Re: - mitochondrial disease/chromosome link

[Guest guest]

I am very interested in hearing more about your child's diagnosis and

symptoms as Asenath and Zipporrah, my two girls sound a lot like your child.

The regressions, episodes/strokes on both sides and/or one side is VERY

common in this household. If you want to send me your phone number too, I

would love to talk more. My e-mail address is: honeybear50317@...

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: mitochondrial disease/chromosome link

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> What is the chromosome deletion outreach? I'd love to get involved

> and learn more. We saw Dr. Parikh, he's new in Dr. Cohen's office.

> Is Dr. Gupta a genetist? Ask away with questions, we're not shy about

> sharing our story.

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> Please contact mito-owner with any problems or questions.

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