Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Hi, Malisa, I saw your post and thought I would write. We take Daphne to CHOP to see some of her specialists. We are currently working with Paige Kaplan, in Metabolic/ Biochemical Genetics in searching for a diagnosis that would explain Daphne's medical issues (she just had her muscle biopsy last week) Daphne will also have heart surgery there within the next year. We absolutely love CHOP (aside from the fact that we'd rather not be at any hospital... but we have been so impressed with them). (mom to Daphne -- 1 year old with Infantile Spasms and Developmental Delays) > > In a message dated 10/15/2004 4:30:49 PM Eastern Standard Time, > Mito writes: > > There is also a doc at CHOP who used to work with Mayo > mito docs and know a lot. > > > > > > Hi Deb, > I am assuming you mean The Children's Hosp. of Phila's CHOP? Do you know the > name of the doc there that knows about mito? I'm curious since I work there > and live so close. > Thanks. > Malisa Quote Link to comment Share on other sites More sharing options...
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