guess I will stop posting

[Guest guest]

am done. To again involve the group in this is disrespectful and what brought us to this point to begin with. I am sorry to go.I tried to deal with this off group as it should be. Deb, grow up. Dawn

Sorry you feel that way dawn...that was also not my intent. However, the reason I brought it to the group is you said there was more people involved and I think if you are giong to treat someone that way you should do it publicly.

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!

[Guest guest]

I am done. To again involve the group in this is disrespectful and

what brought us to this point to begin with. I am sorry to go.

I tried to deal with this off group as it should be. Deb, grow up.

Dawn

[Guest guest]

Deb,

I for one am so sorry that this group of highly intelligent ladies is acting like this! Why can't we all handle a touchy subject with calmness and reason in our hearts and minds? This is rediculous! And for Ann to leave because of this, was so...dare I say it...childish?! I'm sorry, but if you don't want to discuss something like this, then don't! Don't participate in it or read it, just delete it! You can very easily see the subject line before you open the text! We have got to watch how we are becoming easily offended. This just doesn't make any sense! People get offended about something every single day, and sure they may rant and rave, but get over it! C'mon!

I know I'm the new kid on the block, and you all have helped me so much when I needed it, and for speaking out like this I'll probably be banished, but this is just not right! We're all adults here, and there is no need for acting this way! We all have enough stress in our lives, need we add more?

e

guess I will stop posting

Hi everyone

Gosh, this whole thing seems so juvenile but I got the email below from one of our listmates today. I was in utter shock as I read it. Somehow, despite all the other emails on stem cell and etc ended up being my fault. And it was brought to my attention that it is my fault that Anne left the group...because of ME.

First off Dawn, let me address some of the errors in your letter. I do NOT find a way to post everyday. In the past month I have posted six times and that's it. Three of those have been this week.

Secondly, I wrote Ann privately and apologized for any fault I had in the matter. I told her that I still believed that these issues (not politics, but religion and stem cell) were important to us. I explained, as I did on the list, that my thinking is that if you go to a church and are talking to people who are not dealing with the daily issues we are dealing with, they often don't get it. There used to be a mito-believers list...there might still be...but our views of God change as we try to wrap our minds around this illness. I told her that if I said anything personal or offensive, that it was NOT my intent. I hope she has forgiven me.

Also, I don't want Ann to leave and I do not feel like I am RIGHT. If you read my second post on the matter I said that I liked hearing others opinions on stem cells b/c I haven't really gotten all the info yet. I am an open-minded person and want to know how others see things...even about religion and even when I don't agree with them. I don't feel like I am right or wrong...I think there is room for all of us to have our own opinions and still be respectful of others.

If I have EVER come across as forcing religion on anyone, I am sorry. If you met me in person you would know that this is NOT my personality. Sometimes things are not communicated in email the way they would be in person. I have plenty of friends who don't believe in God or practice different religions so I really want to apologize if I EVER did that to anyone,,,because if I did, I wasn't even aware of it.

..

I have not remained in the group to sell my items...I remained to help others b/c disease course was very unique and quick and when others come around that are having similar situations I want to be there to help them. I have spent much of my own time and resources helping out other families after meeting them on the list...doing it off list. The signature is something I use in ALL my emails, personal and business (its set on default). I personally would have no issue with others that do it...in fact, there are others who do it. I have always visited sites b/c I want to be supportive of moms trying to stay home and run a business b/c they can't work b/c of thier child. Also, I have a page on my business about my family...people have done web searches on Mito and found that and written me and I have helped them. A girl joined the list recently because she found my site. I don't see what the big deal is...just ignore i! t. I guess that's what I do when people right things I don't agree with or when people do things that I think are inappropriate.

