Muscle biopsy today done! were home!

[Guest guest]

Were home!!

surgery went well, was a champ!! didnt even cry when they

took him away!

it went longer than expected, but everything went great!

When he woke up he flipped, they figured out he probably had a

headache from the spinal tap (occasional side effect) and gave him

morphien... that knocked him out for a few hours and when he woke up

again he was good! so now were at home, hes walking and eating and

sleeping alot... grumpy but thats expected!

Im so relieved to have it all over...

We were told the initial results would be 3-4 weeks, so were hopeful

that well know whats up by Christmas (were not optomistic when it

comes to speed and tests... lol!)

Keely - Mom to , 22 months, suspected mito

[Guest guest]

Yea !! Good job Now the fun begins,,,the long wait,,followed by,,The

UNDIAGNOSIS. LOL Sorry,,that probably won't happen to ya'll,,but it always does

to us.

Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7 Autism,congenital

myopathy,possible mitochondrial disease,and JRA ~~ and Ethan 5 and 100 % BOY

________________________________________________________________

Get your name as your email address.

Includes spam protection, 1GB storage, no ads and more

Only $1.99/ month - visit http://www.mysite.com/name today!