Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Glad to hear that you can take home. I am always thinking of her and praying for continued improvement. Best wishes _________________________________________________________________ Get ready for school! Find articles, homework help and more in the Back to School Guide! http://special.msn.com/network/04backtoschool.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Glad to hear you will be coming home today but I know how the stomach issues must be causing you lots of stress. If you want to talk some more send me your phone number to honeybear50317@... and I will call you back sometime soon. Glad she continues to make some progress. Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (11 mon.) Mito, strokes, SID, GERD, 100% G-tube fed, asthma, trach issues, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) update Fri > > > Good morning > Lots of updates to pass along. is stable, is starting to > sign again, and is going home today. That's the good news. However, > the results of her manometry and upper GI are in, and the news is not > good. has gastroparesis and neuropathic pseudo obstruction. > Her guts just plain do not work. Also, her hernia is now a full > third of her stomach and is very floppy and waiting to strangulate. > The surgeon wanted to operate today but Dr. Korson felt that a Friday > afternoon was not the best time to do major surgery on a mito kid. > So we'll be returning to have it done on the 25th. > > has made lots of progress but she's still a very different > child from who she was in August. Her spunk is showing signs of > returning and she's telling me what she wants. I think her > difficulties will be more visible when we get home and she's > surrounded by toys that her hands just can't operate. She'll be > using a stander so that's one more piece of equipment in our tiny > house. Cathing is going well but it's one more thing to add to our > already overwhelming routine. Luckily our nursing hours have been > increased but that depends on the agency finding nurses to fill > them. > So here we go. Wish us luck. Our home computer died so we're using > the laptop most of the time. My email address is > mom2colemankidz3@.... > > Heidi, 's Mom > 2 years, complicated mito kid. > www.caringbridge.org/ma/heather > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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