Re: P. V. D. Posterior Vitreous Detachment and why...

[Guest guest]

Stu,

I can totally relate to your frustration. I was seeing my eye doctor after christmas time as I had lost my vision for close and they told me I had an eye infection, gave me eyedrops and told me to come back in a few days. I did that, changed the eye drops and I thought to myself after I left that I should go to an opthalmologist. Try to get into one during the holidays. Well I found one the next day, only to be diagnosed with optic neuritis and then MRIs to figure out the cause............But I was started on the 3 day IV treatments of solumedrol and then waited for a neurologist appointment. With my previous history of sarcoid in 1980 and the things I have had they finally made a diagnosis of NS. All my test results, spinal taps etc came back normal except for the MRI which showed 3 lesions. I know MS and NS have similar symptoms which is why it took them a long time to diagnose me.

I have half a mind to write a note to my eye doctor to ask for the payment to be waived since they did not pick up on the optic neuritis. I know the insurance paid their portion but I have been going there since 1980 and figure they should write it off.

KatSee what's free at AOL.com.

[Guest guest]

Stu,

You should try to find an ocular-immunologist that is familiar with all the effects of sarcoidosis and the eye. I found one on Dr.'s website. I think it's listed under the ocular immunology and uveitis foundation. He has a place where you can ask him questions and lots of information that I found very helpful. Good luck.

Bonnie BSee what's free at AOL.com.

[Guest guest]

Here is a site for eyemd. This explains PVD as well as many other of the eye conditions that can effect your vision.

http://www.eyemdlink.com/Condition.asp?ConditionID=497

Stu, it sounds like once again, you are in the "small percentage" that ends up with a retinal tear or hole that has effected your vision. A Retinal Specialist may be able to reattach the retina if the tear is small. It's a huge challenge, as most people aren't willing to be still and follow the post-op instructions-- it requires that you borrow or rent a massage table where you can be laying face down for extended periods of time for several weeks-- but it is possible-- and I've seen patients that have had excellant success. I'm not sure I would be a candidate, as I'm not that patient.

guys, Stu is right-- if you are seeing the old family optometrist-- OD--- change your eye care to an Ophthalmologist. This is an MD that specializes in eye diseases-- and yep, they still do the refraction that will give you new glasses, but they are trained in medicine first as an MD, then as an eye specialist-- they will notice the minor changes that signal glaucoma, dry eyes, optic neuritis, iritis and uveitis-- retinal or macular changes that most OD's don't address.

Hang in there Stu, I know that you are frustrated and down-right angry right now. It's hard not to buy into the "too late, so sorry" crap that your OD is feeding you-- but truly, stay positive-- you will get thru this.

Sincerely,

Tracie

NS Co-owner/moderator

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