You obviously do want to fight or you wouldn't have written such a flaming email to me! I still can't believe it. Today is an extra hard day...all holidays are hard since is gone and its my birthday and THIS has been what I have been thiking about. When I saw the email I thought maybe you were going to see what we would do together to make sure Ann was okay...not blame the entire thing on me. By the way, Gwen started the post...you were the 5th person to respond to it and I was the 7th. The whole point of both of my posts were to say I DO NOT think that politics are important to us as a support group but I DO THINK that religion and stem cell research do affect us. I barely expressed an opinion outside of that. Gwen did tell me thank you for saying it had a place in the group...she then included some more political stuff which i OPTED NOT to read...and others could do the same! The discussion was almost 24 hours fro! m being over when Ann posted...everyone had moved on and were discussing stopping services. Who knows WHICH response upset Ann or if it was the collection. I don't know why this was pinned on me.

Dawn, you were the only one who posted a response to Ann on the list...did you write flaming email to everyone else who was part of the discussion. If she did, I hope you speak up about it.

I don't know who these mom(s) are that you are betting with but that statement was only made to make yourself look better and to hurt me. It was pointless.

So I guess I may continue to read for a short time, but I will not post on the list. Unless the other moms in dawns group tell me who they are, I might post to them privately some time if I have something to add, so just delete it if you in that group of moms. If everyone feels as you do, then I will unsub and ask Shirley or someone else to keep me posted on the families and children I have come to love and care about.

You guys helped me through a lot of stuff...but always, more important than the medical info was the support you gave on things like quality of life, family issues, hospice and death and yes, religion...those are the things I remember...not discussing gtubes and oxygen.

I care for you all...I wont post again unless I am wanted, which I see by some, I am not.

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!Please contact mito-owner with any problems or questions.

[Guest guest]

Hi e,

I haven't even read anything on the subject of stem cells as I have

been swamped with work, family and school, but I agree with you. I have

been on several lists where subjects have come up that has caused many a

heated debate and then people get all PO'd and leave. A good debate is

great, but if it starts getting personal then you just need to stop reading

the posts. It is childish to leave because she said this and he said that.

We are all adults and have many more important things to worry about than if

someone disagrees with us on stem cells or abortion or Kerry or Shrub! We

all have our own beliefs and we should all respect them. I have disagreed

with many people on subjects in the past. I stated my position, debated,

but ALWAYS respected the other person's opinion and never got mad because

s/he disagreed with me. If the discussion was getting to the point to where

I wished to no long participate, I just stopped posting on the subject and

deleted any new messages with that subject. Life is way too short to sweat

the small s*it, and EVERYTHING is small s*it in my life! Except my kids of

course!! If there is any banishing to be done, we can go together.

Sue & Jack, worn out parents to the greatests kids on earth, Las Vegas, NV--

(14) & Billy (13)--both with Leigh's Disease (?), MR (mild), g-tube.

Billy--fundo, trach (larynotracheomalacia), vent 24/7, spinal fusion,

baclofen pump. Chris-no left hip socket! Visit us!

http://members.cox.net/jscb

I for one am so sorry that this group of highly intelligent ladies is acting

like this! Why can't we all handle a touchy subject with calmness and reason

in our hearts and minds? This is rediculous!

[Guest guest]

Okay, I am calling a truce. PLEASE, let's refocus and get on to helping eachother in our journeys with mitochondrial disease. That's why we are all here.

If those of you involved still have things to hash out, please do so on a personal level via your own e-mail.

Kim

guess I will stop posting

Hi everyone

Gosh, this whole thing seems so juvenile but I got the email below from one of our listmates today. I was in utter shock as I read it. Somehow, despite all the other emails on stem cell and etc ended up being my fault. And it was brought to my attention that it is my fault that Anne left the group...because of ME.

First off Dawn, let me address some of the errors in your letter. I do NOT find a way to post everyday. In the past month I have posted six times and that's it. Three of those have been this week.

