Re: The 'call'

[Guest guest]

Hi Tony,

Your children and the rest of your family will be in my prayers. I

have 4 children and I know that is one phone call we all dread. I too

am on Cellcept...had to go off yesterday for a couple of days b/c my

cat bit me DEEP on my leg (I stepped on his tail in a dark room). On

antibx now and hopefully no infection will happen. The cellcept hasn't

been a problem for me but I will let you know how I do with it as time

goes on. It was prescribed by my s Hopkins Sarcoidosis doctor.

Stress does play a huge part in my flares so I also know what you mean

there.

May God bless you and your family,

Becky

>

> Last week I received the `call'. Not just any call…the one that's

> every parent's nightmare. The caller said that my daughter had been

> involved in a horrific automobile accident. A cold sweat rolled

> down my back as this stranger I would later come to know as an angel

> of mercy provided the location. That's about all I remember of the

> call or driving to the scene except for the knot in the pit of my

> stomach.

>

> Local law enforcement had cordoned off the road so I pulled off to

> the side. A female Sheriff began to lecture me on the way I was

> driving but I ran past her & skirted the barricade. Several

> ambulances were already on scene. I identified myself, then asked

> the nearest officer where my daughter was…he hesitated, then asked

> which one. The dark realization hit…both my children were in the

> vehicle.

>

> 18 hours after it all began, a broken bone, 5 dozen stitches and many

> cuts & bruises between them, my children were on their way home from

> the hospital. Yes, worse for wear but alive…I got down on my knees

> and thanked the Good Lord for all the angels he sent along the way to

> care for and watch over my children.

>

> I am so grateful that my children survived that little else matters.

> I know what lies ahead for them; months of healing for the physical

> injuries, perhaps longer for the mental scars left from the crash. I

> will be there for them to give love & support, and do whatever's

> necessary to see them well once again. This will undoubtedly test my

> metal as the stress of the event has brought on yet another flare.

>

> The symptoms are unmistakable… the throbbing from the granulomas

> erupting behind my ears & inside my nose, the headache from those

> forming in my sinus, the burning, migraine like pain in the back of

> my head, the ensuing vision issues, & the seething pain in my

> extremities. The right side of my face feels peculiar…I wonder out

> loud if I will once again lose the feeling on one side of my face. I

> don't need this crap right now…my children need me. I hate this

> disease and all the misery it brings with it. I will be damned if

> I'll let the beast pull me away from my children into the dark depths

> of his abyss.

>

> The jury is still out on the effectiveness of the Cellcept. Since I

> went into remission around the same time I began the meds, the only

> noticeable difference in how I feel has come from the side

> effects...the nausea, the shakes, the swollen feet & hands. I

> suppose the severity or lack there of from this event will eventually

> tell the tale of the drug's effectiveness. Fingers crossed that the

> poison I have chosen will be worth the risk…

>

[Guest guest]

-

Tony

Thank God the kids are ok, we all dread those kinds of calls, and many

of us have gone through what you did, we will be sure to say a prayer

for the girls quick healing. In the mean time, take care of

yoiurself, their going to need you more than ever for the next little

while.

God Bless

Stu

-- In Neurosarcoidosis , " Tony "

wrote:

>

> Last week I received the `call'. Not just any call…the one that's

> every parent's nightmare. The caller said that my daughter had been

> involved in a horrific automobile accident. A cold sweat rolled

> down my back as this stranger I would later come to know as an angel

> of mercy provided the location. That's about all I remember of the

> call or driving to the scene except for the knot in the pit of my

> stomach.

>

> Local law enforcement had cordoned off the road so I pulled off to

> the side. A female Sheriff began to lecture me on the way I was

> driving but I ran past her & skirted the barricade. Several

> ambulances were already on scene. I identified myself, then asked

> the nearest officer where my daughter was…he hesitated, then asked

> which one. The dark realization hit…both my children were in the

> vehicle.

>

> 18 hours after it all began, a broken bone, 5 dozen stitches and many

> cuts & bruises between them, my children were on their way home from

> the hospital. Yes, worse for wear but alive…I got down on my knees

> and thanked the Good Lord for all the angels he sent along the way to

> care for and watch over my children.

>

> I am so grateful that my children survived that little else matters.

> I know what lies ahead for them; months of healing for the physical

> injuries, perhaps longer for the mental scars left from the crash. I

> will be there for them to give love & support, and do whatever's

> necessary to see them well once again. This will undoubtedly test my

> metal as the stress of the event has brought on yet another flare.

>

> The symptoms are unmistakable… the throbbing from the granulomas

> erupting behind my ears & inside my nose, the headache from those

> forming in my sinus, the burning, migraine like pain in the back of

> my head, the ensuing vision issues, & the seething pain in my

> extremities. The right side of my face feels peculiar…I wonder out

> loud if I will once again lose the feeling on one side of my face. I

> don't need this crap right now…my children need me. I hate this

> disease and all the misery it brings with it. I will be damned if

> I'll let the beast pull me away from my children into the dark depths

> of his abyss.

