Sweating

[Guest guest]

Hi Susiecue,

Lucy here, I have been bothered with the sweating problem for a long time.

It is so embarrassing and makes you feel so yucky! I once thought that it

was because of antihistamines that I take all of the time. Now, I kinda

wonder if the RP might have something to do with it. Most of my sweating is

on my face and head. My hair stays short for that very reason, because my

hair is going to be wet just like I just washed it. The least little

exertion would bring on the " water " .

Hope this helps some. I know what you are going through.

Love and Prayers, Lucy

Sweating

> I don't know if I've asked this before but are any of you bothered by

> horrendous sweating. Since this all started in September I have been

having

> a hell of a time with sweating. It is like someone turned on a faucet at

> the top of me head. It just pours off of me, soaks my hair, runs down my

> back & front, soaks my shirt, bra, jacket etc. I was at the grocery Weds.

&

> one of the baggers came to see if I was alright because I was sweating so

> profusely. I was also just standing there trying to think if I had

> everything, so maybe they thought I was having a heart attack or

something.

> I use Viva paper towels which hold up very well & I can soak one in 5

> minutes wiping the sweat just from my head. I haven't been too bad at

> night, but that was before I went back up on 60 of pred yesterday.

>

>

> Went for breakfast this morning as we do every Saturday & then to do a

> little shopping since my hubby was with & drove. Felt not too shabby when

> we got to the mall but I had to stop & wait at one of the other entrances

> because I could not make it back to the store. Were there maybe an hour.

> Again there I was mopping up sweat. It's so frustrating. If worse comes

to

> worse, I'm making a list & sending my hubby out.

>

> I hate to sound like I whine a lot but I don't know where else to turn

with

> my questions. I feel sorry for my hubby because he is stuck picking up

the

> slack that I can't do. At least my tree is up & decorated & the outside

> decorations are up thanks to him & my youngest daughter.

>

> Thanks for any light you can shed.

>

> Love,

>

> Susiecue

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Hi Susiecue,

Lucy here, I have been bothered with the sweating problem for a long time.

It is so embarrassing and makes you feel so yucky! I once thought that it

was because of antihistamines that I take all of the time. Now, I kinda

wonder if the RP might have something to do with it. Most of my sweating is

on my face and head. My hair stays short for that very reason, because my

hair is going to be wet just like I just washed it. The least little

exertion would bring on the " water " .

Hope this helps some. I know what you are going through.

Love and Prayers, Lucy

Sweating

> I don't know if I've asked this before but are any of you bothered by

> horrendous sweating. Since this all started in September I have been

having

> a hell of a time with sweating. It is like someone turned on a faucet at

> the top of me head. It just pours off of me, soaks my hair, runs down my

> back & front, soaks my shirt, bra, jacket etc. I was at the grocery Weds.

&

> one of the baggers came to see if I was alright because I was sweating so

> profusely. I was also just standing there trying to think if I had

> everything, so maybe they thought I was having a heart attack or

something.

> I use Viva paper towels which hold up very well & I can soak one in 5

> minutes wiping the sweat just from my head. I haven't been too bad at

> night, but that was before I went back up on 60 of pred yesterday.

>

>

> Went for breakfast this morning as we do every Saturday & then to do a

> little shopping since my hubby was with & drove. Felt not too shabby when

> we got to the mall but I had to stop & wait at one of the other entrances

> because I could not make it back to the store. Were there maybe an hour.

> Again there I was mopping up sweat. It's so frustrating. If worse comes

to

> worse, I'm making a list & sending my hubby out.

>

> I hate to sound like I whine a lot but I don't know where else to turn

with

> my questions. I feel sorry for my hubby because he is stuck picking up

the

> slack that I can't do. At least my tree is up & decorated & the outside

> decorations are up thanks to him & my youngest daughter.

>

> Thanks for any light you can shed.

>

> Love,

>

> Susiecue

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Dear Glenda, before I was diagnosed in 98, I got sinus infections,

bronchitius and all sorts of infections. So I did take echeniacia, flared

like crazy. That in fact was probably in 97. It does boost the immune system

so you are one smart person not to take it.