Secondly, I wrote Ann privately and apologized for any fault I had in the matter. I told her that I still believed that these issues (not politics, but religion and stem cell) were important to us. I explained, as I did on the list, that my thinking is that if you go to a church and are talking to people who are not dealing with the daily issues we are dealing with, they often don't get it. There used to be a mito-believers list...there might still be...but our views of God change as we try to wrap our minds around this illness. I told her that if I said anything personal or offensive, that it was NOT my intent. I hope she has forgiven me.

Also, I don't want Ann to leave and I do not feel like I am RIGHT. If you read my second post on the matter I said that I liked hearing others opinions on stem cells b/c I haven't really gotten all the info yet. I am an open-minded person and want to know how others see things...even about religion and even when I don't agree with them. I don't feel like I am right or wrong...I think there is room for all of us to have our own opinions and still be respectful of others.

If I have EVER come across as forcing religion on anyone, I am sorry. If you met me in person you would know that this is NOT my personality. Sometimes things are not communicated in email the way they would be in person. I have plenty of friends who don't believe in God or practice different religions so I really want to apologize if I EVER did that to anyone,,,because if I did, I wasn't even aware of it.

..

I have not remained in the group to sell my items...I remained to help others b/c disease course was very unique and quick and when others come around that are having similar situations I want to be there to help them. I have spent much of my own time and resources helping out other families after meeting them on the list...doing it off list. The signature is something I use in ALL my emails, personal and business (its set on default). I personally would have no issue with others that do it...in fact, there are others who do it. I have always visited sites b/c I want to be supportive of moms trying to stay home and run a business b/c they can't work b/c of thier child. Also, I have a page on my business about my family...people have done web searches on Mito and found that and written me and I have helped them. A girl joined the list recently because she found my site. I don't see what the big deal is...just ignore i! t. I guess that's what I do when people right things I don't agree with or when people do things that I think are inappropriate.

You obviously do want to fight or you wouldn't have written such a flaming email to me! I still can't believe it. Today is an extra hard day...all holidays are hard since is gone and its my birthday and THIS has been what I have been thiking about. When I saw the email I thought maybe you were going to see what we would do together to make sure Ann was okay...not blame the entire thing on me. By the way, Gwen started the post...you were the 5th person to respond to it and I was the 7th. The whole point of both of my posts were to say I DO NOT think that politics are important to us as a support group but I DO THINK that religion and stem cell research do affect us. I barely expressed an opinion outside of that. Gwen did tell me thank you for saying it had a place in the group...she then included some more political stuff which i OPTED NOT to read...and others could do the same! The discussion was almost 24 hours fro! m being over when Ann posted...everyone had moved on and were discussing stopping services. Who knows WHICH response upset Ann or if it was the collection. I don't know why this was pinned on me.

Dawn, you were the only one who posted a response to Ann on the list...did you write flaming email to everyone else who was part of the discussion. If she did, I hope you speak up about it.

I don't know who these mom(s) are that you are betting with but that statement was only made to make yourself look better and to hurt me. It was pointless.

So I guess I may continue to read for a short time, but I will not post on the list. Unless the other moms in dawns group tell me who they are, I might post to them privately some time if I have something to add, so just delete it if you in that group of moms. If everyone feels as you do, then I will unsub and ask Shirley or someone else to keep me posted on the families and children I have come to love and care about.

You guys helped me through a lot of stuff...but always, more important than the medical info was the support you gave on things like quality of life, family issues, hospice and death and yes, religion...those are the things I remember...not discussing gtubes and oxygen.

I care for you all...I wont post again unless I am wanted, which I see by some, I am not.

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.

[Guest guest]

Amen, e!

Vicki

guess I will stop posting

Hi everyone

Gosh, this whole thing seems so juvenile but I got the email below from one of our listmates today. I was in utter shock as I read it. Somehow, despite all the other emails on stem cell and etc ended up being my fault. And it was brought to my attention that it is my fault that Anne left the group...because of ME.