>

> The jury is still out on the effectiveness of the Cellcept. Since I

> went into remission around the same time I began the meds, the only

> noticeable difference in how I feel has come from the side

> effects...the nausea, the shakes, the swollen feet & hands. I

> suppose the severity or lack there of from this event will eventually

> tell the tale of the drug's effectiveness. Fingers crossed that the

> poison I have chosen will be worth the risk…

>

[Guest guest]

We can only hope this stress doesn't put you over the edge too badly.

It's always one of my fears that we can't take care of our children

when they really need us. I sure wish I could be there in real life to

help you! I've been exactly where you are; my son got myocarditis 2

years ago when he was 16. It was caused by a virus attacking his

heart. We had 3 very scary days and I spent 5 days - 12 hours a day in

his hospital room. It was months after a major flare and I prayed I

would remain OK while he needed me so desperately. This disease SUCKS!

Thank heavens your children are OK. My niece suffered through a fatal

car crash coming home from a school athletic event and her school

provided counselling to her. I think it helped a lot.

[Guest guest]

Tony, I am so sorry that you & your kids have experienced this nightmare. I will lift all of you up in my thoughts & prayers. RoseRamblin' Rose

Moderator

From: "Tony"

Reply-To: Neurosarcoidosis

To: Neurosarcoidosis

Subject: The 'call'

Date: Thu, 17 May 2007 14:07:38 -0000

Last week I received the `call'. Not just any call…the one that's

every parent's nightmare. The caller said that my daughter had been

involved in a horrific automobile accident. A cold sweat rolled

down my back as this stranger I would later come to know as an angel

of mercy provided the location. That's about all I remember of the

call or driving to the scene except for the knot in the pit of my

stomach.

Local law enforcement had cordoned off the road so I pulled off to

the side. A female Sheriff began to lecture me on the way I was

driving but I ran past her & skirted the barricade. Several

ambulances were already on scene. I identified myself, then asked

the nearest officer where my daughter was…he hesitated, then asked

which one. The dark realization hit…both my children were in the

vehicle.

18 hours after it all began, a broken bone, 5 dozen stitches and many

cuts & bruises between them, my children were on their way home from

the hospital. Yes, worse for wear but alive…I got down on my knees

and thanked the Good Lord for all the angels he sent along the way to

care for and watch over my children.

I am so grateful that my children survived that little else matters.

I know what lies ahead for them; months of healing for the physical

injuries, perhaps longer for the mental scars left from the crash. I

will be there for them to give love & support, and do whatever's

necessary to see them well once again. This will undoubtedly test my

metal as the stress of the event has brought on yet another flare.

The symptoms are unmistakable… the throbbing from the granulomas

erupting behind my ears & inside my nose, the headache from those

forming in my sinus, the burning, migraine like pain in the back of

my head, the ensuing vision issues, & the seething pain in my

extremities. The right side of my face feels peculiar…I wonder out

loud if I will once again lose the feeling on one side of my face. I

don't need this crap right now…my children need me. I hate this

disease and all the misery it brings with it. I will be damned if

I'll let the beast pull me away from my children into the dark depths

of his abyss.

The jury is still out on the effectiveness of the Cellcept. Since I

went into remission around the same time I began the meds, the only

noticeable difference in how I feel has come from the side

effects...the nausea, the shakes, the swollen feet & hands. I

suppose the severity or lack there of from this event will eventually

tell the tale of the drug's effectiveness. Fingers crossed that the

poison I have chosen will be worth the risk…

Make every IM count. Download Messenger and join the i’m Initiative now. It’s free.

[Guest guest]

Tony, Thank God that the children areok. I know what you are going through, but I actually drove up on the accident. My son was in the intensive care unit, and his best friend had passed in his lap. I am not sure as to how the accident happened, but it will be a great eye opener for the children, and they may find it hard to sleep. So please take care of yourself as much as possible, as my prayers are not only going out to your children, but also to you for the strength to help them through it. Please keep the Faith. Lots of Love LynneTony wrote: Last week I received the `call'. Not just any call…the one that's every parent's nightmare. The caller said that my daughter had been involved in a horrific automobile accident. A cold sweat rolled down my back as this stranger I would later come to know as an angel of mercy provided the location. That's about all I remember of the call or driving to the scene except for the knot in the pit of my stomach. Local law enforcement had cordoned off the road so I pulled off to the side. A female Sheriff began to lecture me on the way I was driving but I ran past her & skirted the barricade. Several ambulances were

already on scene. I identified myself, then asked the nearest officer where my daughter was…he hesitated, then asked which one. The dark realization hit…both my children were in the vehicle.18 hours after it all began, a broken bone, 5 dozen stitches and many cuts & bruises between them, my children were on their way home from the hospital. Yes, worse for wear but alive…I got down on my knees and thanked the Good Lord for all the angels he sent along the way to care for and watch over my children.I am so grateful that my children survived that little else matters. I know what lies ahead for them; months of healing for the physical injuries, perhaps longer for the mental scars left from the crash. I will be there for them to give love & support, and do whatever's necessary to see them well once again. This will undoubtedly test my metal as the stress of the event has brought on yet another flare.

