Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 I have been following the questions dealing with eye exams over the last few days and just have a question or 2. Connor is just over 12 months old. He developed Nystagmus at arround 6 months. We had him checked at a Eye Doctor who said that the eye itself was fine, optic nerve etc and to come back for a follow up at 11 months. The just before we were gojng to take him Connor went rapidly downhill had an MRI done and Mito was strongly suspected. His current condition is that unless he is medicated durring the day (Valium)he has movement abnormalities, pulls horrible expressions,screams, has a severe hearing loss (not sure if it has got worse) etc,etc. Most of the time he appears to be in his own little world and is not interative with us unless we physically tickle him or something like that and then only sometimes. In the past before his episode and with the Nystagmus although he could not see far he definately could see as he was always fixated on persons faces, lights and followed movements. Since the episode if he sees at all I would say it is very minimal. The question is - should we take him back to the eye doctor for a follow up. If so what would be the benifit of this, is there anything apart from confirmation of the eyes having deteriated that can be gained from such a test. - And how would you test it, as if he's not medicated or sleeping it would be impossible to control him. Regards Quote Link to comment Share on other sites More sharing options...
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