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Mito and bad teeth?

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Does mitochondrial disease cause bad teeth? My son, who is five and has suspected mito, has a broken molar. It looks like there was a small pit there, I had seen it before, but I just happened to look in there today and one side of the molar is broken off. He also has quite a few small brown pits in his other molars. We brush twice a day, use a fluoride treatment, drink mostly water, and he doesn't even like sweets! The only meds he takes is Carnitor. He also has no enamel on his two bottom teeth. Could that also be related to the mito?

Something else I've been wondering...I've heard that many mito children have high arched palates. Devin does for sure! Does that sound familiar to anyone else?

e *Ü*

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I don't know about teeth but Sheldon has a very high

palate.

Does mitochondrial

disease cause bad teeth? My son, who is five and has suspected mito,

has a broken molar. It looks like there was a small pit there, I had

seen it before, but I just happened to look in there today and one

side of the molar is broken off. He also has quite a few small brown

pits in his other molars. We brush twice a day, use a fluoride

treatment, drink mostly water, and he doesn't even like sweets! The

only meds he takes is Carnitor. He also has no enamel on his two

bottom teeth. Could that also be related to the

mito?

Something else I've

been wondering...I've heard that many mito children have

high arched palates. Devin does for sure! Does that sound

familiar to anyone else?

e

*Ü*

Please contact mito-owner with any problems or

questions.

Yahoo!

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Maddie has an extremely high arched palate! Her teeth are very crowded, but that’s about it.

Holly

Re: Mito and bad teeth?

I don't know about teeth but Sheldon has a very high palate.

Does mitochondrial disease cause bad teeth? My son, who is five and has suspected mito, has a broken molar. It looks like there was a small pit there, I had seen it before, but I just happened to look in there today and one side of the molar is broken off. He also has quite a few small brown pits in his other molars. We brush twice a day, use a fluoride treatment, drink mostly water, and he doesn't even like sweets! The only meds he takes is Carnitor. He also has no enamel on his two bottom teeth. Could that also be related to the mito?

Something else I've been wondering...I've heard that many mito children have high arched palates. Devin does for sure! Does that sound familiar to anyone else?

e *Ü*

Please contact mito-owner with any problems or questions.

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All three of my kids have mito and high arched palates, they also have pegged teeth,lots of cavities, and my son is missing most of his teeth.

he only has 6 adult teeth and is missing bone.

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Thanks Stacey. Did you know that the high palate was part of the mito? All my son's doctors know about it, but none ever said it's related to the mito. I thought that was quite interesting.

e

Re: Mito and bad teeth?

I don't know about teeth but Sheldon has a very high palate.

Does mitochondrial disease cause bad teeth? My son, who is five and has suspected mito, has a broken molar. It looks like there was a small pit there, I had seen it before, but I just happened to look in there today and one side of the molar is broken off. He also has quite a few small brown pits in his other molars. We brush twice a day, use a fluoride treatment, drink mostly water, and he doesn't even like sweets! The only meds he takes is Carnitor. He also has no enamel on his two bottom teeth. Could that also be related to the mito?

Something else I've been wondering...I've heard that many mito children have high arched palates. Devin does for sure! Does that sound familiar to anyone else?

e *Ü*

Please contact mito-owner with any problems or questions.

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Yep, Devin has that high arched palate and crowded teeth too. The dentist is financing his next vacation from my son's dental work alone! Ugh!

Thanks for your help. I appreciate it.

e

Re: Mito and bad teeth?

I don't know about teeth but Sheldon has a very high palate.

Does mitochondrial disease cause bad teeth? My son, who is five and has suspected mito, has a broken molar. It looks like there was a small pit there, I had seen it before, but I just happened to look in there today and one side of the molar is broken off. He also has quite a few small brown pits in his other molars. We brush twice a day, use a fluoride treatment, drink mostly water, and he doesn't even like sweets! The only meds he takes is Carnitor. He also has no enamel on his two bottom teeth. Could that also be related to the mito?

Something else I've been wondering...I've heard that many mito children have high arched palates. Devin does for sure! Does that sound familiar to anyone else?

e *Ü*

Please contact mito-owner with any problems or questions.

