Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 I wanted to see if anyone else has experienced really low body temperatures. I started with an extreme headache last night that subsides to a tolerable level with pain medicines. I feel terrible, but not much worse than usual - this morning I am hot - but according to my two thermomiters, my body remperature is 94. I know my hormones due to my pituitary being crushed by the granulomas are off - and the only thing I am treated for right now is the adrenals - so it could be from low thyroid and other hormones? I just do not know whether to be concerned that it is so low. Any thoughts would be very much appreciated. I hope you are having a good day. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2007 Report Share Posted May 19, 2007 This is too low-- and can cause hypothermia, so yes, it's a problem. It can also be a sign of a virus (you run low-grade fevers) rather than a bacterial infection (where you run a high fever). I had a dear friend that had MS, and because she could no longer control her body temp, every winter was a huge challenge- to keep her temp up. (She lived in Alaska to boot), so it was electric blankets, lots of hot tea, and a hot water bottle to hug. she still had to be closely monitored, because she had no sensation of anything being too hot-- so could have been easily burned. When your temp drops more than 4-5 degrees below normal, you can easily become hypothermic. Get it checked out. Take care, Tracie NS Co-owner/moderator************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Hi folks, Yeah, it's me "that weird lady" who tries all the "off the wall" stuff for my neurosarcoidosis problems...but couldn't help but add a comment or two... I suffer from low body temps and in the winter my temp runs around 95. I asked my doctor about this and he did not seem concerned about it, so either he did not believe me or if I am not complaining...it must be OK for me to be that way. Probably because I don't look sick enough to have so many ailments? Anywho, now that spring has sprung my temps are reaching almost 97!!!!Yahoo!!! My Sister also suffers with these low body temps and her doctor does not see a problem there either (different doctor too) So complain, complain, complain....may be the only way to get "real" help for those symptoms. My latest visit to a "specialist" did not find anything symptoms of my sarc but thinks my pains are triggered by "DEPRESSION"....so he prescribed generic Prozac for me to take...well I was willing to try anything at that point....but had to quit the pills because I became even more tired, my legs developed "charlie horses", and diarrhea came to visit every morning. Needless to say my depression got worse as well. I did like the way those pills disconnected the brain from my body though. Sorry for running on...hope everyone is having a nice Sunday....where ever you live. Sincerely, Claretiodaat@... wrote: This is too low-- and can cause hypothermia, so yes, it's a problem. It can also be a sign of a virus (you run low-grade fevers) rather than a bacterial infection (where you run a high fever).I had a dear friend that had MS, and because she could no longer control her body temp, every winter was a huge challenge- to keep her temp up. (She lived in Alaska to boot), so it was electric blankets, lots of hot tea, and a hot water bottle to hug. she still had to be closely monitored, because she had no sensation of anything being too hot-- so could have been easily burned.When your temp drops more than 4-5 degrees below normal, you can easily become hypothermic. Get it checked out.Take care,TracieNS Co-owner/moderator**************************************See what's free at http://www.aol.com. You snooze, you lose. Get messages ASAP with AutoCheck in the all-new Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Clare, Have you tried Celexa for depression? It works really well with people with chronic pain. It has a " cousin " that is newer but I can't think of the name right now. The rheumatologist I used to work for prescribed it to his pain patients a lot. Just and FYI. Terri > This is too low-- and can cause hypothermia, so yes, it's a problem. > It can also be a sign of a virus (you run low-grade fevers) rather than a bacterial infection (where you run a high fever). > I had a dear friend that had MS, and because she could no longer control her body temp, every winter was a huge challenge- to keep her temp up. (She lived in Alaska to boot), so it was electric blankets, lots of hot tea, and a hot water bottle to hug. she still had to be closely monitored, because she had no sensation of anything being too hot-- so could have been easily burned. > When your temp drops more than 4-5 degrees below normal, you can easily become hypothermic. Get it checked out. > > Take care, > Tracie > NS Co-owner/moderator > > > ************************************** > See what's free at http://www.aol.com. > > > > > --------------------------------- > You snooze, you lose. Get messages ASAP with AutoCheck > in the all-new Yahoo! Mail Beta. