Re:- mitochondrial disease/chromosome link

[Guest guest]

What two types of brain disorders does she have? One of my daughter has CNS

vasculitis, a very rare, progressive narrowing of the major arteries. Most

of my girls' symptoms are listed below. I am very interested in hearing

more on this topic as well since the girls' specific type of Mito hasn't

been found yet. You can send me your phone number or get mine by writing to

me personally at honeybear50317@...

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach

issues, disautonomy, hypo & hypertonicity, migraines, possible seizures,

dumping syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Re: mitochondrial disease/chromosome link

>

> , thank you for your responese

>

> hailee (daughter) has feeding issues, oral issues, sensory integergation

> disorder, behavior issures, (severe) hypoglycmic, two brain disorders, 8

> types of seizures, low muscle tone, lack of reflexs, no working hormones,

> on total hormone replacement, energy issues, cant walk for far, a house is

> about it without getting tired, closed spina bifida, heart murmer, wide

> forehead, small eyes, has downs traits, but not downs, our list goes on..

> has come back with elevated ketosis issues, normal musccle biopsy, ect

> ect..

> she is 6 but mental 2-3 and looks about 3

> melissa

>

>

>

> Please contact mito-owner with any problems or questions.

>