Re: Krystena- COQ10 level questions

[Guest guest]

We get our COQ10 Liquid from the Mayo pharmacy and I know Dr. Whiteman said

we could trust the meds that came from the Mayo pharmacy were good and was

pleased we were getting our meds there. Our COQ10 comes originally from

Pharmacal Group, Inc. Asenath is supposed to takes a large dose

daily because her levels were low before we began them, but I would have to

dig the results up to know what all the levels said. She is supposed to get

210 mg per day, but with all the vomiting that she has and our moving around

her meds to see if it makes a difference, she presently is getting about

half that daily.

My concern with her having that high of numbers is due to the note

below the labs which indicated too high of levels could indicate several

things including diabetes mellitus, metabolic syndrome, and related

cardiovascular disease, or may be as a result of the body's compensatory

response to offset the effects of lipid peroxidation or other atherogenic

factors. Not quite sure what the later part means.

I am happy the numbers are higher rather than low for sure and I am

wondering if maybe she is just not handling the volume of the COQ10 causing

her to vomit so frequently. She seems to be nauseous all the time, but then

after giving her the med, within one hour she will ogten vomit. It has been

very frustrating as we changed from the pill form to the liquid AND added

liquid Vitamin E around the time her vomiting began and we are trying to

figure out if one or the other or neither is the starting cause of her

cyclic vomiting. The nausea even before giving the meds makes me assume she

still has an issue, but the oils in these two meds sets her off I believe.

I HAVE to talk to Dr. Whiteman because if Asenath really needs this much she

presently NOT getting it. But if she can get by with less that I think it

would be best.

Thanks for letting me know your experience with COQ10 and the

similarities in our kids' numbers. I may look at Epic's COQ10 to see if

they are actually the same or not.

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

COQ10 level questions

I received a copy of some labs that were done recently and was surprised

by

Asenath's COQ10 levels.

Her COQ10 total was 8.052 (ref. range .500-1.500) HIGH

her COQ10 Reduc. level was 7.494 (ref. level .480-1.450) HIGH

her Q10 Chol. index was 5.478 (ref. range .300-.800) HIGH

and her COQ10 % reducd. level was .931 (ref. rage .940-.980 LOW

Anyone know why these levels might be sooooo high? The numbers are high

even though Asenath hasn't been able to keep the COQ10 down most days so I

doubt it would be her taking too much of it, but I am open to your

thoughts.

I would ask Dr. Whiteman but he hasn't called me back and I have been

trying

to reach him for almost 2 months now!!

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma,

trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Please contact mito-owner with any problems or questions.