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> e *Ü*

Our dentist does believe the mito causes bad teeth in that the

chemical balance that is required to form the enamel properly is

sometimes affected. Evidently the enamel is a delicate balance of

crystaline structures which are formed while you are very young.

Some the doctors don't think mito makes a difference.

Our son has very " soft " teeth and we have to watch for cavities. Also

he was taking a medicine which caused him to throw up a lot when he

had his baby teeth. Stomach acid is very hard on teeth!! We have had

many teeth pulled, many teeth capped, many teeth filled. In addition

to the bad teeth, my son has a small jaw. I think he only lost 2

teeth the normal way. All the rest had to be taken.

Twana

> Does mitochondrial disease cause bad teeth?

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I would say yes teeth and mito go hand in hand. My son Josh age 8 just had over $4000.00 dollars of dental work done, we have no dental ins nor do we have state help anymore.

He had to have 7 teeth pulled they were decaying very badly, and cap the rest of his teeth so he could even eat. He dose not have any enamel on his teeth, has been on a basic cocktail for several years. And a seizure med. as well since age 2. I had sent a question to the MDA web site on this topic and it came back with the polling in the mouth, and they also said with this disease, some kid's cant fight off a certain bacteria that is in their mouth. Therefore bad teeth. I hope this has helped.

Patty and son Josh

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Hi,

I have been putting off taking to the dentists cause I am afraid of how

she will react. How do the dentists do it with kids who have been through so

much already? Do they put them to sleep? I mean I hate the dentist I cant

imagine how Niki will handle the dentist. Besides the fact it takes three of us

to hold her down just when her tube needs to be changed.

One more question...are any of you having problems with the NG tube the mickey

tube. It seems that Nikis' stomach acids are eating the ballon portion. IT is

causing the tube to stick out way to much as if it is going to fall. I just saw

the surgeon the other day and he was amazed at the stomach acids eating her

ballon the way it did. But he assured me the tube would be fine. However it is

still sticking out bad. Anyway have any ideas?

s mom complex one

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My son's stomach acids wore down the balloons also. We were changing it

daily. Finally they put a Bard in. It's just like a mickey, but you don't

have to deal with the balloon. It is a bar that keeps it in place. It only

has to be changed once a year. The GI doc is the one who changes it. This

had worked out great for us.

Re: Mito and bad teeth?

>

> Hi,

> I have been putting off taking to the dentists cause I am afraid of

how she will react. How do the dentists do it with kids who have been

through so much already? Do they put them to sleep? I mean I hate the

dentist I cant imagine how Niki will handle the dentist. Besides the fact

it takes three of us to hold her down just when her tube needs to be

changed.

>

> One more question...are any of you having problems with the NG tube the

mickey tube. It seems that Nikis' stomach acids are eating the ballon

portion. IT is causing the tube to stick out way to much as if it is going

to fall. I just saw the surgeon the other day and he was amazed at the

stomach acids eating her ballon the way it did. But he assured me the tube

would be fine. However it is still sticking out bad. Anyway have any ideas?

>

> s mom complex one

>

>

>

> Please contact mito-owner with any problems or questions.

>

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I have 2 pegged teeth (capped) and my front teeth are so badly

cracked (verticle cracks from bottom to top) that my dentist said if

they were to be pulled, they would likely be in 5 or 6 pieces each...

just last night i was eating a piece of toast, and a decent sized

chip came off my front tooth...

I just assumed i had weaker teeth, but never related it to anything

else...

> I would say yes teeth and mito go hand in hand. My son Josh

age 8 just

> had over $4000.00 dollars of dental work done, we have no dental

ins nor do we

> have state help anymore.

> He had to have 7 teeth pulled they were decaying very badly,

and cap the

> rest of his teeth so he could even eat. He dose not have any

enamel on his

> teeth, has been on a basic cocktail for several years. And a

seizure med. as well

> since age 2. I had sent a question to the MDA web site on this

topic and it

> came back with the polling in the mouth, and they also said with

this disease,

> some kid's cant fight off a certain bacteria that is in their

mouth. Therefore

> bad teeth. I hope this has helped.

>

>

> Patty and son Josh

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