First off Dawn, let me address some of the errors in your letter. I do NOT find a way to post everyday. In the past month I have posted six times and that's it. Three of those have been this week.

Secondly, I wrote Ann privately and apologized for any fault I had in the matter. I told her that I still believed that these issues (not politics, but religion and stem cell) were important to us. I explained, as I did on the list, that my thinking is that if you go to a church and are talking to people who are not dealing with the daily issues we are dealing with, they often don't get it. There used to be a mito-believers list...there might still be...but our views of God change as we try to wrap our minds around this illness. I told her that if I said anything personal or offensive, that it was NOT my intent. I hope she has forgiven me.

Also, I don't want Ann to leave and I do not feel like I am RIGHT. If you read my second post on the matter I said that I liked hearing others opinions on stem cells b/c I haven't really gotten all the info yet. I am an open-minded person and want to know how others see things...even about religion and even when I don't agree with them. I don't feel like I am right or wrong...I think there is room for all of us to have our own opinions and still be respectful of others.

If I have EVER come across as forcing religion on anyone, I am sorry. If you met me in person you would know that this is NOT my personality. Sometimes things are not communicated in email the way they would be in person. I have plenty of friends who don't believe in God or practice different religions so I really want to apologize if I EVER did that to anyone,,,because if I did, I wasn't even aware of it.

..

I have not remained in the group to sell my items...I remained to help others b/c disease course was very unique and quick and when others come around that are having similar situations I want to be there to help them. I have spent much of my own time and resources helping out other families after meeting them on the list...doing it off list. The signature is something I use in ALL my emails, personal and business (its set on default). I personally would have no issue with others that do it...in fact, there are others who do it. I have always visited sites b/c I want to be supportive of moms trying to stay home and run a business b/c they can't work b/c of thier child. Also, I have a page on my business about my family...people have done web searches on Mito and found that and written me and I have helped them. A girl joined the list recently because she found my site. I don't see what the big deal is...just ignore i! t. I guess that's what I do when people right things I don't agree with or when people do things that I think are inappropriate.

You obviously do want to fight or you wouldn't have written such a flaming email to me! I still can't believe it. Today is an extra hard day...all holidays are hard since is gone and its my birthday and THIS has been what I have been thiking about. When I saw the email I thought maybe you were going to see what we would do together to make sure Ann was okay...not blame the entire thing on me. By the way, Gwen started the post...you were the 5th person to respond to it and I was the 7th. The whole point of both of my posts were to say I DO NOT think that politics are important to us as a support group but I DO THINK that religion and stem cell research do affect us. I barely expressed an opinion outside of that. Gwen did tell me thank you for saying it had a place in the group...she then included some more political stuff which i OPTED NOT to read...and others could do the same! The discussion was almost 24 hours fro! m being over when Ann posted...everyone had moved on and were discussing stopping services. Who knows WHICH response upset Ann or if it was the collection. I don't know why this was pinned on me.

Dawn, you were the only one who posted a response to Ann on the list...did you write flaming email to everyone else who was part of the discussion. If she did, I hope you speak up about it.

I don't know who these mom(s) are that you are betting with but that statement was only made to make yourself look better and to hurt me. It was pointless.

So I guess I may continue to read for a short time, but I will not post on the list. Unless the other moms in dawns group tell me who they are, I might post to them privately some time if I have something to add, so just delete it if you in that group of moms. If everyone feels as you do, then I will unsub and ask Shirley or someone else to keep me posted on the families and children I have come to love and care about.

You guys helped me through a lot of stuff...but always, more important than the medical info was the support you gave on things like quality of life, family issues, hospice and death and yes, religion...those are the things I remember...not discussing gtubes and oxygen.

I care for you all...I wont post again unless I am wanted, which I see by some, I am not.

deb...mom to three great kids and wife to one amazing guy!http://www.lifeofloveproject.org/http://www.heartliftersgallery.com/ Crazy Lizzies!! PURSES!Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.