Geeze why do we need a doctor if he gives us wrong infromation. Heck, he may

need a vacation and wants you to pay for it.

We need to be aware and somewhat treat ourselves.

Smart Girl.....Love, Sue M

[Guest guest]

Dear Glenda, before I was diagnosed in 98, I got sinus infections,

bronchitius and all sorts of infections. So I did take echeniacia, flared

like crazy. That in fact was probably in 97. It does boost the immune system

so you are one smart person not to take it.

Geeze why do we need a doctor if he gives us wrong infromation. Heck, he may

need a vacation and wants you to pay for it.

We need to be aware and somewhat treat ourselves.

Smart Girl.....Love, Sue M

[Guest guest]

Susiecue.. I have been bothered with sweating for a long time. I always

mention it to the drs and never get a response. LOL I have most of mine at

night, and only a few during the day... It is a horrible feeling. Have you

had your hormones checked recently? I've got no estorgen in my body even

though I'm on estrogen pills. LOL go figure... When someone figures it out

let me know.

Liz, I think you are right about the sweating... I haven't really been sick

with a cold or anything else since I've been sweating... Maybe I don't want

to stop. LOL

hugs

[Guest guest]

Susiecue.. I have been bothered with sweating for a long time. I always

mention it to the drs and never get a response. LOL I have most of mine at

night, and only a few during the day... It is a horrible feeling. Have you

had your hormones checked recently? I've got no estorgen in my body even

though I'm on estrogen pills. LOL go figure... When someone figures it out

let me know.

Liz, I think you are right about the sweating... I haven't really been sick

with a cold or anything else since I've been sweating... Maybe I don't want

to stop. LOL

hugs

[Guest guest]

Susiecue,

Yes this has come up before but I think you are new so glad you asked. I think it is the side effects of the pred. I sweat worse when I was on it. I don't have to take it all the time only when I have flares.

This is the weird part for me. I was the type of person who never sweat much. I mean I didn't have to wear deodorant. I hardly sweat. Now I have to wear deodorant and I sweat everywhere.LOL Oh well if that is the least of the side effects there are worse things.

Don't feel bad because you aren't able to do as much as you use to. It will take time to get used to it but it will come. I still hate not being able to do what I used to do but I would rather be safe than sorry.

For instance.... My PCP has tried twice now to get me to take echanasia(sp) I told him I couldn't this time because it builds up the immune system and it says right on the bottle not to take it if you have a suppressed immune system. He said it doesn't build it up that much and it shouldn't hurt me. I told him that the RP is being quiet and that I didn't care to play games with it. I told him I would rather live with a cold/infection instead of the RP.

I think the hardest part for us RP's is learning to take things easier and taking care of ourselves. Once you do I think you will find that you RP will slow down. I know stress is my biggest problem! I am doing better on handling that but it still gets the better of me at times.

Take care and I will be sending good thoughts and prayers your way. Never feel bad about posting your problems here! That is what this group is for helping each other. This time it is just your turn!

Lots of LoveGlenda**Yesterday is history...Tomorrow was a mystery...Today is a gitt**

[Guest guest]

Susiecue,

Yes this has come up before but I think you are new so glad you asked. I think it is the side effects of the pred. I sweat worse when I was on it. I don't have to take it all the time only when I have flares.

This is the weird part for me. I was the type of person who never sweat much. I mean I didn't have to wear deodorant. I hardly sweat. Now I have to wear deodorant and I sweat everywhere.LOL Oh well if that is the least of the side effects there are worse things.

Don't feel bad because you aren't able to do as much as you use to. It will take time to get used to it but it will come. I still hate not being able to do what I used to do but I would rather be safe than sorry.

For instance.... My PCP has tried twice now to get me to take echanasia(sp) I told him I couldn't this time because it builds up the immune system and it says right on the bottle not to take it if you have a suppressed immune system. He said it doesn't build it up that much and it shouldn't hurt me. I told him that the RP is being quiet and that I didn't care to play games with it. I told him I would rather live with a cold/infection instead of the RP.