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 Hi Terri, Thanks for the info and no I have not tried Celexa...but my oldest son did. He was diagnoised with depression as well a number of years ago. It did not seem to help and made his digestion/bowel problems worse. He appears to have many of our (sis & I's) health problems as does another younger son. Looks as if we are all heading down the Sarcoid path...and no help as of yet....but I am not giving up hope. But I will mention the Celexa info to the doctor when I see him next. P.S. a friend suggested maybe I don't have neurosarcoidosis at all....but Sojorgren's syndrome instead....any comments? I guess they look sort of the same? She works in a medical clinic so maybe she has some inkling???? I wonder what the treatment for it is??? Thanks for caring and have a nice day! Sincerely, Claremosaicgirl1 wrote: Clare,Have you tried Celexa for depression? It works really well with peoplewith chronic pain. It has a "cousin" that is newer but I can't think ofthe name right now. The rheumatologist I used to work for prescribed itto his pain patients a lot.Just and FYI.Terri> This is too low-- and can cause hypothermia, so yes, it's a problem.> It can also be a sign of a virus (you run low-grade fevers) ratherthan a bacterial infection (where you run a high fever).> I had a dear friend that had MS, and because she could no longercontrol her body temp, every winter was a huge challenge- to keep hertemp up. (She lived in Alaska to boot), so it was electric blankets,lots of hot tea, and a hot water bottle to hug. she still had to beclosely monitored, because she had no sensation of anything being toohot-- so could have been easily burned.> When your temp drops more than 4-5 degrees below normal, you caneasily become hypothermic. Get it checked out.>> Take care,> Tracie> NS Co-owner/moderator>>> **************************************> See what's free at http://www.aol.com.>>>>> ---------------------------------> You snooze, you lose. Get messages ASAP with AutoCheck> in the all-new Yahoo! Mail Beta.> Shape Yahoo! in your own image. Join our Network Research Panel today! http://us.rd.yahoo.com/evt=48517/*http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 hot CTA = Join our Network Research Panel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Clare The neurologist put me on Cymbalta for my back pain even though it's an antidepressant. It helped ease the pain in my back the first night! I was very impressed.grannylunatic@... Give spam the boot. Take control with tough spam protectionin the all-new Yahoo! Mail Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Hi, That is great news. Have you had any side effects from the Cymbalta yet or are you still on them? My doctor said it might take 6 weeks for the full effect to kick in on those fluoxetine pills. I did feel more relaxed...well until the bathroom blues hit, and then the increased feeling of being unable to move. I'd tell myself a story...well got to fix lunch...half an hour later..there I was still sitting there. Funny but not funny either! I figure I might try talking to my doctor about some of the suggestions offered here...so thanks for the input on the matter. Sincerely, Clare wrote: Clare The neurologist put me on Cymbalta for my back pain even though it's an antidepressant. It helped ease the pain in my back the first night! I was very impressed.grannylunatic (AT) yahoo (DOT) com Give spam the boot. Take control with tough spam protectionin the all-new Yahoo! Mail Beta. Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 I haven't notice any side effects from the Cymbalta but that may be because I am noticing the side effects of the Cytoxan. Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://us.rd.yahoo.com/evt=48516/*http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 hot CTA = Join Yahoo!'s user panel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 i know i'm slow but i read your email. my heartrate causes mine to go that low. it freaks the nurses in the hospital out. Connie --- elizabethecowell elizwiz@...> wrote: > I wanted to see if anyone else has experienced > really low body > temperatures. I started with an extreme headache > last night that > subsides to a tolerable level with pain medicines. > I feel terrible, > but not much worse than usual - this morning I am > hot - but according > to my two thermomiters, my body remperature is 94. > I know my hormones > due to my pituitary being crushed by the granulomas > are off - and the > only thing I am treated for right now is the > adrenals - so it could be > from low thyroid and other hormones? I just do not > know whether to be > concerned that it is so low. Any thoughts would be > very much > appreciated. I hope you are having a good day. > Thanks! > > > ________________________________________________________________________________\ ____ Sucker-punch spam with award-winning protection. Try the free Yahoo! Mail Beta. http://advision.webevents.yahoo.com/mailbeta/features_spam.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2007 Report Share Posted July 7, 2007 Body temperature changes seem to be an issue for many of us. It could be the pituatary, the thyroid or adrenals. It could also be that you have a viral infection going on. Viral is low body temp, bacterial infections run a high fever. You may want to get it checked out- especially if you are on immunosupressants. Take care, Tracie NS Co-owner/moderator************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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