Appologies To My Pead From Connors Dad

[Guest guest]

Hi All

Those that have read my posts will be aware i've been unhappy with

my Neuro Pead for the service we've received. However since she has

returned from leave she has been extremely helpful and very carring

towards us and Connor. He has been put on medication to tackle the

pain and movement disorders he has been experiancing.

He was even put in hospital for 2 days for observation purposes and

I suspect, to give us a bit of a break from the pressure. Mom and

Connor had a private room and 24 hrs service. He's out today, which

is a good thing as it's his First birthday, which we intend to make

very special for him.

[Guest guest]

Can you tell me what meds he is on for his movement disorders? Our neuro. has said there are meds that could help Caden's movements, but he didn't tell us any names because we are due for more tests and can't start the meds until we have the tests done. He said they were anti-seizure meds. Is that what you guys use? Do they have any other affects on Connor, like making him sleep a lot or not be able to laugh and smile? I don't want to give them to Caden if they will make him a "zombie." Any info would help. Glad you guys got a break from the pressure, but glad he's getting out of the hospital. My Caden's 1st b-day is tomorrow!!! Have a great time!

Vicki ~ mom to Caden (1 yr. old tomorrow!) possible mito

Appologies To My Pead From Connors Dad

Hi AllThose that have read my posts will be aware i've been unhappy with my Neuro Pead for the service we've received. However since she has returned from leave she has been extremely helpful and very carring towards us and Connor. He has been put on medication to tackle the pain and movement disorders he has been experiancing. He was even put in hospital for 2 days for observation purposes and I suspect, to give us a bit of a break from the pressure. Mom and Connor had a private room and 24 hrs service. He's out today, which is a good thing as it's his First birthday, which we intend to make very special for him.Please contact mito-owner with any problems or questions.

[Guest guest]

Hi Vicki

I will find out what the meds are called however the one thing that Connor does not have is seizures. His meds are more for his uncontrolled movements which cause him to move I guess the best way to call it is spastically and involves his whole body...if left uncontrolled it builds him up into a state which causes all sorts of other problems.

One med tackles the movement and the other any pain. They are a huge step up from the med we were originally given "Valagen Forte" (probally called something else in the U.S.) which basically nocked him out. We hated doing that to him but the other option was even worse.

Appologies To My Pead From Connors Dad

Hi AllThose that have read my posts will be aware i've been unhappy with my Neuro Pead for the service we've received. However since she has returned from leave she has been extremely helpful and very carring towards us and Connor. He has been put on medication to tackle the pain and movement disorders he has been experiancing. He was even put in hospital for 2 days for observation purposes and I suspect, to give us a bit of a break from the pressure. Mom and Connor had a private room and 24 hrs service. He's out today, which is a good thing as it's his First birthday, which we intend to make very special for him.Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.