The symptoms are unmistakable… the throbbing from the granulomas erupting behind my ears & inside my nose, the headache from those forming in my sinus, the burning, migraine like pain in the back of my head, the ensuing vision issues, & the seething pain in my extremities. The right side of my face feels peculiar…I wonder out loud if I will once again lose the feeling on one side of my face. I don't need this crap right now…my children need me. I hate this disease and all the misery it brings with it. I will be damned if I'll let the beast pull me away from my children into the dark depths of his abyss. The jury is still out on the effectiveness of the Cellcept. Since I went into remission around the same time I began the meds, the only noticeable difference in how I feel has come from the side effects...the nausea, the shakes, the swollen feet & hands. I suppose the severity or lack there of

from this event will eventually tell the tale of the drug's effectiveness. Fingers crossed that the poison I have chosen will be worth the risk…

To My New Family

Love Lynne

Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center.

[Guest guest]

Tony,

I am so sorry that this happened to your daughters. I can 't imagine

what you are going through but be sure to try to take care of yourself

so you can be there for them. I know that is easier said than done.

Just know you are all in my prayers.

Terri G.

[Guest guest]

Tony,

I am so

sorry to hear what you and your family have been through. I too got the call

about a year ago, although it was my son who called, so I knew he was OK, he totaled

his girlfriends car, and we live in a small town, hit his high school

counselor, which really made him feel bad. The counselor had a broken wrist

but healed, and no other injuries, but I still I pray every night and ask God

to bring my children home safely, and when there in, I thank him. I am glad

your girls are OK, and will pray for quick healing.

I too am

in a flare, like you, my lesions start to swell and burn, only I have brought

my stress upon myself and need to deal with it myself, as I too do not want to

have to deal with this monster. My meds were all increased a couple of months

ago after seeing a neurologist and being told that I have loss in motor

function on the left side, I cannot lift my left leg up off the chair I am in, I

can not lift it up off the bed when lying down, and big steps like getting into

my husbands SUV I have to help my leg up, I see my doc next week to see where

we are going with meds, so I really need to get this stress under control. God

Bless, Marla

Marla

Bramer

" Faith

sees the invisible, believes the incredible and receives the impossible "

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Tony

Sent: Thursday, May 17, 2007 8:08

AM

To: Neurosarcoidosis

Subject: The

'call'

Last week I received the `call'. Not just any

call…the one that's

every parent's nightmare. The caller said that my daughter had been

involved in a horrific automobile accident. A cold sweat rolled

down my back as this stranger I would later come to know as an angel

of mercy provided the location. That's about all I remember of the

call or driving to the scene except for the knot in the pit of my

stomach.

Local law enforcement had cordoned off the road so I pulled off to

the side. A female Sheriff began to lecture me on the way I was

driving but I ran past her & skirted the barricade. Several

ambulances were already on scene. I identified myself, then asked

the nearest officer where my daughter was…he hesitated, then asked

which one. The dark realization hit…both my children were in the

vehicle.

18 hours after it all began, a broken bone, 5 dozen stitches and many

cuts & bruises between them, my children were on their way home from

the hospital. Yes, worse for wear but alive…I got down on my knees

and thanked the Good Lord for all the angels he sent along the way to

care for and watch over my children.

I am so grateful that my children survived that little else matters.

I know what lies ahead for them; months of healing for the physical

injuries, perhaps longer for the mental scars left from the crash. I

will be there for them to give love & support, and do whatever's

necessary to see them well once again. This will undoubtedly test my

metal as the stress of the event has brought on yet another flare.

The symptoms are unmistakable… the throbbing from the granulomas

erupting behind my ears & inside my nose, the headache from those

forming in my sinus, the burning, migraine like pain in the back of

my head, the ensuing vision issues, & the seething pain in my

extremities. The right side of my face feels peculiar…I wonder out

loud if I will once again lose the feeling on one side of my face. I

don't need this crap right now…my children need me. I hate this

disease and all the misery it brings with it. I will be damned if

I'll let the beast pull me away from my children into the dark depths

of his abyss.

The jury is still out on the effectiveness of the Cellcept. Since I

went into remission around the same time I began the meds, the only

noticeable difference in how I feel has come from the side

effects...the nausea, the shakes, the swollen feet & hands. I

suppose the severity or lack there of from this event will eventually

tell the tale of the drug's effectiveness. Fingers crossed that the

poison I have chosen will be worth the risk…