I think the hardest part for us RP's is learning to take things easier and taking care of ourselves. Once you do I think you will find that you RP will slow down. I know stress is my biggest problem! I am doing better on handling that but it still gets the better of me at times.

Take care and I will be sending good thoughts and prayers your way. Never feel bad about posting your problems here! That is what this group is for helping each other. This time it is just your turn!

Lots of LoveGlenda**Yesterday is history...Tomorrow was a mystery...Today is a gitt**

[Guest guest]

In a message dated 4/21/2003 11:36:00 AM Eastern Standard Time,

clbarker@... writes:

> but I can't seem to get them under control and I

> never know when they are going to come or go.

I have the same thing, but I don't bother trying to figure it out.

Fay Bayuk

**300/173

10/23/01

Dr.

Open RNY 150 cm

[Guest guest]

In a message dated 4/21/2003 11:36:00 AM Eastern Standard Time,

clbarker@... writes:

> but I can't seem to get them under control and I

> never know when they are going to come or go.

I have the same thing, but I don't bother trying to figure it out.

Fay Bayuk

**300/173

10/23/01

Dr.

Open RNY 150 cm

[Guest guest]

How old are you??? And regardless of your age, have you had your

hormone levels checked? Ya know, as our bodies change and age so

does our ability to regulate our temperature. My normal temperature

has always been about 97.2 . . . when I am over 98 I feel like I have

a fever. I am 46 now and I find I am having more night sweats and

random sweats and when I take my temp it is above 98. I miss my

flannel night gowns that I only used to put away June July and August

(my husband doesn't)! Anyhow, have your hormone levels checked and

see what comes up or down as the case might be . . . also have them

check your thyroid as that change can cause sweats as well. Usually

sweats are a good thing as that means an efficient metabolism?!

) Vicki In CA (RNY 12/98)

Still here, but more of a lurker these days . . .

Lost 100% of excess weight and am maintaining easily.

> Hi - I haven't posted in a long time but lately I have been having

a

> terrible time with sweating. It is kind of like dumping and kind

of

> like hot flashes but I can't seem to get them under control and I

> never know when they are going to come or go. I just wondered if

> anyone else has encountered this problem and what they think caused

> them and what made them go away.

>

> Look forward to hearing from anyone. You can email me at

> clbarker@p...

>

> Thanks,

> Connie

[Guest guest]

How old are you??? And regardless of your age, have you had your

hormone levels checked? Ya know, as our bodies change and age so

does our ability to regulate our temperature. My normal temperature

has always been about 97.2 . . . when I am over 98 I feel like I have

a fever. I am 46 now and I find I am having more night sweats and

random sweats and when I take my temp it is above 98. I miss my

flannel night gowns that I only used to put away June July and August

(my husband doesn't)! Anyhow, have your hormone levels checked and

see what comes up or down as the case might be . . . also have them

check your thyroid as that change can cause sweats as well. Usually

sweats are a good thing as that means an efficient metabolism?!

) Vicki In CA (RNY 12/98)

Still here, but more of a lurker these days . . .

Lost 100% of excess weight and am maintaining easily.

> Hi - I haven't posted in a long time but lately I have been having

a

> terrible time with sweating. It is kind of like dumping and kind

of

> like hot flashes but I can't seem to get them under control and I

> never know when they are going to come or go. I just wondered if

> anyone else has encountered this problem and what they think caused

> them and what made them go away.

>

> Look forward to hearing from anyone. You can email me at

> clbarker@p...

>

> Thanks,

> Connie

[Guest guest]

In a message dated 4/22/2003 7:06:58 PM Pacific Standard Time,

ginjoint2000@... writes:

> Dear Vicki =

>

> Have you checked oout your sweats with your OBGYN?

