap. I will keep going as usual but from > experience I > > don't expect much. > > > > Thanks. > > > > Terri G. [Grrr] > > http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> > > > > > > > > > > > > > > http://smiley.smileycentral.com/download/index.jhtml? > partner=ZSzeb097_Z\ > > SYYYYYYJJUS&utm_id=7925> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2007 Report Share Posted May 18, 2007 Thanks Terri, your a sweetheart. > >Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: Re: bone scan >Date: Fri, 18 May 2007 12:19:50 -0000 > > >Lori, > >Sorry you are going through all of this and I wish he would listen. I >am familiar with the not listening. Just keep telling them and maybe >one of them will listen. I am not sure what else to say except I will >say a prayer for one of them to help you. > >Terri G. > > > > > > > > > > > > Hey Guys, > > > > > > Just wanted to say Hi. I had to have a bone scan today because I > > have > > > been having rib pain again. For those of you who know me, I had one > > > back in 99 and though I had " spots " on my ribs they considered them > > old > > > fractures. > > > > > > Today, I had to have some additional xrays to go with the bone scan > > of > > > my left scapula. I wonder what excuse they are going to have this > > time > > > for the " spots " . I hate this waiting and once again I know there > > will > > > be an excuse . It can't possibly sarcoid induce arthritis - that is > > > what I will hear. > > > > > > I am so sick of this crap I could scream. But I won't - I will > > give the > > > radiologist and my doctor the opportunity to redeem themselves. > > Well, > > > enough of that crap. I will keep going as usual but from > > experience I > > > don't expect much. > > > > > > Thanks. > > > > > > Terri G. [Grrr] > > > http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYJJUS> > > > > > > > > > > > > > > > > > > > > > http://smiley.smileycentral.com/download/index.jhtml? > > partner=ZSzeb097_Z\ > > > SYYYYYYJJUS&utm_id=7925> > > > > > > > > _________________________________________________________________ PC Magazine’s 2007 editors’ choice for best Web mail—award-winning Windows Live Hotmail. http://imagine-windowslive.com/hotmail/?locale=en-us&ocid=TXT_TAGHM_migration_HM\ _mini_pcmag_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Terri, I haven’t been around much, but I’m sorry you have to go through all this, and will keep you in my prayers. Marla Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of mosaicgirl1 Sent: Wednesday, May 16, 2007 6:40 PM To: Neurosarcoidosis Subject: bone scan Hey Guys, Just wanted to say Hi. I had to have a bone scan today because I have been having rib pain again. For those of you who know me, I had one back in 99 and though I had " spots " on my ribs they considered them old fractures. Today, I had to have some additional xrays to go with the bone scan of my left scapula. I wonder what excuse they are going to have this time for the " spots " . I hate this waiting and once again I know there will be an excuse . It can't possibly sarcoid induce arthritis - that is what I will hear. I am so sick of this crap I could scream. But I won't - I will give the radiologist and my doctor the opportunity to redeem themselves. Well, enough of that crap. I will keep going as usual but from experience I don't expect much. Thanks. Terri G. Quote Link to comment Share on other sites More sharing options...
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