>

Yes, I did , my labs are all normal and I am not in menopause. She said it is

probably perimenapause though. I can go on the pill to control it or just

live with it. I choose to live with it. It also has to do with my

metabolism speeding up greatly. I am always warm now as opposed to always

being cold when I was losing weight and my metabolism was slower from the low

caloric intake. In maintenance it takes a lot more calories to maintain if

there was no dieting involved, because there is no more excess body fat to

use up to meet the body's energy needs. We should get " hotter " eventually or

our metabolisms are not working right or we are in starvation mode

metabolically speaking.

) Vicki

[Guest guest]

In a message dated 4/22/2003 7:06:58 PM Pacific Standard Time,

ginjoint2000@... writes:

> Dear Vicki =

>

> Have you checked oout your sweats with your OBGYN?

>

Yes, I did , my labs are all normal and I am not in menopause. She said it is

probably perimenapause though. I can go on the pill to control it or just

live with it. I choose to live with it. It also has to do with my

metabolism speeding up greatly. I am always warm now as opposed to always

being cold when I was losing weight and my metabolism was slower from the low

caloric intake. In maintenance it takes a lot more calories to maintain if

there was no dieting involved, because there is no more excess body fat to

use up to meet the body's energy needs. We should get " hotter " eventually or

our metabolisms are not working right or we are in starvation mode

metabolically speaking.

) Vicki

[Guest guest]

Hi all. I am having a lot of problems with the "sweats". (I know Rosie you recommend your "special ice packs") But I have them in public a lot, too. It is embarrasing. I don't know if its from premenopause either. But I was wondering if anyone had any suggestions on what I could do for this, I would appreciate it. Its awful. Its not like hot flashes because it lasts longer. Thanks. Debbie Co-Moderator

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

I relate Debbie. According to my doctors, excessive sweats are an indication of increased sarcoidosis activity. I have a small fan I keep by me at home so when I start sweating, I am able to cool down at least to make me more comfortable. Ice packs on the wrists help too (something they do with runners to cool them down). It is embarrassing to be sweating bullets in public. I do this sometimes when I go to my appts. I had a total hyst in 1999 and never had a hot flash. Sometimes too I will go opposite with chills but at least people can't see that!Blessings,BeckyDebbie wrote: Hi all. I am having a lot of problems with the "sweats". (I know Rosie you recommend your "special ice packs") But I have them in public a lot, too. It is embarrasing. I don't know if its from premenopause either. But I was wondering if anyone had any suggestions on what I could do for this, I would appreciate it. Its awful. Its not like hot flashes because it lasts longer. Thanks. Debbie Co-Moderator Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers -

Check it out.

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[Guest guest]

Debbie, you will be glad to know that it has an official name: hyperhidrosis! Now, don't you feel better? 3 years ago, when I had my son's & daughter's weddings coming up in the summer and didn't want to have my hair & makeup dripping, I saw my dermatologist. He gave me a prescription for Robinul & I also decided to have Botox injections along the hairline of my forehead. It cost $500 & I likely won't ever do it again, but I was glad I did. The back of my head got wet, but everything that showed in photos looked fine. I did try the Robinul when I was in San for Ginny's wedding, because it was outside, at 6pm, late July. It did help, but I think I took too much because for a few hours I didn't perspire AT ALL, and actually got overheated. I think he had said to take 1-2 pills, and me being a big girl I figured I would need 2. Not! Hope this helps.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: SweatingDate: Thu, 24 May 2007 06:54:52 -0700 (PDT)

Hi all. I am having a lot of problems with the "sweats". (I know Rosie you recommend your "special ice packs") But I have them in public a lot, too. It is embarrasing. I don't know if its from premenopause either. But I was wondering if anyone had any suggestions on what I could do for this, I would appreciate it. Its awful. Its not like hot flashes because it lasts longer. Thanks.

Debbie

Co-Moderator

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

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[Guest guest]

Don't forget the little battery-operated fans at Walmart! Up here they sell them for $1.00, including batteries. They use 2 AA batteries & last quite awhile. I don't leave home without it, plus extra batteries. Also, in late summer they usually put them on sale for $.50, sometimes even $.25. I buy a bunch & give them as stocking stuffers! The other thing that is really helpful is the cool bands, I think they are called Aqua Bands at Walmart. They come in different colors & designs & you can wear it like a scarf on your neck, only it's cool.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: SweatingDate: Thu, 24 May 2007 07:26:00 -0700 (PDT)

I relate Debbie. According to my doctors, excessive sweats are an indication of increased sarcoidosis activity. I have a small fan I keep by me at home so when I start sweating, I am able to cool down at least to make me more comfortable. Ice packs on the wrists help too (something they do with runners to cool them down). It is embarrassing to be sweating bullets in public. I do this sometimes when I go to my appts. I had a total hyst in 1999 and never had a hot flash. Sometimes too I will go opposite with chills but at least people can't see that!Blessings,BeckyDebbie <rozebudz36 (AT) yahoo (DOT) com> wrote:

Hi all. I am having a lot of problems with the "sweats". (I know Rosie you recommend your "special ice packs") But I have them in public a lot, too. It is embarrasing. I don't know if its from premenopause either. But I was wondering if anyone had any suggestions on what I could do for this, I would appreciate it. Its awful. Its not like hot flashes because it lasts longer. Thanks.

Debbie

Co-Moderator

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

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[Guest guest]

Hi Debbie,

I am having the "sweats" that you describe also.

I just figured it was some of the meds that I am on.....???

I have no solution for you...........wish I did.

Hugs,

Darlene

NS Co-Owner/Moderator

(the invisible one......:-)......)

Sweating

Hi all. I am having a lot of problems with the "sweats". (I know Rosie you recommend your "special ice packs") But I have them in public a lot, too. It is embarrasing. I don't know if its from premenopause either. But I was wondering if anyone had any suggestions on what I could do for this, I would appreciate it. Its awful. Its not like hot flashes because it lasts longer. Thanks.

Debbie

Co-Moderator

Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

You couldn't do it in public but I squirt myself down with a bottle of water, including my head. After a bit it's like that cool you feel when you first get out of a pool. I leave the bra on damp too when I go to bed. Air conditioning doesn't do it and it makes my knees ache.grannylunatic@...

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us.

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[Guest guest]

Debbie,

I was able to get several of the neckerchiefs from Walmart that you put in cold water, they puff up, and then wring the water from them, and they stay cool for hours! I found them in the Sporting Goods Dept, around the football equipment.

I love em, the make it possible for me to be out in the heat at least for a short time.

Take care,

Tracie************************************** See what's free at http://www.aol.com.

[Guest guest]

Ok guys, I'm feeling left out, I don't sweat. The sarc in my lymphs make it so that I swell like all getout, but I rarely sweat. However, I still can't handle the heat.

's on high dose Warfarin, (Coumadin) and he's not comfortable unless it's 85+ degrees, he loves it when it hits 100. I keep telling him he can put on more clothes, but society requires I not go naked. Bummer.

Hugs,

Tracie************************************** See what's free at http://www.aol.com.

[Guest guest]

Awwwwww come on Tracie, start a new trend! Then we can all get naked & cool off!grannylunatic@...

You snooze, you lose. Get messages ASAP with AutoCheck in the all-new Yahoo! Mail Beta.

[Guest guest]

,

Hey - you guys keep your nakidity to yourself. I know that you guys

would not appreciate mine!

Terri

>

> Awwwwww come on Tracie, start a new trend! Then we can all get naked &

cool off!

>

>

> grannylunatic@...

>

> ---------------------------------

> You snooze, you lose. Get messages ASAP with AutoCheck

> in the all-new Yahoo! Mail Beta.

>

[Guest guest]

Awwwwww come on Tracie, start a new trend! Then we can all get naked & cool off!

Rosies bras and bra stories are enough for us-- we wouldn't want to blow out the computer monitors!!!!!!!! LOL!!!************************************** See what's free at http://www.aol.com.